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Data Resource Center for Child and Adolescent Health. 2012. 2007 and 2011 national survey of children's health and 2009/10 national survey of children with special health care needs: Measures pertaining to Healthy People 2020 objectives (rev.). [Portland, OR]: Data Resource Center for Child and Adolescent Health, 6 pp.

Data Resource Center for Child and Adolescent Health
Child and Adolescent Health Measurement Initiative The Johns Hopkins Bloomberg School of Public Health 615 North Wolfe Street
Baltimore, MD 21205

E-mail: info@cahmi.org
Website: http://www.cahmi.org/projects/drc
Available from the website.

This document demonstrates how the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN) can be used to establish a baseline and monitor improvement in child and adolescent health and well-being. Contents include a series of charts listing Healthy People 2020 objectives and related NSCH and NS-CSHCN measures and indicators. [Funded by the Maternal and Child Health Bureau]

Keywords: Healthy People 2020, National surveys, Survey data, Child health, Children with special health care needs, Comparative analysis, Measures, Oral health, Children

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[Bethel LA]. 2007. 2007-2009 Massachusetts children with special health care needs oral health action plan. [Boston, MA]: Massachusetts Department of Public Health, Office of Oral Health, 11 pp.

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This document outlines the goals and objectives of the oral health action plan created at the oral health forums for children with special health care needs held on September 28, 2006, in Newton, Massachusetts, and on September 29, 2006, in Holyoke, Massachusetts. Topics include the relationship between goals and national programs of significance, strategies, tools, activities, timetable of action items, outcome measures, collaborators, and comments and notes. A companion document, Massachusetts State/Territorial Oral Health Forums for Children with Special Health Care Needs Leading to an Action Plan, is available. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, Conferences, State initiatives, Massachusetts

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Indiana State Department of Health. [1992]. A caregiver's guide to oral health. Indianapolis, IN: Indiana State Board of Health, 1 videotape (31 minutes, VHS 1/2 inch).

Indiana State Department of Health
2 North Meridian Street
Indianapolis, IN 46204

Telephone: (317) 233-1325
Contact Phone: (317) 233-7192
Website: http://www.in.gov/isdh/
$6.00, prepayment by check or money order only.

This videotape is designed to help caregivers prioritize and become competent in routine oral hygiene for people with disabilities. There are vignettes with people with disabilities across the lifecycle, their families, and health care providers to illustrate different perspectives on oral health care. Three chapters explain and demonstrate (1) use of universal procedures to avoid cross-contamination, (2) assessment of oral health status, and (3) oral hygiene techniques. Topics include proper brushing, flossing, denture care, toothbrush storage, referrals to dental professionals, importance of routine examinations, responsibilities of care facilities, discerning oral pain in uncommunicative patients, and the importance of developing a program for daily oral hygiene.

    Keywords: Oral health, Dental care, Dental hygiene, Special health care needs, Special health care services, Consumer education materials, Videotapes, Audiovisual materials

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    Perlman SP, Friedman C, Fenton SJ. 2008. A caregivers guide to good oral health for persons with special needs. Washington, DC: Special Olympics, 18 pp.

    Special Olympics, Healthy Athletes, Special Smiles
    1133 19th Street, N.W.
    Washington, DC 20036

    Telephone: (202) 628-3630
    Secondary Telephone: (800) 700-8585
    Fax: (202) 824-0200
    E-mail: spolk@specialolympics.org
    Website: http://resources.specialolympics.org/Topics/Healthy_Athletes/Disciplines/Special_Smiles.aspx
    Available from the website.

    This guide presents information for caregivers on helping individuals with special health care needs practice behaviors for maintaining optimal oral health. Instructions for toothbrushing, mouthrinsing, and flossing are provided, including adaptations for meeting the needs of individuals with various cognitive and physical abilities. Common oral health problems are also addressed.

    Keywords: Children with special health care needs, Dental hygiene, Oral health, Prevention, Development, Infants, Adults, Children

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    National Foundation of Dentistry for the Handicapped, National Fluorides Task Force. 1981. A guide to the use of fluorides for the prevention of dental caries with alternative recommendations for patients with handicaps. Denver, CO: National Foundation of Dentistry for the Handicapped, National Fluorides Task Force, 85 pp.

    National Maternal and Child Oral Health Resource Center
    Georgetown University Box 571272
    Washington, DC 20057-1272

    Telephone: (202) 784-9771
    Fax: (202) 784-9777
    E-mail: OHRCinfo@georgetown.edu
    Website: http://www.mchoralhealth.org
    Single photocopies available at no charge.

    This guide, for health professionals who treat individuals with special health care needs, focuses on providing the best possible caries prevention using fluoride. The first two sections of the guide contain specific recommendations for using fluoride for individual patients and for groups of patients in an institutional setting. The third section is a desk reference of selected fluoride products that are commercially available. Section four offers a rationale for fluoride therapy and describes different techniques for delivering fluoride, such as systemic, operator applied, and self-applied fluoride use. An appendix contains consent forms and sample prescriptions. The guide includes figures and tables as well as text.

      Keywords: Fluorides, Oral health, Disease prevention, Children with special health care needs, Dental care, Consent, Health recommendations

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      Virginia Department of Health, Division of Dental Health. 2009. A healthy mouth for children with special health care needs: A parent's guide. Richmond, VA: Virginia Department of Health, Division of Dental Health, 2 pp.

      Virginia Department of Health, Division of Dental Health
      109 Governor Street, Eighth Floor
      Richmond, VA 23219

      Telephone: (804) 864-7775
      Fax: (804) 864-7783
      Website: http://www.vdh.virginia.gov/ofhs/childandfamily/dental
      Available from the website.

      This brochure provides information on oral hygiene for young children with special health care needs. Topics include increased oral disease risks for this population; the importance of prevention; partnering with oral health and medical professionals; brushing, flossing, and use of fluoride; and the importance of establishing a dental home. [Funded by the Maternal and Child Health Bureau]

      Keywords: Oral health, Children with special health care needs, Dental hygiene, Educational materials, Children

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      American Academy of Pediatric Dentistry. 2013. AAPD fast facts. Chicago, IL: American Academy of Pediatric Dentistry, 42 pp.

      American Academy of Pediatric Dentistry
      211 East Chicago Avenue, Suite 1700
      Chicago, IL 60611-2637

      Telephone: (312) 337-2169
      Fax: (312) 337-6329
      Website: http://www.aapd.org
      Available from the website.

      This press kit includes story ideas addressing common pediatric oral health issues. Topics include treating infants in the dental office, fluoride for infants, pacifier and thumb sucking, and how to select a pediatric dentist. Additional topics include cosmetic and restorative dentistry, behavior guidance, diet and oral health, dental sealants, risk assessment, oral health care for individuals with special health care needs, and sports safety and oral health emergencies.

      Keywords: Oral health, Infants, Children, Adolescents, Dental care, Prevention services, Mass media, Health promotion, Resources for professionals

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      American Dental Association. 2011. ADA caries risk assessment forms. [Chicago, IL]: American Dental Association, 3 items.

      American Dental Association
      211 East Chicago Avenue
      Chicago, IL 60611-2678

      Telephone: (312) 440-2500
      Fax: (312) 440-7494
      E-mail: info@ada.org
      Website: http://www.ada.org
      Available from the website.

      These instructions and risk-assessment forms assist health professionals in screening and in communicating with clients about dental caries. Forms are provided for infants and children from birth through age 6 and for children ages 6 and older. The instructions provide background information on the development of the forms; discuss factors associated with low, medium, and high levels of caries risk; and provide information about fluoride exposure, sugary or starchy foods and beverages, clients with special health care needs, and medications that reduce salivary flow.

      Keywords: Oral health, Dental caries, Early childhood caries, Screening, Forms, Infants, Young children, Surveys

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      Special Care Dentistry Association. 2004. Addressing dental care for individuals with autistic disorders: Information and techniques for the professional. [Wellesley, MA]: Nancy Lurie Marks Family Foundation, 2 items; 1 DVD (90 min), 1 DVD (47 min).

      National Maternal and Child Oral Health Resource Center
      Georgetown University Box 571272
      Washington, DC 20057-1272

      Telephone: (202) 784-9771
      Fax: (202) 784-9777
      E-mail: OHRCinfo@georgetown.edu
      Website: http://www.mchoralhealth.org
      Available for loan.

      This set of two DVDs is designed for use by oral health professionals in providing care for individuals with autism spectrum disorders (ASD). One DVD contains an audiovisual presentation of a pre-conference symposium on providing oral health care for individuals with ASD, conducted as part of the XVII International Congress on Disability and Oral Health, held in August 2004 in Banff, Alberta, Canada. The second DVD contains an audiovisual presentation of information and techniques from the D-Termined Program, which encourages oral health professionals to use repetitive tasking and familiarization to meet the needs of individuals with ASD in their practice.

        Keywords: Dental care, Oral health, Health services delivery, Autism, Resources for professionals, DVDs, Audiovisual materials

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        Michigan Department of Community Health, Oral Health Program. 2009. Addressing dental education curriculums for treating persons with special needs. [Lansing, MI]: Michigan Department of Community Health, Oral Health Program, 5 pp.

        Michigan Department of Community Health, Oral Health Program
        Capitol View Building 201 Townsend Street
        Lansing, MI 48913

        Telephone: (517) 335-8879
        Fax: (517) 335-8294
        E-mail: oralhealth@michigan.gov
        Website: http://www.michigan.gov/mdch/0,1607,7-132-2942_4911_4912_6226---,00.html
        Available from the website.

        This document describes adopted revisions to the accreditation standards for Michigan oral health professionals' training and education in treating clients with special needs. It describes requirements for students in programs in dental hygiene, dental education, and advanced education in general practice residency. Information is provided on curriculum development.

        Keywords: Oral health, Dental education, Special health care needs, Dental care, Disabilities, Professional training, Curriculum development, State initiatives, Michigan

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        Agoratus L. 2014. Affordable Care Act (ACA): Why oral health is important for children with special health care needs and how to access it. Albuquerque, NM: Family Voices, 2 pp, (ACA tip sheet).

        National Center for Family / Professional Partnerships
        Family Voices 3701 San Mateo Boulevard, N.W., Suite 103
        Albuquerque, NM 87110

        Telephone: (505) 872-4774
        Secondary Telephone: (888) 835-5669
        Fax: (505) 872-4780
        Website: http://www.fv-ncfpp.org
        Available from the website.

        This tip sheet for parents of children with special health care needs provides information about the importance of good oral health care. Additional topics include the Affordable Care Act, finding dental coverage, and partnering with oral health professionals. Resources are included.

        Keywords: Oral health, Children, Adolescents, Special health care needs, Families, Dental care, Family centered care, Parent professional relations, Health insurance, Health care reform, Patient Protection and Affordable Care Act

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        Williams B, Tolbert J. 2007. Aging out of EPSDT: Issues for young adults with disabilities. Washington, DC: Kaiser Commission on Medicaid and the Uninsured, 12 pp, (Issue paper).

        Kaiser Commission on Medicaid and the Uninsured
        1330 G Street, N.W.
        Washington, DC 20005

        Telephone: (202) 347-5270
        Fax: (202) 347-5274
        E-mail: http://www.kff.org/about/contact.cfm
        Website: http://kff.org/about-kaiser-commission-on-medicaid-and-the-uninsured/
        Available from the website.

        This issue paper discusses the challenges and implications for young adults with disabilities when they lose their eligibility for Early and Periodic Screening, Diagnosis, and Treatment program benefits. The brief discusses difficulties in qualifying for Medicaid and the reduced benefits for those who do qualify. The brief also discusses how changes to the Deficit Reduction Act give states an opportunity to increase the availability of Medicaid services that allow young adults with disabilities to lead lives that are as normal as possible as they move into adulthood. Individual case stories are highlighted.

        Keywords: Adolescents with special health care needs, Transition, Young adults, EPSDT, Medicaid, Access to health care, Health insurance, Health services, Health care financing, Federal programs, Oral Health, Adolescents

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        Alaska Oral Health Program. 2012. Alaska Oral Health Program: TOHSS final report. [Juneau, AK]: Oral Health Program, 26 pp.

        National Maternal and Child Oral Health Resource Center
        Georgetown University Box 571272
        Washington, DC 20057-1272

        Telephone: (202) 784-9771
        Fax: (202) 784-9777
        E-mail: OHRCinfo@georgetown.edu
        Website: http://www.mchoralhealth.org
        Available from the website.

        This final report describes a 2007 to 2011 oral health program in Alaska to provide additional access to preventive services to pregnant women, infants, and children, including those with special health care needs, as well as to pilot a school-based dental sealant program. The report is organized into objectives and goals with a brief summary of activities in each year of the program. Also included is an overview of future oral health program activities and evaluation results. [Funded by the Maternal and Child Health Bureau]

        Keywords: Oral health, Pregnant women, Infants, Young children, Children with special health care needs, Health services delivery, Low income groups, State initiatives, Alaska, Final reports

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        UCLID Center at the University of Pittsburgh and University of Pittsburgh School of Dentistry. [2005]. An oral health tutorial providing a brief overview of early childhood caries for non-dental professionals. Pittsburgh, PA: UCLID Center at the University of Pittsburgh and University of Pittsburgh School of Dentistry.

        LEND Center at the University of Pittsburgh
        Children's Hospital Office Building 3414 Fifth Avenue, Second Floor
        Pittsburgh, PA 15213-2583

        Telephone: (412) 692-6538
        Secondary Telephone: (412) 692-6300
        Fax: (412) 692-7428
        E-mail: uclid@pitt.edu
        Contact E-mail: rob.oliver@chp.edu
        Website: http://www.uclid.org
        Available from the website.

        This tutorial is designed to help non-oral-health professionals who work with infants and young children, including those with special health care needs, identify early signs of early childhood caries (ECC), differentiate between ECC and other oral health problems, counsel families about prevention, and refer children with dental caries to a dentist.

        Keywords: Oral health, Infants, Young children, Children with special health care needs, Early childhood caries, Disease prevention, Referral, Training, Continuing education, Distance education

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        Missouri Coalition for Oral Health. 2007. ASTDD - CSHCN report: Missouri Coalition for Oral Health [final report]. [Columbia, MO]: Missouri Coalition for Oral Health, 10 pp.

        National Maternal and Child Oral Health Resource Center
        Georgetown University Box 571272
        Washington, DC 20057-1272

        Telephone: (202) 784-9771
        Fax: (202) 784-9777
        E-mail: OHRCinfo@georgetown.edu
        Website: http://www.mchoralhealth.org
        Available from the website.

        This report summarizes the oral health forum held on July 21, 2006, in Columbia, Missouri, for children with special health care needs. Report contents include an overview of the planning process, a summary of the forum discussions, an outline of the forum evaluation comments, budget information, and notes on potential barriers to implementing the action plan. The action plan is attached as a chart outlining steps, goals, needs, activities, timelines, outcomes, partners, and implementation notes. Also attached is the forum agenda, a participant list, and discussion group outlines. [Funded in part by the Maternal and Child Health Bureau]

        Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Missouri

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        Veschusio C. 2006. ASTDD final report: State/territorial oral health forums for children with special health care needs (CSHCN) leading to an action plan. Columbia, SC: South Carolina Department of Health and Environmental Control, Division of Oral Health, 3 pp.

        Association of State and Territorial Dental Directors
        3858 Cashill Boulevard
        Reno, NV 89509

        Telephone: (775) 626-5008
        Fax: (775) 626-9268
        E-mail: info@astdd.org
        Website: http://www.astdd.org
        Available from the website.

        This brief reports on the efforts leading to an action plan for children with special health care needs (CSHCN) in South Carolina. Topics include overviews of activities since 2006; the 'Building Bridges for Better Oral Health" forum held on June 1-2, 2006, in Columbia, South Carolina; workgroup sessions on creating the action plan; and barriers found in implementing the CSHCN Action Plan. [Funded by the Maternal and Child Health Bureau]

        Keywords: Oral health, Children with special health care needs, Strategic plans, Barriers, South Carolina, State initiatives, Children

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        Balzer J, Isman B. 2009. ASTDD support for state CSHCN oral health forums, action plans and follow-up activities: Interim evaluation summary. [New Bern, NC]: Association of State and Territorial Dental Directors, 17 pp.

        Association of State and Territorial Dental Directors
        3858 Cashill Boulevard
        Reno, NV 89509

        Telephone: (775) 626-5008
        Fax: (775) 626-9268
        E-mail: info@astdd.org
        Website: http://www.astdd.org
        Available from the website.

        This report describes states’ efforts in conducting forums and developing action plans to promote the oral health of children with special health care needs. Topics include the project’s purpose and objectives, follow-up activities, case studies, technical assistance, information dissemination, and advocacy. [Funded by the Maternal and Child Health Bureau]

        Keywords: Oral health, Children with special healthcare needs, State initiatives, Program planning, Case studies, Advocacy, Children

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        Vickers M, ed. 2011-. Bright Futures Family Matters. Albuquerque, NM: Family Voices, IMPACT, irregular.

        Family Voices, IMPACT
        3701 San Mateo Boulevard, N.E., Suite 103
        Albuquerque, NM 87110

        Telephone: (505) 872-4774
        Secondary Telephone: (888) 835-5669
        Fax: (505) 872-4780
        Website: http://www.fv-impact.org
        Available from the website.

        This newsletter provides information and resources to help professionals and families promote health in children and adolescents including those with special health care needs. Contents include information on child health topics such as child development, nutrition, and physical activity; caregiving; campaigns and initiatives; community health; networking and partnerships; and research. [Funded by the Maternal and Child Health Bureau]

        Keywords: Bright Futures, Health promotion, Children, Adolescents, Families, Special health care needs, Family centered care, Consumer education materials

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        Louisiana Children's Oral Health Initiative and Louisiana Department of Health and Hospitals, Oral Health Program. [2003]. Brushing up on children's oral health in Louisiana: A policy brief. New Orleans, LA: Louisiana Department of Health and Hospitals, Oral Health Program, 44 pp.

        Agenda for Children
        8300 Earhart Bouevard, Suit 201
        New Orleans, LA 70118

        Telephone: (800) 486-1712
        Secondary Telephone: (504) 586-8509
        Fax: (504) 586-8522
        E-mail: info@agendaforchildren.org
        Website: http://www.agendaforchildren.org
        Available from the website.

        This report documents the importance of good oral health for children and highlights some of the barriers that children and families face when trying to access oral health services in Louisiana. Focus areas include prevention, provider participation in Medicaid/LaCHIP, dentists' availability, community education, and children with special health care needs. A summary table outlines the focus areas and offers recommendations for addressing access barriers statewide.

        Keywords: Oral health, Access to health care, Provider participation, Louisiana, Underserved populations, Children with special health care needs, Barriers, State children's health insurance programs, Medicaid, State programs, Infant, Children, Adolescents, Families

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        Salama F, Roeber B, Uchida C. 2009. Caregiver's guide to oral health care for persons with special health care needs. Lincoln, NE: University of Nebraska Medical Center, College of Dentistry, 1 DVD.

        University of Nebraska Medical Center, College of Dentistry
        40th & Holdrege Street
        Lincoln, NE 68583-0740

        Telephone: (402) 472-1301
        Fax: (402) 472-5290
        Website: http://www.unmc.edu/dentistry
        Single copies available at no charge.

        This DVD provides instruction for parents and other caregivers on how to clean the teeth and tongue of a child with special health care needs. The content is presented in three parts. The first part (about 20 minutes) shows caregivers providing oral hygiene care to children. The second part (about 10 minutes) demonstrates oral hygiene products (toothbrushes, flossing devices, tongue scrapers, and mouth props) and shows correct hygiene technique. The third part (about 20 minutes) is a slide show that includes information on common oral conditions, oral hygiene techniques, alternate positions for oral hygiene, the use of adaptive aids, and other tips.

          Keywords: Oral health, Children with special health care needs, Dental hygiene, Dental care, Health education, DVDs, Educational materials

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          Mouradian WE. [1995]. Case no. 5: Healthcare for a boy with cleft lip and palate in a managed care setting—Allocation of health resources to children. Unpublished manuscript, 58 pp.

          This paper addresses access to health care from an ethical perspective. The author presents a case study of a child with special health needs denied standards of care for his condition by a primary care pediatrician with decision making authority in a managed care environment. The second part of the paper examines allocation of health resources to children as a part of public policy.

            Keywords: Managed care, Ethics, Health insurance, Resource allocation, Chronic illnesses and disabilities, Children with special health care needs, Decision making, Craniofacial abnormalities, Primary care, Standards, Patient care teams, Multidisciplinary teams, Pediatrics

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            Barzel R, Holt K. 2012. Child and adolescent oral health issues. Washington, DC: National Maternal and Child Oral Health Resource Center, 8 pp, (Authors vary.).

            National Maternal and Child Oral Health Resource Center
            Georgetown University Box 571272
            Washington, DC 20057-1272

            Telephone: (202) 784-9771
            Fax: (202) 784-9777
            E-mail: OHRCinfo@georgetown.edu
            Website: http://www.mchoralhealth.org
            Available from the website.

            This fact sheet provides health professionals with information on issues related to child and adolescent oral health. Topics include dental caries, access to care, children and adolescents with special health care needs, dental sealants, fluorides, nutrition, injury and violence, and tobacco. [Funded by the Maternal and Child Health Bureau]

            Keywords: Oral health, Children, Adolescents, Access to health care, Dental care, Health promotion

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            Children's Oral Health Coalition. 2006. Children and Youth with Special Health Care Needs Oral Health Forum: Smiles for special kids–Final report. Oklahoma City, OK: Oklahoma Association of Community Action Agencies, 30 pp.

            National Maternal and Child Oral Health Resource Center
            Georgetown University Box 571272
            Washington, DC 20057-1272

            Telephone: (202) 784-9771
            Fax: (202) 784-9777
            E-mail: OHRCinfo@georgetown.edu
            Website: http://www.mchoralhealth.org
            Available from the website.

            This report presents a brief history of the adverse impact of legislative changes on the delivery of oral health care to individuals eligible for Medicaid in Oklahoma and 2002-2006 state and local initiatives to address oral health disparities, with an emphasis on the oral health forum on children with special health care needs held on August 25, 2006, in Oklahoma City, Oklahoma. Contents include a summary of the forum planning process, a list of the invitees and participants, panel presentation summaries, the action plan, and a discussion of potential barriers and additional resources. Tables containing state and national statistics on the percentage of children with special health care needs by age, gender, family income, and race and ethnicity as presented during the forum are provided. Tables containing indicators of child health and well-being are also presented. The forum agenda, e-card, registration form, attendance list, evaluation summary, and financial report are included as exhibits. [Funded in part by the Maternal and Child Health Bureau]

            Keywords: Oral health, Children with special health care needs, State initiatives, Access to health care, Statistical data, Conferences, Oklahoma

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            Batshaw ML, ed. 2002. Children with disabilities: A medical primer (5th ed.). Baltimore, MD: Paul H. Brookes Publishing Company, 870 pp.

            Brookes Publishing
            P.O. Box 10624
            Baltimore, MD 21285-0624

            Telephone: (800) 638-3775
            Secondary Telephone: (410) 337-9580
            Fax: (410) 337-8539
            E-mail: custserv@brookespublishing.com
            Website: http://www.brookespublishing.com
            $69.95, plus shipping and handling.

            Written primarily for a health care audience (special educators, physical therapists, occupational therapists, speech and language pathologists, social workers, child life specialists) and health care students, this book has found an additional audience in parents and in others who work with families of children with special health needs. Information on a wide range of topics is covered: heredity, birth defects, normal fetal growth and development, labor and delivery, premature birth, nutrition, oral health, brain and nervous system, bones and muscles, and normal and abnormal development. Additional chapters cover specific problems of substance abuse during fetal development, vision, hearing, speech and language, autism, attention deficit disorder and hyperactivity, learning disabilities, cerebral palsy, neural tube defects, epilepsy. and traumatic brain injury. The final chapters discuss interventions, how families cope with a child with special needs; special education services, promoting adaptive behavior, technological assistance, rehabilitation and exercise, ethical dilemmas, family-centered services, transition issues, and health care delivery systems and financing issues. Appendices include a glossary, a brief description of certain syndromes, a list of commonly used medications, and a list of resources for children with disabilities. An index concludes the book. Illustrations to supplement the narrative are provided in numerous tables and figures.

              Keywords: Children with special health care needs, Fetal development, Child health, Developmental stages, Chronic illnesses and disabilities, Congenital abnormalities, Autism, Attention deficit disorder, Hyperactivity, Learning disabilities, Cerebral palsy, Epilepsy, Interventions, Transitions, Family centered services

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              Adams CJ. 2007. Children with special health care needs (CSHCN) oral health forum. [Anchorage, AK]: Children with Special Health Care Needs Division, Alaska Department of Health and Social Services, 38 pp.

              Association of State and Territorial Dental Directors
              3858 Cashill Boulevard
              Reno, NV 89509

              Telephone: (775) 626-5008
              Fax: (775) 626-9268
              E-mail: info@astdd.org
              Website: http://www.astdd.org
              Available from the website.

              This report describes a forum held on February 23, 2007, in Anchorage, Alaska, to discuss the oral health service needs of children with special health care needs (CSHCN). Contents include a summary of the sessions; the priority areas and actions plans relating to financial issues; access to dental services; and education of parents, caregivers and providers. In addition, notes are also included from the discussion session to brainstorm on preventive services, surveillance, provision of dental services, dental workforce and training issues, and potential solutions. [Funded by the Maternal and Child Health Bureau]

              Keywords: Children with special health care needs, Meetings, Strategic plans, Alaska, State initiatives, Oral health, Children

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              District of Columbia Department of Health, Oral Health Division. 2007. Children with special health care needs (CSHCN) oral health forum [participant folder]. Washington, DC: District of Columbia Department of Health, Oral Health Division, 13 items.

              National Maternal and Child Oral Health Resource Center
              Georgetown University Box 571272
              Washington, DC 20057-1272

              Telephone: (202) 784-9771
              Fax: (202) 784-9777
              E-mail: OHRCinfo@georgetown.edu
              Website: http://www.mchoralhealth.org
              Single photocopies available at no charge.

              This participant folder contains materials from the oral health forum held on May 22, 2007, in Washington, DC, to address children with special health care needs (CSHCN). Contents include the forum agenda, printed presentation slides, a fact sheet from the National Survey of Children with Special Health Care Needs for DC, a publication focusing on the South Carolina program for CSHCN, a list of facilitator biographies, a conference evaluation form, a list of participants, fact sheets from the National Maternal and Child Oral Health Resource Center, and a print copy of the Maternal and Child Health Bureau Web pages on Achieving and Measuring Success: A National Agenda for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

                Keywords: Oral health, Children with special health care needs, Conferences, District of Columbia

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                [Stone Soup Group and Alaska Oral Health Program]. 2008. Children with special health care needs oral health forum: Report to ASTDD on the action plan and budget expenditures. Anchorage, AK: [Stone Soup Group and Alaska Oral Health Program], 2 pp.

                Association of State and Territorial Dental Directors
                3858 Cashill Boulevard
                Reno, NV 89509

                Telephone: (775) 626-5008
                Fax: (775) 626-9268
                E-mail: info@astdd.org
                Website: http://www.astdd.org
                Available from the website.

                This brief reports on two 2007 meetings to improve access to oral health care in children with special health care needs with a focus on improvements to the Medicaid/ Denali KidCare program in Alaska. Contents include a meeting summary, an overview of recommendations and priorities, and strategies for the state oral health plan and next steps. Budget expenditures are also summarized. [Funded by the Maternal and Child Health Bureau]

                  Keywords: Oral health, Children with special health care needs, Strategic plans, Meetings, Alaska, State initiatives

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                  Casamassimo PS. [2003]. Children with special health care needs: Patient, professional and systems issues. Washington, DC: Children's Dental Health Project, 22 pp, (Pediatric oral health interfaces background paper).

                  Children's Dental Health Project
                  1020 19th Street, N.W., Suite 400
                  Washington, DC 20036

                  Telephone: (202) 833-8288
                  Fax: (202) 331-1432
                  E-mail: info@cdhp.org
                  Website: http://www.cdhp.org
                  Single copies available at no charge.

                  This paper describes the state of oral health care for children with special health care needs in the United States and provides background information on the evolution of the health care system available in 2003 to these children and their families. The paper includes a scorecard indicating how well the system is addressing Healthy People 2010 oral health objectives and describing major issues and obstacles impeding improvement. Additionally, the paper presents recommendations for changes in financing and professional education and provides extensive references. Tables throughout the paper outline problems identified by children and their families, potential roles for health professionals in improving the system, and desirable characteristics of a family-centered oral health care system for children and their families.

                  Keywords: Children with special health care needs, Dental care, Oral health, Healthy People 2010, National surveys, Service delivery systems, Program descriptions, Program improvement, Access to health care, Barriers, Children, Families, Parents

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                  Minnesota Department of Health. 2004. Children with special health needs: Oral health. St. Paul, MN: Minnesota Department of Health, 3 pp, (Minnesota Title V needs assessment fact sheets).

                  Minnesota Department of Health, Maternal and Child Health Section
                  P.O. Box 64882
                  St. Paul, MN 55164-0882

                  Telephone: (651) 201-3760
                  Fax: (651) 201-3590
                  Website: http://www.health.state.mn.us/divs/cfh/program/mch/index.cfm
                  Available from the website.

                  This fact sheet outlines the oral health and oral-health-related service needs of children and adolescents with special health care needs (SHCN) in Minnesota, a chosen priority issue for the 2005 Title V Block Grant needs assessment reporting requirement. Topics include the magnitude and seriousness of the problem, interventions to increase awareness of oral health among caregivers of children and adolescents with SHCN, interventions to improve the capacity of oral health professionals to care for children and adolescents with SHCN, and state efforts to eliminate oral health disparities and improve oral health and access to care for children and adolescents with SHCN. [Funded by the Maternal and Child Health Bureau]

                  Keywords: Children with special health care needs, Oral health, Access to health care, Barriers, Health insurance, Statistics, State surveys, Minnesota, Needs assessment

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                  Cleft Palate Foundation. 1998. Cleft lip and cleft palate: The first four years (rev. ed.). Chapel Hill, NC: Cleft Palate Foundation, 24 pp.

                  Cleft Palate Foundation
                  1504 East Franklin Street, Suite 102
                  Chapel Hill, NC 27514-2820

                  Telephone: (800) 242-5338
                  Secondary Telephone: (919) 933-9044
                  Fax: (919) 933-9604
                  E-mail: info@cleftline.org
                  Website: http://www.cleftline.org
                  Price unknown.

                  The purpose of this booklet is to provide answers for the questions of parents about what can be done to help their baby with a cleft and lessen parental concerns about the future. The information has been prepared by health care professionals who are members of the American Cleft Palate - Craniofacial Association and by lay persons who are members of parent-patient support groups. Much of the information in this booklet is based on interactions with parents. The information in the booklet will help parents know how to care for their their baby and is presented in the general order in which parents may need to cope with various situations. A glossary at the end of the booklet defines certain words parents may read or hear. Words in the glossary are bolded when they first appear in the booklet.

                    Keywords: Oral health, Infants, Cleft lip, Cleft palate, Parent education

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                    March of Dimes Birth Defects Foundations, Community Services Department. 1988. Cleft lip and palate. White Plains, NY: March of Dimes Birth Defects Foundation, 2 pp, (Public health education information sheet).

                    March of Dimes
                    1275 Mamaroneck Avenue
                    White Plains, NY 10605

                    Telephone: (914) 997-4488
                    Secondary Telephone:
                    E-mail:
                    Website: http://www.marchofdimes.com
                    Price unknown.

                    This fact sheet presents an introductory overview of cleft lip and palate. It covers the causes, the future of the child with this disability, special problems associated with clefts, feeding concerns, ear problems, and how speech is affected. Places for further information are listed in conclusion.

                      Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities

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                      Children's Hospital and Regional Medical Center. 1997. Cleft lip and palate: Critical elements of care. Seattle, WA: Children's Hospital and Regional Medical Center, 47 pp.

                      Children's Hospital and Regional Medical Center
                      4800 Sand Point Way, N.E., P.O. Box 5371
                      Seattle, WA 98105

                      Telephone: (206) 987-2000
                      Secondary Telephone: (206) 987-2280
                      Website: http://www.seattlechildrens.org
                      $5.00 includes shipping and handling.

                      This report and accompanying five charts provide information on the stages of care and treatment from birth through age 21 for children and adolescents with cleft lips or palates. Appendices include standards of care, prenatal diagnosis, feeding, pediatrics, developmental issues, genetics, plastic surgery, hearing and speech problems, orthodontics, and dental care.

                        Keywords: Cleft lip, Cleft palate, Children, Adolescents, Standards

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                        Lynch JI, Karnell MP, eds. 1996. Cleft lip and palate: The school-aged child. Chapel Hill, NC: Cleft Palate Foundation, 32 pp.

                        Cleft Palate Foundation
                        1504 East Franklin Street, Suite 102
                        Chapel Hill, NC 27514-2820

                        Telephone: (800) 242-5338
                        Secondary Telephone: (919) 933-9044
                        Fax: (919) 933-9604
                        E-mail: info@cleftline.org
                        Website: http://www.cleftline.org
                        Single copies available at no charge.

                        This pamphlet provides information on how to achieve the best possible appearance and speech for school-age children with cleft lip or cleft palate. Information on surgery, speech therapy, and orthodontia is presented, together with suggestions for helping to create a good school experience for children with cleft lip or cleft palate. This section covers the importance of protecting a child's hearing (especially for children with cleft palate, who are at greater risk for hearing problems), dealing with learning problems, and handling teasing. Advice for teachers of children with cleft lip or cleft palate is included.

                          Keywords: Oral health, School age children, Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, School adjustment

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                          U.S. Public Health Service, Office of the Surgeon General. 2002. Closing the gap: A national blueprint to improve the health of persons with mental retardation—Report of the Surgeon General's Conference on Health Disparities and Mental Retardation. Rockville, MD: U.S. Public Health Service, 53 pp.

                          U.S. Government Printing Office
                          732 North Capitol Street, N.W.
                          Washington, DC 20401

                          Telephone: (202) 512-1800
                          Secondary Telephone: (866) 512-1800
                          Fax: (202) 512-2104
                          E-mail: contactcenter@gpo.gov
                          Website: http://www.gpo.gov
                          Available from the website.

                          This conference report identifies priority goals and action steps set forth by the mental retardation (MR) community at the national conference held December 5–6, 2001, in Washington, DC. The goals and action steps are described as follows: (1) integrate health promotion into community environments of individuals with MR; (2) increase knowledge and understanding of health and MR, ensuring that knowledge is made practical and easy to use; (3) improve the quality of health care for individuals with MR; (4) train health professionals in the care of adults and children with MR; (5) ensure that health care financing produces good health outcomes for adults and children with MR; and (6) increase sources of health care services for children, adolescents, and adults with MR, ensuring that they can easily access services. The report also includes six appendices covering the conference plenary sessions, a list of participants, a list of potential partners, a description of programs and strategies to close the health disparities gap for those with MR, a summary of the Surgeon General's listening session, and a list of speakers at the listening session. Appendix D, Section C describes oral health programs.

                          Keywords: Mental retardation, Health promotion, Program descriptions, Federal initiatives, Special health care needs, Special health care services, Health care delivery, Access to health care, Quality assurance, Health care financing, Conferences, Oral health, Children, Adolescents, Adults

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                          Colorado Department of Public Health and Environment, Oral Health Program. 2012. Colorado TOHSS final report. Denver, CO: Colorado Department of Public Health and Environment, 282 pp.

                          National Maternal and Child Oral Health Resource Center
                          Georgetown University Box 571272
                          Washington, DC 20057-1272

                          Telephone: (202) 784-9771
                          Fax: (202) 784-9777
                          E-mail: OHRCinfo@georgetown.edu
                          Website: http://www.mchoralhealth.org
                          Available from the website.

                          This final report describes a Colorado oral health project to increase the number of children with a dental home by addressing three areas: (1) increasing the number of dental visits by age 1 for children at highest risk for oral disease, (2) improving access to oral health services for children with special health care needs through the medical home approach, and (3) expanding access to restorative care through school-based dental sealant programs. Contents include a summary of each goal, with activities listed. [Funded by the Maternal and Child Health Bureau]

                          Keywords: Oral health, Young children, School age children, Children with special health care needs, Access to health care, Medical home, State initiatives, Colorado, Final reports

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                          American Academy of Pediatric Dentistry. 2013. Definitions, oral health policies, and clinical guidelines. Chicago, IL: American Academy of Pediatric Dentistry, multiple items.

                          American Academy of Pediatric Dentistry
                          211 East Chicago Avenue, Suite 1700
                          Chicago, IL 60611-2637

                          Telephone: (312) 337-2169
                          Fax: (312) 337-6329
                          Website: http://www.aapd.org
                          Available from the website.

                          This resource comprises definitions, policies, and clinical guidelines of the American Academy of Pediatric Dentistry (AAPD). Definitions include dental home and special health care needs. Revised policies and guidelines address topics such as the use of fluoride, prevention of sports-related orofacial injuries, model dental benefits, the role of pediatric dentists as primary care providers, periodicity of services, caries-risk assessment and management, and management of acute dental trauma.

                          Keywords: Oral health, Perinatal health, Infants, Children, Adolescents, Children with special health care needs, Dental care, Pediatric dentistry, Guidelines, Health policy, Professional societies

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                          Bonito AJ, Edelstein BL, Stiefel DJ, Helgeson MJ, Smith BJ, Johnsen M, Ebert C. 2002. Dental care considerations of special care populations. Special Care in Dentistry 22(3):1S-55S.

                          Special Care Dentistry Association
                          330 North Watash Avenue, Suite 2000
                          Chicago, IL 60611

                          Telephone: (312) 527-6764
                          Fax: (312) 673-6663
                          E-mail: SCD@SCDonline.org
                          Website: http://www.SCDonline.org
                          Available from the website.

                          This special supplement of Special Care in Dentistry was prepared for the Dental Care Considerations of Disadvantaged and Special Care Populations Conference held on April 18–19, 2001, in Baltimore, Maryland. The articles focus on impediments to meeting oral health care needs among individuals with special health care needs. Topics include oral health and oral health care access challenges, demographics, maintaining oral health, and approaches to improving oral health and access to oral health care.

                          Keywords: Dental care, Access to health care, Oral health, Special health care needs, Special health care services, Barriers, Young children, Adults, Disabilities, Older adults, Health insurance, Provider participation

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                          Pediatric Adolescent Gastroesophageal Reflux Association. 2003. Dental care for the child with acid reflux. Buckeystown, MD: Pediatric Adolescent Gastroesophageal Reflux Association, 2 pp.

                          Pediatric Adolescent Gastroesophageal Reflux Association
                          P.O. Box 7728
                          Silver Spring, MD 20907-7728

                          Telephone: (301) 601-9541
                          Secondary Telephone:
                          E-mail: gergroup@aol.com
                          Website: http://www.reflux.org
                          Available from the website.

                          This brochure for parents outlines special concerns for for the oral health of children with acid reflux. It discusses tooth decay, the effects of stomach acids in the esophagus and mouth, and the importance of talking with health care and dental professionals.

                          Keywords: Oral health, Child health, Dental caries, Vomiting, Educational materials, children

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                          Connolly G. 1989. Dental Care Program for Community-Based Children with Developmental Disabilities [Final report]. Boston, MA: Massachusetts Health Research Institute, 45 pp.

                          National Maternal and Child Oral Health Resource Center
                          Georgetown University Box 571272
                          Washington, DC 20057-1272

                          Telephone: (202) 784-9771
                          Fax: (202) 784-9777
                          E-mail: OHRCinfo@georgetown.edu
                          Website: http://www.mchoralhealth.org
                          Single photocopies available at no charge. Document Number: NTIS PB93-152908.

                          This project sought to improve the oral health of children with disabilites by enhancing the abilities of private dental offices, of MCH primary care dental programs, and of community hospitals to care for this group. Strategies included training of care providers, developing educational materials on preventive home care for parents, a dental resource guide, and a statewide regional dental coordinator system. Networking between individuals and agencies at central and regional levels to achieve maximal use of private and public dental resources was also part of the plan. [Funded by the Maternal and Child Health Bureau]

                            Keywords: Oral health, Dental, Children with special health care needs, Dentists, Dental hygienists, Training

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                            Autism Speaks Family Services. 2010. Dental guide. New York, NY: Autism Speaks, 12 pp, plus appendices.

                            Autism Speaks
                            1 East 33rd Street, Fourth Floor
                            New York, NY 10016

                            Telephone: (212) 252-8584
                            Fax: (212) 252-8676
                            E-mail: contactus@autismspeaks.org
                            Website: http://www.autismspeaks.org
                            Available from the web site.

                            This guide provides information for families about good oral care for children with autism. Topics include choosing a toothbrush, brushing your child's teeth and flossing, finding the right dental office and preparing for the dental visit, the importance of visual supports and schedules, and meeting the dentist. Information and advice for dentists is also included.

                            Keywords: Oral health, Autism, Children with special health care needs, Families, Dentists, Consumer education, materials Dental care, Dental hygiene, Parent professional relations

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                            Epilepsy Foundation. 2009. Dental health and epilepsy. Landover, MD: Epilepsy Foundation, 7 pp.

                            Epilepsy Foundation
                            8301 Professional Place
                            Landover, MD 20785-7223

                            Telephone: (800) 332-1000
                            Secondary Telephone: (866) 748-8008
                            Fax: (301) 577-2684
                            E-mail: info@efa.org
                            Website: http://www.epilepsyfoundation.org
                            Available from the website.

                            This pamphlet provides information about maintaining oral health in people who take antiepileptic medications. Topics include seeking medical attention for oral injuries such as those resulting from a fall during a seizure, drugs associated with oral health problems, and the role of routine oral hygiene and dental visits in preventing tooth decay. Tips for eating right and limiting snacks, brushing and flossing, using a disclosing agent, visiting the dentist regularly, and getting more information are included.

                            Keywords: Oral health, Epilepsy, Dental hygiene, Dental care, Medications, Educational materials, Adults

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                            O'Donnell JP, ed. 1988. Dental management for developmentally disabled persons in the community. (2nd ed.). Boston, MA: Massachusetts Department of Public Health, Division of Dental Health, 186 pp.

                            National Maternal and Child Oral Health Resource Center
                            Georgetown University Box 571272
                            Washington, DC 20057-1272

                            Telephone: (202) 784-9771
                            Fax: (202) 784-9777
                            E-mail: OHRCinfo@georgetown.edu
                            Website: http://www.mchoralhealth.org
                            Available for loan.

                            This manual is designed to offer the dentist basic information about concepts in the dental management of the developmentally disabled person. Topics covered include professional attitudes, family participation, use of the clinical laboratory, premedication, sedation, hospital management, nutrition, role of the dental hygienist, management of periodontal disease, orthodontic considerations and office accessibility and environment. Also included is a review of major types of disabilities with a discussion of dental considerations. [Funded by the Maternal and Child Health Bureau]

                              Keywords: Oral health, Children with special health care needs

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                              Tesini DA, et al. [1990]. Dental management for persons with special health needs. Boston, MA: Massachusetts Department of Public Health, 6 videotapes (VHS 1/2 inch); 4 DVDs.

                              National Maternal and Child Oral Health Resource Center
                              Georgetown University Box 571272
                              Washington, DC 20057-1272

                              Telephone: (202) 784-9771
                              Fax: (202) 784-9777
                              E-mail: OHRCinfo@georgetown.edu
                              Website: http://www.mchoralhealth.org
                              Available for loan.

                              This set of six VHS videotapes or four DVDs provides instruction in the following areas of oral health management for persons with special health needs:1) oral health education for persons with special needs; 2) application of pit and fissure sealants; 3) premedication for persons with special needs; 4) intravenous sedation for the patient with special needs; 5) hospital management; 6) hospital dentistry. Tape number 1 and DVD number 1 includes an overview, infection control, a guide to toothbrushing and flossing, and a guide to positioning. [Funded by the Maternal and Child Health Bureau]

                                Keywords: Oral health, Children with special health care needs, Audiovisual materials, Videotapes, DVDs

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                                Writeprocess and Community-Campus Partnerships for Health. [2009]. Dental partnerships: Ryan White HIV/AIDS Program—Community Based Dental Partnership Program. Seattle, WA: Community-Campus Partnerships for Health, 64 pp.

                                Community-Campus Partnerships for Health
                                University of Washington Box 354809
                                Seattle, WA 98195-4809

                                Telephone: (206) 666-3406
                                E-mail: ccphuw@u.washington.edu
                                Website: http://www.ccph.info
                                Available from the website.

                                This report reviews calendar years 2004, 2005, and 2006 accomplishments and strategies for delivering oral health care to people living with HIV by grantees funded under the Health Resources and Services Administration’s Ryan White HIV/AIDS Program. Contents include filling gaps in HIV oral health care, partnership activities, state program profiles, and tools. Contacts and program requirements are included.

                                Keywords: Oral health, HIV, AIDS, Health services delivery, Barriers, Public private partnerships, State programs, Health services delivery

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                                French DP. 1988. Dental resource guide for special populations in Massachusetts. Boston, MA: Massachusetts Department of Public Health, Division of Dental Health , 157 pp.

                                National Maternal and Child Oral Health Resource Center
                                Georgetown University Box 571272
                                Washington, DC 20057-1272

                                Telephone: (202) 784-9771
                                Fax: (202) 784-9777
                                E-mail: OHRCinfo@georgetown.edu
                                Website: http://www.mchoralhealth.org
                                Contact for cost information.

                                This guide is an information and referral source for people who are involved in coordinating community-based oral services for developmentally disabled, elderly, and persons with low income. It is divided into two sections: (1) a directory of dentists and health facilities that treat these populations, transportation services available to these groups, and area offices of state human service agencies providing case management services; and (2) a listing of programs which provide services that increase access to dental care for these individuals.

                                  Keywords: Oral health, Children with special health care needs, Access to health care, Low income groups, Older adults

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                                  Lewin Group. 2004. Dental services for children with special health care needs: Treatment guidelines and Medicaid reimbursement options. [Falls Church, VA]: Lewin Group, 23 pp.

                                  National Maternal and Child Oral Health Resource Center
                                  Georgetown University Box 571272
                                  Washington, DC 20057-1272

                                  Telephone: (202) 784-9771
                                  Fax: (202) 784-9777
                                  E-mail: OHRCinfo@georgetown.edu
                                  Website: http://www.mchoralhealth.org
                                  Available from the website.

                                  This report addresses unique aspects of the District of Columbia Oral Health Initiative, a program that provides comprehensive oral health services for children with special health care needs (CSHCN) in two public schools. Topics include treatment guidelines for oral health services for children with special health care needs, Medicaid coverage for services and school-based health centers, managed care and examples of different reimbursement systems for CSHCN, and Medicaid coverage of special services. Three appendices provide case study information on programs in New Mexico and New York.

                                  Keywords: Oral health, Dental care, Children with special health care needs, Medicaid, Reimbursement, School based clinics, District of Columbia, Children

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                                  Tesini DA. 1988. Developing dental education programs for persons with special needs: A daily oral health care guide for parents and staff. Boston, MA: Massachusetts Department of Public Health, 56 pp.

                                  National Maternal and Child Oral Health Resource Center
                                  Georgetown University Box 571272
                                  Washington, DC 20057-1272

                                  Telephone: (202) 784-9771
                                  Fax: (202) 784-9777
                                  E-mail: OHRCinfo@georgetown.edu
                                  Website: http://www.mchoralhealth.org
                                  Available for loan.

                                  This manual offers a practical guide and information for those planning to institute oral care programs for persons with special needs in a variety of special settings. The manual takes into account important health issues pertaining to the transmission of disease and infection control, problems of major relevance to oral care programs for developmentally disabled and immunocompromised populations. The use of new preventive agents and methods for the control of dental disease are also discussed. The appendix includes forms for oral health screening and a quarterly oral health review, a toothbrushing skills checklist, and a listing of pamphlets and training aids. [Funded by the Maternal and Child Health Bureau]

                                    Keywords: Oral health, Dental caries, Periodontal disease, Nutrition, Child health, Dental care, Children with special health care needs

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                                    Tesini DA. 1988. Developing dental education programs for persons with special needs: A training and reference guide. Boston, MA: Massachusetts Department of Public Health, 86 pp.

                                    National Maternal and Child Oral Health Resource Center
                                    Georgetown University Box 571272
                                    Washington, DC 20057-1272

                                    Telephone: (202) 784-9771
                                    Fax: (202) 784-9777
                                    E-mail: OHRCinfo@georgetown.edu
                                    Website: http://www.mchoralhealth.org
                                    Available for loan.

                                    This training and reference guide describes programs that have been used by Tufts Dental Facilities for the Handicapped and Boston University Special Needs Dental Program in Massachusetts. An attempt has been made to make this text technical enough to provide accurate and up-to-date information, but understandable to parents, staff, and health care workers. Sections 2, 3, and 4 address specific issues for institutions, community programs, and parents. Sections 1 and 5 contain dental information that should be available to all persons providing daily oral care to special needs persons. Pamphlets and training aids are listed and annotated in the appendix. [Funded by the Maternal and Child Health Bureau]

                                      Keywords: Dental care, Nutrition, Child health, Health education, Oral health, Children with special health care needs

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                                      USC Center for Excellence in Developmental Disabilities at Children' s Hospital Los Angeles. 2001. Developmental disabilities: More than just medicine—You make the difference. Los Angeles, CA: USC Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, 1 CD-ROM.

                                      National Maternal and Child Oral Health Resource Center
                                      Georgetown University Box 571272
                                      Washington, DC 20057-1272

                                      Telephone: (202) 784-9771
                                      Fax: (202) 784-9777
                                      E-mail: OHRCinfo@georgetown.edu
                                      Website: http://www.mchoralhealth.org
                                      Available for loan.

                                      This CD-ROM contains a multimedia continuing education course for health professionals. The course, which is designed to improve the quality of and access to preventive primary and specialty medical care for individuals with developmental disabilities, addresses early identification and preventive care for individuals from birth through age 21. Topics include oral health, nutrition, mental health, communication, and sensorimotor therapy. [Funded in part by the Maternal and Child Health Bureau]

                                        Keywords: Continuing education, Children with special health care needs, Children with developmental disabilities, Early intervention, Preventive health services, Resources for professionals, CD-ROMs

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                                        National Institute of Dental and Craniofacial Research. 2012. Dry mouth. Bethesda, MD: National Institute of Dental and Craniofacial Research, 8 pp.

                                        National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse
                                        National Institutes of Health
                                        Bethesda, MD 20892-2190

                                        Telephone: (301) 402-7364
                                        Secondary Telephone: (866) 232-4528
                                        Fax: (301) 480-4098
                                        E-mail: nidcrinfo@mail.nih.gov
                                        Website: http://www.nidcr.nih.gov
                                        Available at no charge; also available from the web site. Document Number: NIH Pub. No. 13-3174 (EN), 12-3174S.

                                        This brochure explains the symptoms of dry mouth, what causes it (including Sjogren’s Syndrome), and what can be done about it. Tips for keeping teeth healthy and sources for more information are included. Latest edition in English, 2008 edition in Spanish.

                                        Keywords: Oral health, Mouth diseases, Sjogrens syndrome, Adults, Spanish language materials

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                                        Medical College of Georgia, Division of Continuing Education. 2004. Educating Georgia's dental professionals about children with special health care needs. Augusta, GA: Medical College of Georgia, Division of Continuing Education, 1 v.

                                        National Maternal and Child Oral Health Resource Center
                                        Georgetown University Box 571272
                                        Washington, DC 20057-1272

                                        Telephone: (202) 784-9771
                                        Fax: (202) 784-9777
                                        E-mail: OHRCinfo@georgetown.edu
                                        Website: http://www.mchoralhealth.org
                                        Contact for cost information.

                                        This notebook of materials is from the training course held on November 17–18, 2004, in Augusta, Georgia, for oral health professionals providing services to children with special health care needs. The notebook includes a course schedule and objectives; an agenda; slides from presentations; a copy of a guide titled Planning Guide for Dental Professionals Serving Children with Special Health Care Needs; tools, brochures, and policy statements pertaining to oral health for children with special health care needs; lists of course participants; and an evaluation form. [Funded in part by the Maternal and Child Health Bureau]

                                          Keywords: Dental care, Training, Education, Oral health, Dental education, Dentists, Dental hygienists, Dental assistants, Children with special health care needs, Professional training, Georgia

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                                          Tut O. 2012. End of TOHSS project report, Republic of Marshall Islands: Model oral health prevention training and delivery for well baby visits and children with special needs. Majuro, Marshall Islands: Ministry of Health, 7 pp.

                                          National Maternal and Child Oral Health Resource Center
                                          Georgetown University Box 571272
                                          Washington, DC 20057-1272

                                          Telephone: (202) 784-9771
                                          Fax: (202) 784-9777
                                          E-mail: OHRCinfo@georgetown.edu
                                          Website: http://www.mchoralhealth.org
                                          Available from the website.

                                          This report describes an oral health project in the Marshall Islands to increase access to and provide oral health care services for children, including those with special health care needs, and pregnant women. Topics include increasing collaboration between government, oral health care stakeholders, and families in program development and providing comprehensive curriculum training for all levels of providers. Also included are a description of project goals and objectives and activities, an evaluation matrix, a flowchart showing the improvement plan, and a list of presentations and products developed during the project. [Funded by the Maternal and Child Health Bureau]

                                          Keywords: Oral health, Children, Pregnant women, Special health care needs, Access to health care, Collaboration, Service delivery systems, State initiatives, Marshall Islands, Final reports

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                                          Odeh M. [2014]. Ensuring adequate marketplace provider networks: What's needed for children. Washington, DC: First Focus, 4 pp.

                                          First Focus
                                          1110 Vermont Avenue, N.W., Suite 900
                                          Washington, DC 20005

                                          Telephone: (202) 657-0670
                                          Fax: (202) 657-0671
                                          E-mail: http://www.firstfocus.net/about/contact-us
                                          Website: http://www.firstfocus.net
                                          Available from the website.

                                          This document addresses the adequacy of provider networks in ensuring that all children have access to health services, including oral health services. The document discusses what constitutes adequate provider networks for children and discusses how such networks can be developed and assessed.

                                          Keywords: Advocacy, Access to health care, Children, Provider networks, Health care reform

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                                          Family Voices, IMPACT. 2013. Ensuring children get needed dental services. Albuquerque, NM: Family Voices, IMPACT, 1 p, (IMPACT on Health & Wellness for Families).

                                          Family Voices, IMPACT
                                          3701 San Mateo Boulevard, N.E., Suite 103
                                          Albuquerque, NM 87110

                                          Telephone: (505) 872-4774
                                          Secondary Telephone: (888) 835-5669
                                          Fax: (505) 872-4780
                                          Website: http://www.fv-impact.org
                                          Available from the website.

                                          This fact sheet provides guidance for families on ways to ensure optimal oral health for their child or adolescent with special health care needs. Contents include tips on locating and receiving preventive and treatment services, modeling oral hygiene routines at home, communicating with children and adolescents about their oral health, and advocating on children's and adolescents' behalf. Resources are also included. [Funded by the Maternal and Child Health Bureau]

                                          Keywords: Oral health, Access to health care, Health promotion, Children with special health care needs, Adolescents with special health care needs, Family centered care, Consumer education, Dental hygiene

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                                          Knipper S. 2004. EPSDT: Supporting children with disabilities. Tualatin, OR: National Center for Family Support, 37 pp.

                                          This booklet is designed to help parents who have a child with special health care needs better understand the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) program and Medicaid in general. The booklet explains what EPSDT is and discusses service delivery, limits on services, eligibility, Medicaid and immigration, the EPSDT process, grievances and appeals, and typical areas of confusion. Some information is presented in tables and figures. The booklet includes two appendices: the Michigan age periodicity scale and additional resources.

                                          Keywords: EPSDT, Medicaid, Children with special health care needs, Disabilities, Eligibility, Immigration, Health services, Health services delivery, Educational materials

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                                          J. Robb Associates. 1977. Evaluation of specialized training for dentists treating children with handicaps: Executive summary. Houston, TX: J. Robb Associates, 40 pp.

                                          National Maternal and Child Oral Health Resource Center
                                          Georgetown University Box 571272
                                          Washington, DC 20057-1272

                                          Telephone: (202) 784-9771
                                          Fax: (202) 784-9777
                                          E-mail: OHRCinfo@georgetown.edu
                                          Website: http://www.mchoralhealth.org
                                          Available on-site only. Document Number: HSA 240-75-79.

                                          This report describes a general evaluation model which could be used to evaluate a wide range of training programs sponsored by the Bureau of Community Health Services (BCHS), and application of this model to specialized training for dentists treating children with disabilities. The purposes of the general evaluation strategy are to provide a conceptual framework for assessing health training programs, and to provide a research strategy or design for empirically ascertaining the structure and efficiency of function of such programs. The purposes of the application to pediodontic training programs are to provide a substantive evaluation of a set of programs which have been funded for several years and to assess the adequacy of the research strategy and conceptual framework for future applications in the health field. This document summarizes the results of both segments of the project. The conclusions drawn from the evaluation are summarized.

                                            Keywords: Evaluation, Dentists, Children with special health care needs, Pediatric dentists, Training, Professional education, Oral health

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                                            Casamassimo P. 2007. Expect the best for your child's dental home. Chicago, IL: American Academy of Pediatric Dentistry, 2 pp.

                                            American Academy of Pediatric Dentistry
                                            211 East Chicago Avenue, Suite 1700
                                            Chicago, IL 60611-2637

                                            Telephone: (312) 337-2169
                                            Fax: (312) 337-6329
                                            Website: http://www.aapd.org
                                            $2.95, may be ordered online at http://www.eparent.com/resources_ep_magazine/index.asp; also available from the website.

                                            This excerpt from Exceptional Parent magazine provides guidance for families on seeking oral health care for their child and on establishing a relationship with a dentist who can meet the needs of both the child and the parent. Topics include starting early, finding a pediatric dentist, preparing for the dental visit, what to expect of a dentist and a practice, the therapeutic partnership, and linking the dental home to other services. A table shows the application of the principles and characteristics of the medical home as applied to dental practice.

                                            Keywords: Oral health, Infant health services, Child health services, Families, Special health care needs, Dental care, Medical home

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                                            [Manter, M]. 2005. Experiences of health and education professional[s]: Roles to play in oral health for children with special health care needs—Responses from educators, nurses, and allied health professionals. Lawrence, KS: Kansas Head Start Association; Lenexa, KS: American Academy of Pediatrics, Kansas Chapter, 9 pp.

                                            National Maternal and Child Oral Health Resource Center
                                            Georgetown University Box 571272
                                            Washington, DC 20057-1272

                                            Telephone: (202) 784-9771
                                            Fax: (202) 784-9777
                                            E-mail: OHRCinfo@georgetown.edu
                                            Website: http://www.mchoralhealth.org
                                            Single photocopies available at no charge.

                                            This report summarizes results from a survey of nurses, classroom teachers, coordinators, therapists, and speech-language pathologists in Kansas on oral health issues affecting their work with children with special health care needs. Topics include oral problems, prevention protocols and activities, providing services, knowledge or skills, and identifying early oral disease.

                                              Keywords: Oral health, Children with special health care needs, Health services delivery, Surveys, Professional personnel, Kansas

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                                              Post P, ed. 2003. Filling the gaps in dental care. Healing Hands 7(3):1-4.

                                              National Health Care for the Homeless Council
                                              P.O. Box 60427
                                              Nashville, TN 37206-0427

                                              Telephone: (615) 226-2292
                                              Fax: (615) 226-1656
                                              E-mail: council@nhchc.org
                                              Website: http://www.nhchc.org
                                              Available from the website.

                                              This issue of Healing Hands, a publication of the Health Care for the Homeless Clinicians' Network, is devoted to raising awareness among health professionals who serve individuals and families who are homeless of efforts to fill gaps in oral health services through public and private partnerships. The articles spotlight specific Health Care for the Homeless programs, representing a variety of service models, and describe the complex oral health problems experienced by program clients. Models of care using the health commons approach, dental school affiliations, volunteer dentistry, and mobile outreach are discussed. A list of sources and resources is provided.

                                              Keywords: Oral health, Homeless persons, Access to health care, Models, Collaboration, Public private partnerships, Children, Adults

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                                              Alves-Dunkerson J. 2012. Final narrative: HRSA TOHSS grant–Improving access to oral health services for children with special health care needs with minor and moderate chronic conditions in Washington state. [Olympia, WA]: Washington State Department of Health, Oral Health Program, 34 pp.

                                              National Maternal and Child Oral Health Resource Center
                                              Georgetown University Box 571272
                                              Washington, DC 20057-1272

                                              Telephone: (202) 784-9771
                                              Fax: (202) 784-9777
                                              E-mail: OHRCinfo@georgetown.edu
                                              Website: http://www.mchoralhealth.org
                                              Available from the website.

                                              This final report describes a 2007–2011 oral health program in Washington to bring partners together to collaborate in a systemic way to address oral health disparities in children with special health care needs. Topics covered include partnerships; assessment activities; fact sheet and curriculum development, training, presentations, and dissemination; evaluation and sustainability of grant activities; and grant activities analysis. [Funded by the Maternal and Child Health Bureau]

                                              Keywords: Oral health, Young children, Children with special health care needs, Collaboration, State initiatives, Washington, Final reports

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                                              Washington State Department of Health, Oral Health Program. 2008. Final report for follow-up activities to CSHCN state/territorial oral health forums. [Olympia, WA]: Washington State Department of Health, Oral Health Program, 1 p.

                                              Association of State and Territorial Dental Directors
                                              3858 Cashill Boulevard
                                              Reno, NV 89509

                                              Telephone: (775) 626-5008
                                              Fax: (775) 626-9268
                                              E-mail: info@astdd.org
                                              Website: http://www.astdd.org
                                              Available from the website.

                                              This brief reports on follow-up activities of meetings held in August 2008 in Washington to discuss implementation of the oral health action plan in the state. Forum outcomes are outlined with a budget. [Funded by the Maternal and Child Health Bureau]

                                              Keywords: Oral health, Strategic plans, Washington, Children

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                                              [Public Sector Consultants]. 2006. Final report: Michigan oral health forums and action plan for children with special health care needs (CSHCN). [Lansing, MI: Public Sector Consultants], 60 pp.

                                              National Maternal and Child Oral Health Resource Center
                                              Georgetown University Box 571272
                                              Washington, DC 20057-1272

                                              Telephone: (202) 784-9771
                                              Fax: (202) 784-9777
                                              E-mail: OHRCinfo@georgetown.edu
                                              Website: http://www.mchoralhealth.org
                                              Available from the website.

                                              This report summarizes conferences held throughout Michigan in 2006 to address issues in improving oral health care for children with special health care needs. The report provides an overview of the planning process, a list of attendees, flyers and announcements, a copy of the forum agenda, printed PowerPoint slides used, a final report providing a summary of forum discussions, a chart representing the action plan, the completed budget, a list of potential barriers to accessing oral health care and additional resources needed to implement the plan, and an overview of next steps. [Funded in part by the Maternal and Child Health Bureau]

                                              Keywords: Oral health, Children with special health care needs, Access to health care, State initiatives, Conferences, Michigan

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                                              Phicil S. 2012. Financing the special health care needs of children and youth in foster care: A primer. Boston, MA: Catalyst Center, 32 pp.

                                              Catalyst Center
                                              Boston University School of Public Health Health & Disability Working Group 715 Albany Street
                                              Boston, MA 02218-2526

                                              Telephone: (617) 639-1936
                                              E-mail: mcomeau@bu.edu
                                              Website: http://hdwg.org/catalyst
                                              Available from the website.

                                              This primer examines the role of state Title V programs in improving the system of coverage and care for children and adolescents with special health care needs in foster care. Topics include leading or participating in initiatives related to medical home, benefits counseling, child abuse and neglect prevention, service quality monitoring and measurement, and transition. [Funded by the Maternal and Child Health Bureau]

                                              Keywords: Financing, Children with special health care needs, Adolescents with special health care needs, Foster care, Title V programs, Program improvement, Quality assurance, Service delivery systems, State MCH programs

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                                              First Smiles Education and Training Project. 2004-. First Smiles. Sacramento, CA: California Dental Association Foundation; Oakland, CA: Dental Health Foundation, multiple items.

                                              California Dental Association Foundation, First Smiles Education and Training Project
                                              1201 K Street, Suite 1511
                                              Sacramento, CA 95814

                                              Telephone: (800) 232-7645
                                              E-mail: Rolande.Loftus@cda.org
                                              Website: http://www.cdafoundation.org/learn/education-training/first-smiles
                                              Available from the website.

                                              These resources, which focus on preventing early childhood caries (ECC), are intended for oral health professionals, health professionals, early childhood educators, and parents and caregivers of infants and young children (including those with special health care needs [CSHCN]). The content is part of First Smiles, a statewide initiative to address ECC in California. Resources for professionals include training calendars, streaming video segments, continuing education opportunities, and tools and supporting materials. Selected parent-education tools include four tip sheets on age-specific anticipatory guidance (prenatal, birth to age 1, ages 1 to 2, and ages 3 to 5) and the brochure, Healthy Teeth Begin at Birth, available in 10 languages. Policies and procedures, frequently asked questions, scientific articles, news articles, and links are provided. Specific resources for creating, implementing, and evaluating community-based oral health programs for young children residing in rural areas and for working with CSHCN are also presented.

                                              Keywords: Oral health, Young children, Children with special health care needs, Rural environment, Disease prevention, Early childhood caries, Educational materials, Continuing education, Dental education, Medical education, Distance education, Resources for professionals

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                                              First Smiles Education and Training Project. [2005]. First Smiles for the dental team. Sacramento, CA: California Dental Association Foundation; Oakland, CA: Dental Health Foundation.

                                              California Dental Association
                                              1201 K Street, 14th Floor
                                              Sacramento, CA 95814

                                              Telephone: (800) 232-7645
                                              E-mail: contactcda@cda.org
                                              Website: http://www.cda.org
                                              Available at no charge to CDA members.

                                              This continuing education activity for oral health professionals comprises four modules on the prevention of dental caries in infants and young children from birth through age 5, including children with special health care needs. Contents include an overview of early childhood caries (ECC), causes of ECC and how to prevent it, and oral health assessment and billing.

                                              Keywords: Oral health, Young children, Children with special health care needs, Early childhood caries, Disease prevention, Distance education, Continuing education, Resources for professionals

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                                              First Smiles Education and Training Project. [2008]. First Smiles: Dental health begins at birth. Sacramento, CA: California Dental Association Foundation; Oakland, CA: Dental Health Foundation, 14 pp.

                                              California Dental Association Foundation, First Smiles Education and Training Project
                                              1201 K Street, Suite 1511
                                              Sacramento, CA 95814

                                              Telephone: (800) 232-7645
                                              E-mail: Rolande.Loftus@cda.org
                                              Website: http://www.cdafoundation.org/learn/education-training/first-smiles
                                              Available from the website.

                                              This continuing education course for oral health professionals provides information on how to detect dental caries in young children, including those with special health care needs, and how to provide early interventions to manage the disease process. Topics include the causes and costs of early childhood caries (ECC), ECC prevention, risk assessment for infants and young children, and documenting and billing for fluoride varnish application.

                                              Keywords: Oral health, Young children, Children with special health care needs, Early childhood caries, Disease prevention, Risk assessment, Dental care, Early intervention services, Fluorides, Continuing education, Distance education, Resources for professionals

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                                              American Dental Association. 2000-2014. For the dental patient. Chicago, IL: American Dental Association and the Journal of the American Dental Association.

                                              American Dental Association
                                              211 East Chicago Avenue
                                              Chicago, IL 60611-2678

                                              Telephone: (312) 440-2500
                                              Fax: (312) 440-7494
                                              E-mail: info@ada.org
                                              Website: http://www.ada.org
                                              Available from the website.

                                              This resource provides oral health information that dentists can copy as handouts for their clients. New topics are regularly added to the series. Topics include tooth decay, tongue spllitting and oral jewelry, mouthguards, gum disease, tobacco cessation, oral health during pregnancy, oral health during cancer treatment, the benefits and safety of dental radiographs, and oral health care for children.

                                              Keywords: Oral health, Dental care, Educational materials, Resources for professionals, Children, Parents

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                                              FosterClub. 2010. FosterClub transition toolkit. Seaside, OR: FosterClub; Washington, DC: Fostering Connections Resource Center, 34 pp.

                                              FosterClub
                                              753 First Avenue
                                              Seaside, OR 97138

                                              Telephone: (503) 717-1552
                                              Website: https://www.fosterclub.com
                                              Available from the website.

                                              This toolkit is designed to help youth in foster care and the adults supporting them develop a comprehensive plan for transitioning from life in foster care to independent adulthood. The toolkit is built around ten domains: finances and money management; job and career; life skills; identity; permanence; education; self care and health; housing; transportation; and community, culture, and social life. A map provides a quick overview of the ten domains, along with space to write down and keep track of the skills, knowledge, and resources needed to prepare for independent living. Advice on setting goals and step-by-step plans for achieving them are included.

                                              Keywords: Transition planning, Transition to independent living, Foster care, Foster children, Foster parents, Youth in transition programs, Oral health, Parents, Children

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                                              Family Voices. 2009. Friday's Child: Special oral health edition. Albuquerque, NM: Family Voices, 4 pp.

                                              Family Voices
                                              3701 San Mateo Boulevard, N.E., Suite 103
                                              Albuquerque, NM 87110

                                              Telephone: (505) 872-4774
                                              Secondary Telephone: (888) 835-5669
                                              Fax: (505) 872-4780
                                              Website: http://www.familyvoices.org
                                              Available from the website.

                                              This issue of the Family Voices’ newsletter for parents focuses on oral health for children with special health care needs (CSHCN). Topics include an oral health partnership in Kansas created to provide CSHCN with access to appropriate oral health services and to provide oral health education for their families. The issue also includes a review of oral health provisions in the Children’s Health Insurance Program.

                                              Keywords: Oral health, Children with special health care needs, State initiatives, Children's Health Insurance Program, Kansas, Children

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                                              National Coalition for Health Professional Education in Genetics. 2011. Genetics, disease and dentistry: Online tutorial. Lutherville, MD: National Coalition for Health Professional Education in Genetics.

                                              National Coalition for Health Professional Education in Genetics
                                              2360 West Joppa Road, Suite 320
                                              Lutherville, MD 21093

                                              Telephone: (410) 583-0600
                                              Fax: (410) 583-0520
                                              E-mail: info@nchpeg.org
                                              Website: http://www.nchpeg.org
                                              Available from the website.

                                              This resource for teachers, students, and oral health professionals provides information on genetics concepts and their applications in practice. Contents include case studies, a genetics primer, clinical reviews, and additional resources. Self-review questions at the end of each case study help gauge understanding of key concepts. The primer includes illustrations depicting the patterns of inheritance most likely to be encountered in practice. The clinical reviews address oral manifestations for each condition, highlighted in the case studies.

                                              Keywords: Oral health, Genetics education, Dentistry, Distance education

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                                              Children's Hospital Los Angeles, University Affiliated Program, University of Southern California, California Connections Project. 1997. Getting connected: Prevention and primary care for young children with special health care needs in managed care. Los Angeles: Children's Hospital Los Angeles, USC University Affiliated Program, irregular.

                                              This series of information sheets addresses health issues for children with special health care needs. The sheets address the topics of nutrition, infant/child mental health, family support, and oral health. The series is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

                                                Keywords: Children with special health care needs, Managed care, Primary care, Preventive health services, Child nutrition, Child mental health, Family support, Oral health, Spanish language materials

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                                                Minnesota Department of Health, Minnesota Children with Special Health Needs. 1999. Guidelines of care for children with special health care needs: Feeding young children with cleft lip and palate. Minneapolis, MN: Minnesota Department of Health, 50 pp.

                                                Minnesota Department of Health
                                                P.O. Box 64975
                                                St. Paul, MN 55164-0975

                                                Telephone: (651) 201-5000
                                                Secondary Telephone: (888) 345-0823
                                                Contact Phone: (612) 646-4997
                                                Website: http://www.health.state.mn.us
                                                Available at no charge.

                                                This illustrated booklet was written for parents of infants and children with cleft palate and discusses good nutrition and growth, challenges in feeding, feeding techniques, common difficulties and solutions, breastfeeding, feeding aids, dental considerations, and nutrition before and after surgery.

                                                  Keywords: Cleft palate, Breastfeeding, Child nutrition, Infant nutrition, Infant health, Child health, Infants with special health care needs, Children with special health care needs

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                                                  Seaman V, ed. 1971. Handicapped children's services. Ohio's Health 23(3):1-36.

                                                  National Maternal and Child Oral Health Resource Center
                                                  Georgetown University Box 571272
                                                  Washington, DC 20057-1272

                                                  Telephone: (202) 784-9771
                                                  Fax: (202) 784-9777
                                                  E-mail: OHRCinfo@georgetown.edu
                                                  Website: http://www.mchoralhealth.org
                                                  Available on-site only.

                                                  This special journal issue focuses on Ohio's Handicapped Children's Services. The issue includes the following sections: (1) serving handicapped children the first half-century, (2) no agency is an island, (3) special dental care for special patients, (4) a physician's look at the crippled children's program, (5) crippled children's services milestones along the way, (6) Holly Bergen, Christmas baby, (7) an open letter to the Bureau of Crippled Children's Services. The journal issue includes black and white photographs.

                                                    Keywords: Children with special health care needs, Oral health, State agencies, State MCH programs, Ohio

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                                                    Klain E, Pilnik L, Talati E, Maze CL, Diamond-Berry K, Hudson L. 2009. Healthy beginnings, healthy futures: A judge's guide. Washington, DC: American Bar Association, ABA Center on Children and the Law, 150 pp.

                                                    American Bar Association, Center on Children and the Law
                                                    740 15th Street, N.W.,
                                                    Washington, DC 20005

                                                    Telephone: (202) 662-1000
                                                    Secondary Telephone: (800) 285-2221
                                                    Fax: (202) 662-1755
                                                    E-mail:
                                                    Website: http://www.abanet.org/child
                                                    Available from the website. Document Number: ISBN 978-1-60442-611-3.

                                                    This guide addresses the array of health needs of very young children in the child welfare system. The guide provides research-based tools and strategies to help judges promote better outcomes for infants and young children who enter their courtrooms. Topics include (1) meeting the needs of very young children in dependency court, (2) promoting physical health, (3) addressing early mental health and developmental needs, (4) achieving permanency, and (5) improving the court's response. Practice tips related to each of these topics are offered, as well. [Funded by the Maternal and Child Health Bureau]

                                                    Keywords: Infant, Young children, Infant development, Early childhood development, Child health, Health promotion, Research, Mental health, Child welfare agencies, Courts

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                                                    Family Voices. 2008. Healthy oral health. Bright Futures: Family Matters 9(3):1-2.

                                                    Family Voices
                                                    3701 San Mateo Boulevard, N.E., Suite 103
                                                    Albuquerque, NM 87110

                                                    Telephone: (505) 872-4774
                                                    Secondary Telephone: (888) 835-5669
                                                    Fax: (505) 872-4780
                                                    Website: http://www.familyvoices.org
                                                    Available from the website.

                                                    This issue focuses on oral health promotion for children and adolescents of all ages. It describes the importance of proper oral health for all of the mouth, provides tips for all ages and those with special health care needs, and lists resources for more information. [Funded by the Maternal and Child Health Bureau]

                                                    Keywords: Oral health, Children, Adolescents, Children with special health care needs

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                                                    Dworetzky B, ed. 2008. Healthy oral health. Bright Futures: Family Matters 9(3):1-2.

                                                    Family Voices
                                                    3701 San Mateo Boulevard, N.E., Suite 103
                                                    Albuquerque, NM 87110

                                                    Telephone: (505) 872-4774
                                                    Secondary Telephone: (888) 835-5669
                                                    Fax: (505) 872-4780
                                                    Website: http://www.familyvoices.org
                                                    Available from the website.

                                                    This issue of Bright Futures: Family Matters provides information and resources for families about oral health and oral health care for children and adolescents, including those with special health care needs. Topics include promoting oral health at home, research on oral health as a measure of overall quality of life, and resources from key organizational partners. [Funded by the Maternal and Child Health Bureau]

                                                    Keywords: Oral health, Dental care, Children with special health care needs, Family centered care, Anticipatory guidance, Children, Families

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                                                    Dr. Samuel D. Harris National Museum of Dentistry. [2011]. Healthy smiles for autism: Oral hygiene tips for children with autism spectrum disorder. Baltimore, MD: Dr. Samuel D. Harris National Museum of Dentistry, 36 pp.

                                                    Dr. Samuel D. Harris National Museum of Dentistry
                                                    University of Maryland School of Dentistry 650 West Baltimore Street
                                                    Baltimore, MD 21201-1504

                                                    Telephone: (410) 706-7146
                                                    Fax: (410) 706-3214
                                                    E-mail: sswank@dentalmuseum.umaryland.edu
                                                    Website: http://www.dental.umaryland.edu/museum/index.html
                                                    Available from the website.

                                                    This guide for parents of children with autism provides tools for teaching oral health routines and preparing for dental visits. Topics include toothbrushing and flossing, behavior and sensory modifications, finding a dental team, and visiting the dentist.

                                                    Keywords: Oral health, Children, Autism, Dental hygiene, Dental care, Anticipatory guidance, Family centered care

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                                                    Kansas Department of Health and Environment, Office of Oral Health. [2005]. Healthy smiles for children and youth with special health care needs. Topeka, KS: Kansas Department of Health and Environment, Office of Oral Health.

                                                    Kansas Department of Health and Environment, Bureau of Oral Health
                                                    Curtis State Office Building 1000 S.W. Jackson Street, Suite 200
                                                    Topeka, KS 66612-1274

                                                    Telephone: (785) 296-5116
                                                    Website: http://www.kdheks.gov/ohi
                                                    Available from the website.

                                                    This training site provides information about oral health conditions and challenges experienced by children and adolescents with special health care needs. The site also describes actions to prevent oral disease for children and adolescents. The course content is available for health professionals and family members. Continuing education credits are available.

                                                    Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Continuing education, Training materials, Resources for professionals, Kansas, Children, Adolescents

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                                                    Children's Hospital and Health Center, Anderson Center for Dental Care. [2005] (ca.). Healthy smiles for children with autism. [San Diego, CA]: Children's Hospital and Health Center, Anderson Center for Dental Care, 2 items.

                                                    Children's Hospital and Health Center, Anderson Center for Dental Care
                                                    3020 Children's Way
                                                    San Diego, CA 92123

                                                    Telephone: (858) 576-1700
                                                    Secondary Telephone: (800) 788-9029
                                                    E-mail: refsvc@chsd.org
                                                    Website: http://www.chsd.org/body.cfm?id=255
                                                    Available from the website.

                                                    This resource for parents and health professionals provides oral health information specific to children with autism. Topics include facts about oral health in children and tips for preventing dental caries in early childhood. The resource addresses checking teeth for spots, introducing new textures, visiting the dentist, and oral sensitivities and toothbrushing. Information on finding a dentist, scheduling an in-home dental visit, and parent-to-parent support are included. The content is available in brochure or flyer formats, in both English and Spanish.

                                                    Keywords: Oral health, Dental care, Dental hygiene, Children with special health care needs, Autism, Spanish language materials

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                                                    Children's Hospital and Health Center, Anderson Center for Dental Care. [2005] (ca.). Healthy smiles for children with Down syndrome. [San Diego, CA]: Children's Hospital and Health Center, Anderson Center for Dental Care, 2 pp.

                                                    Children's Hospital and Health Center, Anderson Center for Dental Care
                                                    3020 Children's Way
                                                    San Diego, CA 92123

                                                    Telephone: (858) 576-1700
                                                    Secondary Telephone: (800) 788-9029
                                                    E-mail: refsvc@chsd.org
                                                    Website: http://www.chsd.org/body.cfm?id=255
                                                    Available from the website.

                                                    This resource for parents and health professionals provides oral health information specific to children with Down syndrome. Topics include oral characteristics of children with Down syndrome, oral sensitivities, and challenges and recommendations. The resource provides tips on preventing dental caries in early childhood, including tips on toothbrushing, eating healthy snacks, and visiting the dentist. Information on finding a dentist and scheduling an in-home dental visit is included, along with a list of resources. The content is available in brochure or flyer formats, in both English and Spanish.

                                                    Keywords: Oral health, Dental care, Dental hygiene, Children with special health care needs, Down syndrome, Spanish language materials, children

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                                                    American Academy of Pediatric Dentistry. 1998. Healthy smiles for children with special needs. Chicago, IL: Teletech Video, 1 videotape (12:02 minutes, VHS 1/2 inch).

                                                    American Academy of Pediatric Dentistry
                                                    211 East Chicago Avenue, Suite 1700
                                                    Chicago, IL 60611-2637

                                                    Telephone: (312) 337-2169
                                                    Fax: (312) 337-6329
                                                    Website: http://www.aapd.org
                                                    $10.00 (members and nonmembers).

                                                    This videotape describes devices and techniques that can assist parents in helping their children with special health care needs (CSHCN) establish an oral health care routine. Topics addressed include the basics of orall health care, the best age for a child's first dental visit, dental sealants, and oral sensitivity. The videotape also features interviews with three parents of CSHCN. It was developed in collaboration with several parents, communities, and dental organizations.

                                                      Keywords: Oral health, Training, Children with special health care needs, Dental hygiene, Dental care, Audiovisual materials, Videotapes, Parent education

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                                                      AIDS Education and Training Centers National Resource Center. 2005. HIV oral health curriculum for nursing professionals. Newark, NJ: AIDS Education and Training Centers National Resource Center, 1 v.

                                                      AIDS Education and Training Centers National Resource Center
                                                      University of Medicine and Dentistry of New Jersey, School of Nursing Francois-Xavier Bagnoud Center 30 Bergen Street, Eighth Floor
                                                      Newark, NJ 07107

                                                      Telephone: (973) 972-6587
                                                      Fax: (973) 972-0399
                                                      E-mail: info@aidsetc.org
                                                      Website: http://www.aidsetc.org
                                                      Available from the website.

                                                      This curriculum for nursing professionals comprises four modules on oral health and HIV infection. The modules address oral health manifestations in all clients and managing clients with HIV infection, performing an oral health history and examination, treating pain, eliminating sources of infection, identifying and diagnosing pathology, facilitating maintenance of adequate nutrition, HIV-associated oral health emergencies, and oral health maintenance and client education.

                                                      Keywords: Oral health, Nurses, Nursing, HIV, AIDS, Emergencies, Curricula, Resources for professionals, Training materials, Nursing education, Distance education, Adults

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                                                      Tanner K, ed. 2001. Homelessness and oral health. Opening Doors 9(1): 1-8, 8 pp.

                                                      National Maternal and Child Oral Health Resource Center
                                                      Georgetown University Box 571272
                                                      Washington, DC 20057-1272

                                                      Telephone: (202) 784-9771
                                                      Fax: (202) 784-9777
                                                      E-mail: OHRCinfo@georgetown.edu
                                                      Website: http://www.mchoralhealth.org
                                                      Single photocopies available at no charge.

                                                      This issue of the Opening Doors newsletter presents information about national, state, and local efforts to address the oral health needs of children and adults who are homeless. Topics include facts about child and adult oral health (including statistics on children and adults who are homeless), the U.S. Department of Health and Human Services' Oral Health Initiative, and the role of the Health Resources and Services Administration's Bureau of Primary Health Care. Examples of successful oral health programs in Phoenix, San Diego, and Boston using community partnerships and clinical collaboration as models of care are discussed. A list of oral health care resources, Web sites, and networks are also provided.

                                                        Keywords: Oral health, Homeless persons, Access to health care, Models, Collaboration, Public private partnerships

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                                                        IFLOSS Coalition. 2007. [Illinois] CSHCN oral health final report. [Springfield, IL]: IFLOSS Coalition, 18 pp.

                                                        National Maternal and Child Oral Health Resource Center
                                                        Georgetown University Box 571272
                                                        Washington, DC 20057-1272

                                                        Telephone: (202) 784-9771
                                                        Fax: (202) 784-9777
                                                        E-mail: OHRCinfo@georgetown.edu
                                                        Website: http://www.mchoralhealth.org
                                                        Available from the website.

                                                        This report describes a brief history of measures since 2002 for preventing oral health disease in special populations including the underinsured, minority groups, and children with special health care needs in Illinois. Report contents include information on the statewide steering committee, a list of staff members, recommendations specifically for the special needs population, and elements of a follow-up forum. A budget chart is provided, along with barriers to implementing the action plan and goals for removing barriers. Attachments include the meeting agenda, an evaluation, flyers, a list of questions for town hall meetings, a participant list, and a list of summit registrants. A companion document, Oral Health Care in Illinois: Comprehensive Care for Children and Families, is available. [Funded in part by the Maternal and Child Health Bureau]

                                                        Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Illinois

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                                                        Snyder A. 2009. Increasing access to dental care in Medicaid: Targeted programs for four populations. Portland, ME: National Academy for State Health Policy, 34 pp.

                                                        National Academy for State Health Policy
                                                        10 Free Street, Second Floor
                                                        Portland, ME 04101

                                                        Telephone: (207) 874-6524
                                                        Secondary Telephone: (202) 903-0101
                                                        Fax: (207) 874-6527
                                                        E-mail: info@nashp.org
                                                        Website: http://www.nashp.org
                                                        Available from the website.

                                                        This policy brief describes strategies that several states have used to address the oral health needs of Medicaid beneficiaries, including young children, pregnant women, people with developmental disabilities, and people living in rural areas. The brief also examines ways that California’s state agencies (including Denti-Cal, the state’s Medicaid dental program), dental associations, and universities have explored these issues, and additional steps the state might take to build on its efforts.

                                                        Keywords: Oral health, Access to health care, Young children, Pregnant women, Special health care services, Rural population, California, North Carolina, Rhode Island, Oregon, New Mexico, Pennsylvania, Wisconsin, Case studies, State initiatives, Provider participation

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                                                        Cleft Palate Foundation. [1996] (ca.). Information on dental care of a child with cleft lip and palate. Chapel Hill, NC: Cleft Palate Foundation, 2 pp.

                                                        Cleft Palate Foundation
                                                        1504 East Franklin Street, Suite 102
                                                        Chapel Hill, NC 27514-2820

                                                        Telephone: (800) 242-5338
                                                        Secondary Telephone: (919) 933-9044
                                                        Fax: (919) 933-9604
                                                        E-mail: info@cleftline.org
                                                        Website: http://www.cleftline.org
                                                        Available at no charge.

                                                        This fact sheet provides information about oral health care for children with a cleft lip or cleft palate. Information is presented on dental anomalies, which frequently accompany cleft lip and palate. The fact sheet gives an overview of proper cleaning and dental, orthodontic, and prosthodontic care. A glossary is included.

                                                          Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Oral health, Dental hygiene, Orthodontics, Prosthodontics, Educational materials, Children

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                                                          Iowa Department of Public Health. 2012. Iowa's TOHSS project final progress report. Des Moines, IA: Iowa Department of Public Health, [Bureau of Oral and Health Delivery Systems], 17 pp, plus appendices.

                                                          National Maternal and Child Oral Health Resource Center
                                                          Georgetown University Box 571272
                                                          Washington, DC 20057-1272

                                                          Telephone: (202) 784-9771
                                                          Fax: (202) 784-9777
                                                          E-mail: OHRCinfo@georgetown.edu
                                                          Website: http://www.mchoralhealth.org
                                                          Available from the website.

                                                          This report describes the Iowa I-Smile program and its goals: (1) promoting the dental home initiative to ensure statewide recognition and understanding of the importance of early and regular oral health care and (2) creating an ongoing surveillance system to track the oral health status of infants and children from birth through age 5 and the program's impact. Topics include the medical/dental interface, access to care for children with special health care needs, improving oral health care financing, expanding comprehensive services statewide, increasing collaboration, and sustainable efforts. [Funded by the Maternal and Child Health Bureau]

                                                          Keywords: Oral health, Young children, Access to health care, Children with special health care needs, Health care financing, State initiatives, Iowa, Final reports

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                                                          Kansas Bureau of Oral Health. 2012. Kansas TOHSS final report. Topeka, KS: Kansas Department of Health and Environment, Bureau of Oral Health, 8 pp.

                                                          National Maternal and Child Oral Health Resource Center
                                                          Georgetown University Box 571272
                                                          Washington, DC 20057-1272

                                                          Telephone: (202) 784-9771
                                                          Fax: (202) 784-9777
                                                          E-mail: OHRCinfo@georgetown.edu
                                                          Website: http://www.mchoralhealth.org
                                                          Available from the website.

                                                          This final report describe a 4-year project in Kansas dedicated to improving the oral health of children with special health care needs (CSHCN). Topics include collaboration among oral health professionals and networks for CSHCN, education, professional training, preventive services, and the creation of a referral hub for restorative treatment. Contents include a description of goals and objectives and a summary of materials developed for the project. [Funded by the Maternal and Child Health Bureau]

                                                          Keywords: Oral health, Young children, Children with special health care needs, Collaboration, State initiatives, Kansas, Final reports

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                                                          Manter M. [2009]. [Kansas] Follow-up activities to CSHCN state/territorial oral health forums: Final report. [Topeka, KS: Oral Health Kansas], 2 pp.

                                                          Association of State and Territorial Dental Directors
                                                          3858 Cashill Boulevard
                                                          Reno, NV 89509

                                                          Telephone: (775) 626-5008
                                                          Fax: (775) 626-9268
                                                          E-mail: info@astdd.org
                                                          Website: http://www.astdd.org
                                                          Available from the website.

                                                          This report describes activities proposed and accomplished following the 2008 oral health forum on children with special health care needs in Kansas. It also lists partners in the work and immediate outcomes, and provides budget information. [Funded by the Maternal and Child Health Bureau]

                                                          Keywords: Oral health, Children with special health care needs, Meetings, Kansas, State initiatives, Final reports, Children, Families

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                                                          D.E.A.F., Inc. 2009. Let's communicate about dental health!: Healthy teeth and gums. Allston, MA: D.E.A.F., Inc., 8 pp.

                                                          Massachusetts Department of Public Health, Division of Primary Care and Health Access, Office of Oral Health
                                                          250 Washington Street Boston, MA 02108

                                                          Telephone: (617) 624-6060
                                                          Secondary Telephone: (617) 624-5992
                                                          Fax: (617) 624-6062
                                                          Website: http://www.mass.gov/dph/oralhealth
                                                          Available from the website.

                                                          This document was created for individuals with hearing loss and provides information on the importance of oral health, preventing and treating tooth decay and gum disease, and communicating with the dentist. Topics include toothbrushing and flossing, routine and deep cleaning, amalgam and composite fillings, root canal, replacing missing teeth, and scaling and root planing. The document concludes with a list of questions to answer and bring to the dentist.

                                                          Keywords: Oral health, Adults, Hearing loss, Dental hygiene, Dental care, Health promotion, Patient education materials, Communication

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                                                          American Diabetes Association. [2011]. Living with diabetes: Oral health and hygiene. Alexandria, VA: American Diabetes Association.

                                                          American Diabetes Association
                                                          ATTN: Center for Information 1701 North Beauregard Street
                                                          Alexandria, VA 22311

                                                          Telephone: (800) 342-2383
                                                          Fax:
                                                          E-mail: AskADA@diabetes.org
                                                          Website: http://www.diabetes.org
                                                          Available from the website.

                                                          This resource provides information on oral health and oral hygiene for individuals with diabetes. Topics include the prevalence of gum disease among those with diabetes, plaque, and toothbrushing and flossing. Frequently asked questions and an oral health care quiz are also available from the website.

                                                          Keywords: Oral heath, Dental hygiene, Diabetes, Health promotion, Educational materials, Adults

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                                                          Special Olympics, Healthy Athletes, Special Smiles. 2004. Local clinical director's handbook (rev. ed.). [Washington, DC]: Special Olympics, Healthy Athletes, Special Smiles, 49 pp.

                                                          Special Olympics, Healthy Athletes, Special Smiles
                                                          1133 19th Street, N.W.
                                                          Washington, DC 20036

                                                          Telephone: (202) 628-3630
                                                          Secondary Telephone: (800) 700-8585
                                                          Fax: (202) 824-0200
                                                          E-mail: spolk@specialolympics.org
                                                          Website: http://resources.specialolympics.org/Topics/Healthy_Athletes/Disciplines/Special_Smiles.aspx
                                                          Available from the website.

                                                          This booklet provides information for volunteers about implementing Special Olympics, Healthy Athletes, Special Smiles' oral health screening events. Topics include volunteer recruitment and responsibilities, research data collection, fundraising, supply management, and publicity. The appendix includes contact information and master forms and handouts.

                                                          Keywords: Oral health, Screening, Children with special health care needs, Adolescents with special health care needs, Resources for professionals, Training materials, Special health care services, children, Adolescents

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                                                          [Association of State and Territorial Dental Directors]. 2004. Louisiana's oral health summit: Summary of the proceedings—Another bite of the apple. [Jefferson City, MO: Association of State and Territorial Dental Directors], 8 pp.

                                                          National Maternal and Child Oral Health Resource Center
                                                          Georgetown University Box 571272
                                                          Washington, DC 20057-1272

                                                          Telephone: (202) 784-9771
                                                          Fax: (202) 784-9777
                                                          E-mail: OHRCinfo@georgetown.edu
                                                          Website: http://www.mchoralhealth.org
                                                          Available from the website.

                                                          This brief report summarizes the second oral health summit held on December 3, 2004, in Baton Rouge, Louisiana. Brief overviews of the sessions are included, along with a summary of responses to the summit evaluation. Results of facilitated group discussions on the following topics are provided: (1) ways to increase the number of dentists providing services to Medicaid patients, (2) ways to increase access to services for special needs populations, and (3) challenges in providing oral health care in rural areas. The summary concludes with a "wish list" of other ideas presented during group discussions. [Funded in part by the Maternal and Child Health Bureau]

                                                          Keywords: Oral health, Access to health care, Medicaid, Low income groups, Children with special health care needs, Rural health, Conferences, Louisiana, Children

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                                                          Maryland Department of Health and Mental Hygiene, Office of Oral Health. 2011. Maryland oral health resource guide. Baltimore, MD: Maryland Department of Health and Mental Hygiene, Office of Oral Health, 30 pp.

                                                          Maryland Department of Health and Mental Hygiene, Office of Oral Health
                                                          201 West Preston Street, Third Floor
                                                          Baltimore, MD 21201

                                                          Telephone: (410) 767-5300
                                                          Secondary Telephone: (877) 463-3464
                                                          Fax: (410) 333-7392
                                                          E-mail: dhmh.oralhealth@maryland.gov
                                                          Website: http://fha.dhmh.maryland.gov/oralhealth/SitePages/Home.aspx
                                                          Available from the website.

                                                          This guide is intended to help individuals find affordable and appropriate oral health care services in Maryland and the immediate surrounding regions. The guide contains information on programs or public facilities that provide discounted, low-cost, or special oral health services, organized by county or jurisdiction. Information is included on services for individuals and families living with HIV and AIDS, those who are homebound, those who have special health care needs, and those enrolled in Maryland Medical Assistance.

                                                          Keywords: Oral health, Dental care, Dentists, Directories, Maryland, Special health care services, Health insurance, State programs, Children, Pregnant women, Adults

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                                                          [Bethel LA]. 2007. [Massachusetts] state/territorial oral health forums for children with special health care needs leading to an action plan. [Boston, MA]: Massachusetts Department of Public Health, Office of Oral Health, 4 pp.

                                                          National Maternal and Child Oral Health Resource Center
                                                          Georgetown University Box 571272
                                                          Washington, DC 20057-1272

                                                          Telephone: (202) 784-9771
                                                          Fax: (202) 784-9777
                                                          E-mail: OHRCinfo@georgetown.edu
                                                          Website: http://www.mchoralhealth.org
                                                          Available from the website.

                                                          This report summarizes the planning activities and forums held on September 28 and 29, 2006, in two locations in Massachusetts to address oral health care issues for children with special health care needs. Report contents include a description of the purpose of the forum, an outline of the planning process, a short description of pre-forum activities, a list of attendees, forum evaluations, a discussion of the development of the oral health action plan, and a discussion of potential barriers to the implementation of the oral health plan and additional resources needed. A chart outlining expenditures is also included. A companion document, 2007-2009 Massachusetts Children with Special Health Care Needs Oral Health Action Plan, is also available. [Funded in part by the Maternal and Child Health Bureau]

                                                          Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Massachusetts

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                                                          Grason H, Connallon JL, Ireys HT. [2000] . Measurements of quality of care for children with special health care needs. Baltimore, MD: National Policy Center for Children with Special Health Care Needs, 7 items.

                                                          Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center
                                                          615 North Wolfe Street, Room E4143
                                                          Baltimore, MD 21205

                                                          Telephone: (410) 502-5450
                                                          Fax: (410) 502-5831
                                                          E-mail: lzerbe@jhsph.edu
                                                          Website: http://www.jhsph.edu/wchpc
                                                          Available at no charge.

                                                          This packet is a set of reference tools that identify and describe performance measurement systems and their applicability to children with special health care needs (CSHCN). It includes an overview of the problems with defining the CSHCN population; a chart of specific measurements pertaining to CSHCN listed by domains of quality such as care coordination, access, and family-centered care; an overview of some of the key quality measurement sets with comments on their relevance for CSHCN; and contact information. [Funded by the Maternal and Child Health Bureau]

                                                            Keywords: Children with special health care needs, Quality assurance, Qualitative evaluation, Evaluation methods, Managed care

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                                                            Michigan Department of Community Health. 2011. Michigan targeted state maternal and child oral health service systems program narrative. Lansing, MI: Michigan Department of Community Health.

                                                            National Maternal and Child Oral Health Resource Center
                                                            Georgetown University Box 571272
                                                            Washington, DC 20057-1272

                                                            Telephone: (202) 784-9771
                                                            Fax: (202) 784-9777
                                                            E-mail: OHRCinfo@georgetown.edu
                                                            Website: http://www.mchoralhealth.org
                                                            Available from the website.

                                                            This final report describes a project in Michigan to develop a health-systems strategy to extend oral health services to families and children. Three main goals are addressed: (1) increase age 1 dental visits for children at greatest risk for disease, (2) improve access to oral health services for children with special health care needs, and (3) ensure restorative treatment of active disease through dental sealant programs. Contents include progress and program narrative sections, staffing, technical-assistance needs, descriptions of linkages, and programmatic requirements. [Funded by the Maternal and Child Health Bureau]

                                                            Keywords: Oral health, Access to health care, Young children, Children with special health care needs, Dental sealants, State initiatives, Michigan, Final reports

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                                                            Missouri Coalition for Oral Health. [2006]. Missouri action plan: Children with special health care needs. [Columbia, MO]: Missouri Coalition for Oral Health, 15 pp.

                                                            Association of State and Territorial Dental Directors
                                                            3858 Cashill Boulevard
                                                            Reno, NV 89509

                                                            Telephone: (775) 626-5008
                                                            Fax: (775) 626-9268
                                                            E-mail: info@astdd.org
                                                            Website: http://www.astdd.org
                                                            Available from the website.

                                                            This report describes a forum held in July 2006 to address the oral health services access needs of children with special health care needs in Missouri. Contents include a list of attendees, a summary of discussion, an action plan outline, forum follow-up additions to the CSHCN action plan, and budget information. A sample invitation and registration form are provided along with a chart outlining the forum planning process and a list of products developed during the project.

                                                            Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, Provider participation, Missouri, Children

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                                                            Missouri Elks Benevolent Trust. 1999. Missouri Elks Dental Care Program. Crestwood, MO: Missouri Elks Benevolent Trust, 3 items.

                                                            National Maternal and Child Oral Health Resource Center
                                                            Georgetown University Box 571272
                                                            Washington, DC 20057-1272

                                                            Telephone: (202) 784-9771
                                                            Fax: (202) 784-9777
                                                            E-mail: OHRCinfo@georgetown.edu
                                                            Website: http://www.mchoralhealth.org
                                                            Single photocopies available at no charge.

                                                            These materials include a fact sheet, a memorandum, and a brochure about the Missouri Elks Dental Care Program, which provides free oral health care to children with special health care needs and to adults and children with mental retardation or developmental delays. Oral health care is provided in mobile dental units that are rotated to different sites around the state throughout the year. The materials include explanations of program funding and services as well as a brief history of the program.

                                                              Keywords: Dental care, Oral health, Children with special health care needs, Adults, Mental retardation, Developmental disabilities, Mobile health units, Philanthropy, Private sector, Missouri

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                                                              Southern Association of Institutional Dentists. 2001. Modules [self study course]. [no place]: Southern Association of Institutional Dentists.

                                                              Special Care Advocates in Dentistry
                                                              Website: http://saiddent.org
                                                              Available from the website.

                                                              This set of 15 modules provides information to help oral health professionals care for individuals with developmental disabilities, mental retardation (MR), and mental illness. Each module contains a brief review of the purpose and learning objectives, an introduction, and references. Topics include reviews of MR and other conditions such as Down syndrome, cerebral palsy, maladaptive behaviors, genetic syndromes, and mental illness; the use of dental sedation, immobilization and positioning devices, and general anesthesia; clinical concerns in dental care; treatment planning for the severely disabled and the impact on prosthetic, restorative, and surgical services; the provision of services to disabled individuals residing in the community; administrative issues in the practice of dentistry in the MR or mental health (MH) institutional setting; and a review of research needs and opportunities in MH/MR facilities.

                                                              Keywords: Oral health, Dental care, Dentistry, Special health care needs, Mental retardation, Developmental disabilities, Down syndrome, Cerebral palsy, Patient care management, Resources for professionals, Training materials, Distance education

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                                                              South Carolina Department of Health and Environmental Control, Oral Health Division. [2006]. More Smiling Faces in Beautiful Places: [Final report]. [Columbia, SC]: South Carolina Department of Health and Environmental Control, Division of Oral Health, 10 pp.

                                                              South Carolina Department of Health and Environmental Control, Division of Oral Health
                                                              2600 Bull Street
                                                              Columbia, SC 29201

                                                              Telephone: (803) 898-3432
                                                              Website: http://www.scdhec.gov/index.htm
                                                              Available from the website.

                                                              This final report describes a South Carolina program to eliminate oral health disparities among minorities, children with special health care needs, and those economically disadvantaged who are uninsured or underinsured, focusing specifically on the needs of infants and children from birth to age 6 and children and adolescents with special health care needs. Contents include a description of measurable goals and indicators, the extent to which goals were achieved, challenges encountered, other sources of support, lessons learned, program impact, future plans for the program, and program perspectives and publications.

                                                              Keywords: Oral health, Access to health care, Health insurance, Children, Children with special health care needs, Adolescents with special health care needs, Uninsured persons, Low income groups, South Carolina, Final reports

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                                                              Fraser and Securian. 2007-. My healthy smile: Social scripts and tips for encouraging oral health. [Minneapolis, MN]: Fraser, 1 CD-ROM.

                                                              Fraser
                                                              2400 West 64th Street
                                                              Minneapolis, MN 55423

                                                              Telephone: (612) 861-1688
                                                              Fax: (612) 861-6050
                                                              E-mail: fraser@fraser.org
                                                              Website: http://www.fraser.org
                                                              $1.99.

                                                              This mobile application for oral health professionals, parents, and children with developmental ages of 3 to 10 years focuses on good oral health and how to make dental visits more comfortable. The CD-ROM contains 11 social scripts, 13 tip sheets for parents, and two tip sheets for professionals. The application contains 11 audio and visual social scripts in a mobile format. Topics include providing care to children with autism spectrum disorders or developmental disabilities, the impact of oral sensory processing on oral health care practice, having teeth cleaned, getting X-rays, getting fillings, losing a tooth, toothbrushing, and healthy eating.

                                                              Keywords: Oral health, Dental care, Children with special health care needs, Resources for professionals, Materials for children, Anticipatory guidance, Dental anxiety, Multimedia, Mobile applications

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                                                              National Institute of Dental and Craniofacial Research. 2012. NIDCR special care database. Bethesda, MD: National Institute of Dental and Craniofacial Research.

                                                              National Institute of Dental and Craniofacial Research
                                                              National Institutes of Health Bethesda, MD 20892

                                                              Telephone: (866) 232-4261
                                                              Fax: (301) 480-4098
                                                              E-mail: nidcrinfo@mail.nih.gov
                                                              Website: http://www.nidcr.nih.gov
                                                              Available from the website.

                                                              This database contains citations for materials that focus on care for individuals with genetic or systemic disorders that affect oral health, whose medical treatments cause oral problems, or whose intellectual or physical disabilities complicate oral hygiene or dental treatment. Materials include journal articles, fact sheets, brochures, audiovisuals, and other educational materials for consumers and health professionals.

                                                              Keywords: Oral health, Databases, Children with special health care needs, Children

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                                                              National Maternal and Child Oral Health Policy Center and Association of State and Territorial Dental Directors. 2011. Opportunities in health care reform: Addressing the oral health of children with special health care needs. Washington, DC: National Maternal and Child Oral Health Policy Center, 5 pp.

                                                              National Maternal and Child Oral Health Policy Center
                                                              Children's Dental Health Project 1020 19th Street, N.W., Suite 400
                                                              Washington, DC 20036

                                                              Telephone: (202) 833-8288
                                                              E-mail: cdhpinfo@cdhp.org
                                                              Website: http://nmcohpc.net
                                                              Available from the website.

                                                              This brief examines provisions in the Affordable Care Act and state policy options to address the oral health of children with special health care needs. Topics include barriers to oral health care, coverage and benefits, and new and additional points of access. [Funded by the Maternal and Child Health Bureau]

                                                              Keywords: Oral health, Children with special health care needs, Legislation, Access to health care, Barriers, Health insurance, Public policy, Children, Health care reform

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                                                              [Manter M]. 2007. Optimum oral health for children with special health care needs: Oral Health Kansas and Partners. [Shawnee, KS]: Oral Health Kansas and Kansas Head Start Association, 12 pp.

                                                              National Maternal and Child Oral Health Resource Center
                                                              Georgetown University Box 571272
                                                              Washington, DC 20057-1272

                                                              Telephone: (202) 784-9771
                                                              Fax: (202) 784-9777
                                                              E-mail: OHRCinfo@georgetown.edu
                                                              Website: http://www.mchoralhealth.org
                                                              Available from the website.

                                                              This report provides a brief history of oral health initiatives in Kansas since 2000 to improve oral health among children with special health care needs (CSHCN). Also included is a list of findings from national and state assessments from two CSHCN planning sessions, a summary of how to achieve optimal oral health for CSHCN written by Oral Health Kansas and Partners Long-Term Plan, the Oral Health Kansas CSHCN action plan for 2007, and the budget. [Funded in part by the Maternal and Child Health Bureau]

                                                              Keywords: Oral health, Children with special health care needs, Access to health care, State initiatives, Conferences, Strategic plans, Kansas, Children, Families,

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                                                              National Institute of Dental and Craniofacial Research. 2008. Oral complications of systemic diseases. Bethesda, MD: National Institute of Dental and Craniofacial Research, multiple items.

                                                              National Institute of Dental and Craniofacial Research
                                                              National Institutes of Health Bethesda, MD 20892

                                                              Telephone: (866) 232-4261
                                                              Fax: (301) 480-4098
                                                              E-mail: nidcrinfo@mail.nih.gov
                                                              Website: http://www.nidcr.nih.gov
                                                              Available from the website.

                                                              These resources for health professionals and consumers include information about managing and preventing oral complications of cancer treatment, developmental disabilities, diabetes mellitus, heart disease, and HIV and AIDS. The resources include publications in English and Spanish, news releases, articles, reports from meetings, and information about clinical trials. Information from other government agencies and additional resources are provided.

                                                              Keywords: Oral health, Cancer, Developmental disabilities, Diabetes mellitus, Heart diseases, AIDS, HIV, Treatment outcomes, Patient care management, Educational materials, Spanish language materials, Adults

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                                                              Isman B, Newton RN. 2013. Oral conditions in children with special needs: A guide for health care providers. [Los Angeles, CA]: California Connections Project, 2 pp.

                                                              National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse
                                                              National Institutes of Health
                                                              Bethesda, MD 20892-2190

                                                              Telephone: (301) 402-7364
                                                              Secondary Telephone: (866) 232-4528
                                                              Fax: (301) 480-4098
                                                              E-mail: nidcrinfo@mail.nih.gov
                                                              Website: http://www.nidcr.nih.gov
                                                              Available at no charge (limit 50 copies); also available from the website. Document Number: OP-70.

                                                              This guide describes oral conditions, including abnormalities in oral development, oral trauma, bruxism, oral infections, and gingival overgrowth, that can occur in children with special health care needs. The guide provides definitions for various conditions and infections, describes treatment methods, and discusses when to refer to an oral health professional. Photographs and a short reading list are included. [Funded by the Maternal and Child Health Bureau]

                                                              Keywords: Oral health, Children with special health care needs, Dental caries, Malocclusions, Infections, Periodontal diseases, Children

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                                                              Isman B, Newton RN. 1998. Oral development and oral conditions in young children with special health care needs: A guide for medical professionals. [Los Angeles, CA]: California Connections, 2 pp.

                                                              National Maternal and Child Oral Health Resource Center
                                                              Georgetown University Box 571272
                                                              Washington, DC 20057-1272

                                                              Telephone: (202) 784-9771
                                                              Fax: (202) 784-9777
                                                              E-mail: OHRCinfo@georgetown.edu
                                                              Website: http://www.mchoralhealth.org
                                                              Available for loan.

                                                              This guide describes and illustrates 11 types of oral development and oral conditions in young children with special health care needs. They are tooth eruption, malocclusions, tooth anomalies, developmental defects, fungal infections, viral infections, gingival infections, dental caries, oral trauma and abrasion, bruxism, and gingival overgrowth from medications. With each section, there is a recommendation to medical professionals for counseling of parents, referral, or treatment. [Funded by the Maternal and Child Health Bureau]

                                                                Keywords: Children with special health care needs, Oral health, Child development, Teething, Congenital abnormalities, Fungal infections, Virus diseases, Gingivitis, Dental caries, Bruxism, Malocclusion, Tooth abnormalities, Trauma, Gingival overgrowth, Therapeutics, Referrals

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                                                                U.S. Department of Health and Human Services, Public Health Service, Region VIII and X. 1992. Oral Health Advocacy for Indigent Women and Children, and for Children with Special Health Care Needs. Denver, CO: U.S. Department of Health and Human Services, Region VIII and X, ca 150 pp.

                                                                National Maternal and Child Oral Health Resource Center
                                                                Georgetown University Box 571272
                                                                Washington, DC 20057-1272

                                                                Telephone: (202) 784-9771
                                                                Fax: (202) 784-9777
                                                                E-mail: OHRCinfo@georgetown.edu
                                                                Website: http://www.mchoralhealth.org
                                                                Available for loan.

                                                                The proceedings of this workshop on oral health advocacy for special populations feature sections on background issues, Medicaid, a report on model programs, and a brief section on advocacy. The section on Medicaid includes a background paper by the Office of Technology Assessment on children's oral health services under the Medicaid program and a presentation by the American Dental Association's Council on Dental Care Programs. Also included are a memorandum summarizing the participants' evaluations, a section on state follow-up programs, and a directory of participants.

                                                                  Keywords: Oral health, Policy development, Access to health care, Advocacy, Conference proceedings, Medicaid, Model programs

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                                                                  Alaska Department of Health and Social Services, Women's, Children's, and Family Health Section. 2005. Oral health among children with special health care needs in Alaska. [Anchorage, AK]: Alaska Department of Health and Social Services, Women's, Children's, and Family Health Section, 3 pp, (Title V needs assessment: special series fact sheet; v. 4, no. 2).

                                                                  Alaska Department of Health and Social Services, Section of Women's, Children's, and Family Health
                                                                  3601 C Street, Suite 322
                                                                  Anchorage, AK 99503-5923

                                                                  Telephone: (907) 269-3400
                                                                  Secondary Telephone: (800) 799-7570
                                                                  Fax: (907) 269-3465
                                                                  Website: http://dhss.alaska.gov/dph/wcfh/Pages/default.aspx
                                                                  Available from the website.

                                                                  This fact sheet outlines the oral-health and oral health-related service needs of children and adolescents with special health care needs in Alaska, a chosen priority issue for the Title V Block Grant needs-assessment reporting requirement. Topics include prevalence of tooth decay among children with special health care needs in Alaska and nationwide, interventions and recommendations, and capacity. [Funded by the Maternal and Child Health Bureau]

                                                                  Keywords: Oral health, Children with special health care needs, Adolescents, Access to health care, Needs assessment, Dental hygiene, Intervention, Alaska, State surveys

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                                                                  Wisconsin Department of Health Services, Oral Health Program. 2010. Oral health and diabetes: Diabetes can lead to changes in the oral cavity. Madison, WI: Wisconsin Department of Health Services, Oral Health Program, 2 pp, (Oral health in Wisconsin: A fact sheet).

                                                                  Wisconsin Department of Health Services, Oral Health Program
                                                                  Department of Health Services 1 West Wilson Street
                                                                  Madison, WI 53703

                                                                  Telephone: (608) 266-1685
                                                                  Secondary Telephone: (888) 701-1251
                                                                  Fax: (608) 266-8925
                                                                  Website: http://dhs.wisconsin.gov/health/Oral_Health
                                                                  Available from the website.

                                                                  This fact sheet discusses diabetes as a public health issue and describes the relationship between diabetes and oral health. The fact sheet also includes information about resources and activities, as well as data on dental visits and tooth loss among adults with diabetes in Wisconsin. [Funded by the Maternal and Child Health Bureau]

                                                                  Keywords: Oral health, Adults, Diabetes, Disease prevention, Statistics, State programs, Wisconsin

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                                                                  Plaza EA. 2013. Oral health care for children with special health care needs: A guide for family members/caregivers and dental providers. Oklahoma City, OK: Oklahoma State Department of Health, 22 pp.

                                                                  Oklahoma Association of Community Action Agencies
                                                                  2800 NW 36th, Suite 221
                                                                  Oklahoma City, OK 73112

                                                                  Telephone: (405) 949-1495
                                                                  Fax: (405) 949-0955
                                                                  E-mail: OKACAA@yahoo.com
                                                                  Website: http://www.okacaa.org
                                                                  Available from the website.

                                                                  This document for families and oral health professionals provides information and resources on oral health and oral health care for children with special health care needs. Topics include planning for the first dental visit and strategies for daily oral health care. Information on oral health and autism, cerebral palsy, Down syndrome, and other conditions is included. A checklist for going to the dentist and a list of national and state-specific resources is also provided.

                                                                  Keywords: Oral health, Children, Special health care needs, Chronic illnesses and disabilities, Oklahoma

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                                                                  District of Columbia Department of Health. 2008. Oral health care for children with special health care needs: Action plan. Washington, DC: District of Columbia Department of Health, 24 pp.

                                                                  District of Columbia Department of Health
                                                                  899 North Capitol Street, N.E.
                                                                  Washington, DC 20002

                                                                  Telephone: (202) 442-5955
                                                                  Fax: (202) 442-4795
                                                                  E-mail: doh@dc.gov
                                                                  Website: http://doh.dc.gov/
                                                                  Available from the website.

                                                                  This action plan describes activities to be conducted as follow-up to a forum held on May 22, 2007, in Washington, DC. The plan discusses the forum goals to (1) identify strategies for increasing access and improving the oral health system of care for children with special health care needs (CSHCN) and (2) address barriers to oral health care for CSHCN. Contents also include an overview of the forum planning process and evaluation. Tables present short- and long-term goals, timelines, and partners for activities designed to address barriers in the following areas: education, finance and reimbursement, work force development, accessibility and care coordination, and information management and care coordination. [Funded by the Maternal and Child Health Bureau]

                                                                  Keywords: Oral health, Children with special health care needs, Barriers, Health promotion, Reimbursement, Service coordination, Work force, Meetings, District of Columbia, Children

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                                                                  Fenton SJ, Perlman S, Turner H, eds. 2003. Oral health care for people with special needs: Guidelines for comprehensive care. Boston, MA: Exceptional Parent, 46 pp.

                                                                  Exceptional Parent
                                                                  Exceptional Parent Library 416 Main Street
                                                                  Johnstown, PA 15901

                                                                  Telephone: (800) 372-7368, x110
                                                                  E-mail: EPLibrary@eparent.com
                                                                  Website: http://www.eparent.com
                                                                  $6.95, includes shipping and handling. Order online at http://www.eplibrary.com/specialreports.

                                                                  This publication for health professionals comprises articles on oral health care for individuals with special health care needs. Articles discuss the oral health care needs of children with mental retardation or other developmental disabilities and the lack of importance placed on their oral health care. Additional articles provide information on behavior-management techniques, diagnostic and treatment considerations, and professional challenges and responsibilities.

                                                                    Keywords: Oral health, Dental care, Health care delivery, Children with special health care needs, Mental retardation, Developmental disabilities, Behavior, Special health care services

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                                                                    Burtner P. 2004. Oral health care for persons with disabilities: An online continuing education course. Gainesville, FL: University of Florida College of Dentistry, Department of Pediatric Dentistry.

                                                                    University of Florida College of Dentistry, Department of Pediatric Dentistry
                                                                    P.O. Box 100405
                                                                    Gainesville, FL 32610-0434

                                                                    Telephone: (352) 273-5800
                                                                    Fax: (352) 382-3070
                                                                    E-mail: randerson@dental.ufl.edu
                                                                    Website: http://www.dental.ufl.edu/Offices/Pediatric/
                                                                    Available from the website.

                                                                    This continuing education course for oral health professionals presents information on issues associated with providing oral health care to individuals with disabilities. Topics include demographic and social status, barriers to accessing oral health care, oral health considerations with major disabling conditions, and practical clinical information that will assist general dentists in safely providing appropriate oral health care to individuals with disabilities. Modules cover definitions, physical disorders, mental disorders, traumatic injuries, substance abuse, general management issues, and providing specific treatment. The course also includes an overview of the educational goals and course content as well as a glossary and links.

                                                                    Keywords: Oral health, Dental care, Dentistry, Special health care needs, Patient care, Disabilities, Resources for professionals, Professional education, Continuing education, Distance education

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                                                                    IFLOSS Coalition. 2007. Oral health care in Illinois: Comprehensive care for children and families [Action plan for CSHCN]: The Illinois Oral Health Plan II. [Springfield, IL]: IFLOSS Coalition, 21 pp.

                                                                    National Maternal and Child Oral Health Resource Center
                                                                    Georgetown University Box 571272
                                                                    Washington, DC 20057-1272

                                                                    Telephone: (202) 784-9771
                                                                    Fax: (202) 784-9777
                                                                    E-mail: OHRCinfo@georgetown.edu
                                                                    Website: http://www.mchoralhealth.org
                                                                    Available from the website.

                                                                    This document presents a revised plan for improved oral health for children with special health care needs in Illinois based on the results of a statewide steering committee meeting and town hall meetings held in the summer of 2006. The document outlines five oral health policy goals; lists priorities, recommendations, and strategies for achieving the goals; and briefly describes outcomes from the first oral health plan. A companion document, Illinois CSHCN Oral Health Final Report, is available. [Funded in part by the Maternal and Child Health Bureau]

                                                                    Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Illinois

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                                                                    Virginia Department of Health, Division of Dental Health. 2009. Oral health care tips for: Children with special health care needs (CSHCN). Richmond, VA: Virginia Department of Health, Division of Dental Health, 2 pp.

                                                                    Virginia Department of Health, Division of Dental Health
                                                                    109 Governor Street, Eighth Floor
                                                                    Richmond, VA 23219

                                                                    Telephone: (804) 864-7775
                                                                    Fax: (804) 864-7783
                                                                    Website: http://www.vdh.virginia.gov/ofhs/childandfamily/dental
                                                                    Available from the website.

                                                                    This fact sheet for parents provides oral health care strategies for infants and young children with special health care needs. Topics include oral hygiene, positioning and adaptations, use of fluoride, visiting the dentist, and feeding and diet. [Funded by the Maternal and Child Health Bureau]

                                                                    Keywords: Oral health, Dental hygiene, Children with special health care needs, Virginia, Educational materials, Children

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                                                                    Holt K, Barzel R, Bertness J. 2014. Oral health for children and adolescents with special health care needs: Challenges and opportunities (2nd ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 6 pp.

                                                                    National Maternal and Child Oral Health Resource Center
                                                                    Georgetown University Box 571272
                                                                    Washington, DC 20057-1272

                                                                    Telephone: (202) 784-9771
                                                                    Fax: (202) 784-9777
                                                                    E-mail: OHRCinfo@georgetown.edu
                                                                    Website: http://www.mchoralhealth.org
                                                                    Available at no charge; also available from the web site. Document Number: OHRC Doc. Code MCH00444.

                                                                    This fact sheet focuses on the challenges and opportunities of providing oral health care services to children with special health care needs. Topics include factors that contribute to oral health problems, unmet oral health care needs, barriers to oral health care, care coordination, work force development, and federal and national programs. [Funded by the Maternal and Child Health Bureau]

                                                                    Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Access to health care, Dental care, Barriers, Health care financing

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                                                                    Zamani AR. [2007]. Oral health for children with disabilities and special needs. Berkeley, CA: California Childcare Health Program, 2 pp, (Health and safety notes).

                                                                    University of California, San Francisco School of Nursing, California Childcare Health Program
                                                                    San Francisco, CA 94143

                                                                    Telephone: (415) 476-4695
                                                                    Website: http://www.ucsfchildcarehealth.org
                                                                    Available from the website.

                                                                    This brief offers information about oral health care for children with disabilities or chronic physical, developmental, behavioral, or emotional conditions who require help beyond that required by children generally. The brief discusses the importance of proper oral hygiene for those born with oral conditions, who have difficulty brushing and flossing, who have reduced saliva flow, or who have restricted diets.

                                                                    Keywords: Oral health, Children with special health care needs, Dental hygiene, Children

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                                                                    Altarum Institute. 2008. Oral health for children with special health care needs: Priorities for action [participant folder]. Washington, DC: Altarum Institute, ca 60 pp.

                                                                    National Maternal and Child Oral Health Resource Center
                                                                    Georgetown University Box 571272
                                                                    Washington, DC 20057-1272

                                                                    Telephone: (202) 784-9771
                                                                    Fax: (202) 784-9777
                                                                    E-mail: OHRCinfo@georgetown.edu
                                                                    Website: http://www.mchoralhealth.org
                                                                    Single photocopies available at no charge.

                                                                    This participant folder contains materials from an expert meeting held on April 14-15, 2008, in Washington, DC, to identify and address oral health priorities for children with special health care needs. Priority areas include medical home/dental home interface, training and education, and finance. Folder contents include priorities, objectives, and sample strategies for action; speaker PowerPoint slides; and a guide for workgroup sessions. [Funded by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Children with special health care needs, Community action, Federal initiatives, Strategic plans, Meetings

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                                                                      Silva S, Zimmerman B, Holt K. 2009. Oral health for children with special health care needs: Priorities for action—Recommendations from an MCHB expert meeting. Washington, DC: National Maternal and Child Oral Health Resource Center, 19 pp.

                                                                      National Maternal and Child Oral Health Resource Center
                                                                      Georgetown University Box 571272
                                                                      Washington, DC 20057-1272

                                                                      Telephone: (202) 784-9771
                                                                      Fax: (202) 784-9777
                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                      Website: http://www.mchoralhealth.org
                                                                      Available from the website.

                                                                      This report summarizes a meeting held on April 15-18, 2008, in Washington, DC, to discuss strategies and key partners for improving the oral health of children with special health care needs and the oral health care delivery system for this population in three priority areas: medical home and dental home interface, education and training, and financing. A companion presentation is also available. [Funded by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Children with special health care needs, Medical home, Federal initiatives, Strategic plans, Meetings, Resources for professionals, Children

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                                                                      South Carolina Department of Health and Environmental Control, Oral Health Division. 2006. Oral health for families with special health care needs. [Columbia, SC]: South Carolina Department of Health and Environmental Control, Division of Oral Health, 64 pp.

                                                                      South Carolina Department of Health and Environmental Control, Division of Oral Health
                                                                      2600 Bull Street
                                                                      Columbia, SC 29201

                                                                      Telephone: (803) 898-3432
                                                                      Website: http://www.scdhec.gov/index.htm
                                                                      Available from the website.

                                                                      This resource guide is designed to give parents and other caregivers tips on oral hygiene and oral health care for children and youth with special health care needs. Topics include selecting and adapting a toothbrush, addressing challenges, providing good nutrition, encouraging safety, and going to the dentist. Contents also include information sheets for specific conditions, state and national organizations, and service information.

                                                                      Keywords: Oral health, Children with special health care needs, Adolescent's with special health care needs, Family support services, Learning activities, Educational materials, State programs, South Carolina

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                                                                      [Holt K]. 2011. Oral health for Maryland's kids: Targeted Oral Health Service Systems Project—Final report. [Washington, DC]: National Maternal and Child Oral Health Resource Center, 7 pp.

                                                                      National Maternal and Child Oral Health Resource Center
                                                                      Georgetown University Box 571272
                                                                      Washington, DC 20057-1272

                                                                      Telephone: (202) 784-9771
                                                                      Fax: (202) 784-9777
                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                      Website: http://www.mchoralhealth.org
                                                                      Available from the website.

                                                                      This final report describes the 2007–2011 oral health program to provide safety net oral health services to infants and young children, including those with special health care needs, enrolled in Head Start in Maryland. Topics include creating a network of key stakeholders to develop an oral-health-improvement plan; providing education and training for general practice dentists to increase care for young children; providing education and training for non-oral-health professionals to increase risk assessments and provide anticipatory guidance on oral health to parents and other caregivers; providing referrals to dentists; and developing a patient navigator and education program for Head Start staff. Accomplishments, lessons learned, and responses are provided. [Funded by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Head Start, Infants, Young children, Children with special health care needs, Health services delivery, Provider participation, State initiatives, Maryland, Final reports

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                                                                      [Rhode Island Parent Information Network and Rhode Island Department of Health, Oral Health Program]. 2006. Oral health forum for children with special health care needs in Rhode Island: Final report. [Providence, RI: Rhode Island Department of Health, Oral Health Program], 16 pp.

                                                                      National Maternal and Child Oral Health Resource Center
                                                                      Georgetown University Box 571272
                                                                      Washington, DC 20057-1272

                                                                      Telephone: (202) 784-9771
                                                                      Fax: (202) 784-9777
                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                      Website: http://www.mchoralhealth.org
                                                                      Available from the website.

                                                                      This report summarizes a statewide oral health forum held on November 9, 2006, in Warwick, Rhode Island, to identify access barriers, propose solutions, and build support for improving the oral health status of children and adolescents with special health care needs. Report contents include an executive summary, an action plan, and a review of next steps. Appendices include the forum agenda, list of forum registrants, a registration check-in sheet, a summary of evaluations, the logic model, miscellaneous supporting documents, and a completed budget table. [Funded in part by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Rhode Island

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                                                                      [Association of State and Territorial Dental Directors]. [2008]. Oral health in Nebraska: A forum of families and professionals. [Sparks, NV: Association of State and Territorial Dental Directors], 25 pp.

                                                                      Association of State and Territorial Dental Directors
                                                                      3858 Cashill Boulevard
                                                                      Reno, NV 89509

                                                                      Telephone: (775) 626-5008
                                                                      Fax: (775) 626-9268
                                                                      E-mail: info@astdd.org
                                                                      Website: http://www.astdd.org
                                                                      Available from the website.

                                                                      This report discusses the activities of stakeholders in developing an action plan to address the oral health care needs of children with special health care needs (CSHCN) in Nebraska. Report contents outline the planning process; the forum held on August 12, 2008; issues specific to CSHCN; and next steps to develop an action plan. [Funded by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Children with special health care needs, Strategic plans, Conferences, State initiatives, Nebraska, Children

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                                                                      Bertness J, Holt K, eds. 2011. Oral health services for children and adolescents with special health care needs: A resource guide (2nd ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 36 pp.

                                                                      National Maternal and Child Oral Health Resource Center
                                                                      Georgetown University Box 571272
                                                                      Washington, DC 20057-1272

                                                                      Telephone: (202) 784-9771
                                                                      Fax: (202) 784-9777
                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                      Website: http://www.mchoralhealth.org
                                                                      Available from the website.

                                                                      This resource guide provides information to help health professionals plan, develop, and implement efforts to ensure that children and adolescents with special health care needs receive optimal oral health care. The guide is divided into the following three sections: (1) journal articles, (2) materials (books, curricula, fact and tip sheets, guidelines, manuals, modules, papers, reports, and CD-ROMs), and (3) agencies and organizations that may serve as resources. Entries contain bibliographic information, an annotation, and contact information. [Funded by the Maternal and Child Health Bureau]

                                                                      Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Health promotion, Disease prevention, Bibliographies, Directories, Resource materials, Children, Adolescents

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                                                                      National Institute of Dental and Craniofacial Research. n.d. Oral health topics. Bethesda, MD: National Institute of Dental and Craniofacial Research, multiple items.

                                                                      National Institute of Dental and Craniofacial Research
                                                                      National Institutes of Health Bethesda, MD 20892

                                                                      Telephone: (866) 232-4261
                                                                      Fax: (301) 480-4098
                                                                      E-mail: nidcrinfo@mail.nih.gov
                                                                      Website: http://www.nidcr.nih.gov
                                                                      Available from the website.

                                                                      This resource provides information for professionals and consumers on various oral health topics, including burning mouth syndrome, cancer treatments, cleft lip and palate, developmental disabilities, diabetes and oral health, dry mouth (xerostomia), fillings (amalgams), fluoride, genetics, gum (periodontal) diseases, heart disease, HIV/AIDS, oral cancer, organ transplantation, oral and facial pain, pregnancy, saliva and salivary gland disorders, dental sealants, Sjögren's Syndrome, smokeless tobacco, taste disorders, TMJ disorders, and tooth decay (dental caries).

                                                                      Keywords: Oral health, Children, Adults, Infectious diseases, Mouth diseases, Dental care, Special health care needs, Educational materials

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                                                                      National Institute of Dental and Craniofacial Research. 2009-2013. Oral health, cancer care, and you series. Bethesda, MD: National Oral Health Information Clearinghouse, multiple items.

                                                                      National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse
                                                                      National Institutes of Health
                                                                      Bethesda, MD 20892-2190

                                                                      Telephone: (301) 402-7364
                                                                      Secondary Telephone: (866) 232-4528
                                                                      Fax: (301) 480-4098
                                                                      E-mail: nidcrinfo@mail.nih.gov
                                                                      Website: http://www.nidcr.nih.gov
                                                                      Available from the website.

                                                                      These resources are designed to inform health professionals and health care consumers about steps they can take before, during, and after cancer treatment to reduce the risk for and impact of oral complications of cancer therapy. The resource links to booklets and pocket guides for professionals and educational brochures for consumers. Consumer materials are available in English and Spanish.

                                                                      Keywords: Oral health, Cancer, Anticipatory guidance, Self care, Patient care management, Drug therapy, Radiation therapy, Bone marrow transplantation, Low literacy materials, Spanish language materials, Adults

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                                                                      Jolly DE. 2002. Oral health: Guidelines for people with disabilities. [Louisville, KY]: Academy of Dentistry for Persons with Disabilities, Standards of Care Committee, 70 pp.

                                                                      National Maternal and Child Oral Health Resource Center
                                                                      Georgetown University Box 571272
                                                                      Washington, DC 20057-1272

                                                                      Telephone: (202) 784-9771
                                                                      Fax: (202) 784-9777
                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                      Website: http://www.mchoralhealth.org
                                                                      Single photocopies available at no charge.

                                                                      This paper for health professionals presents guidelines for the purpose of establishing a general framework within which individuals with special health care needs may receive oral health treatment. The paper includes a discussion of the background and rationale, objectives, a quick reference guide, and management guidelines. The management guidelines provide information on definitions and identification, coordination of care, general management considerations, and oral health considerations associated with disabling conditions. Disabling conditions discussed include sensory disorders; degenerative and developmental neuromuscular disorders; orthopedic disorders; cerebrovascular accident; seizure disorder; traumatic brain injury; arthritis; and mental, cognitive, and emotional disorders. The paper also discusses oral health treatment considerations and follow-up and long-term care.

                                                                        Keywords: Oral health, Dental care, Disabilities, Special health care needs, Guidelines, Health services delivery

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                                                                        Massachusetts Department of Public Health and American Academy of Pediatric Dentistry. 1989. Oral implications of HIV infection in the pediatric population: A conference/workshop. Chicago, IL: American Academy of Pediatric Dentistry, 29 pp.

                                                                        National Maternal and Child Oral Health Resource Center
                                                                        Georgetown University Box 571272
                                                                        Washington, DC 20057-1272

                                                                        Telephone: (202) 784-9771
                                                                        Fax: (202) 784-9777
                                                                        E-mail: OHRCinfo@georgetown.edu
                                                                        Website: http://www.mchoralhealth.org
                                                                        Available for loan.

                                                                        This report provides information for pediatric dentists on HIV, including epidemiology, transmission, medical management, and oral implications. It also provides a protocol developed by workshop attendees for training post-doctoral students in pediatric dentistry in caring for children with HIV. [Funded by the Maternal and Child Health Bureau]

                                                                          Keywords: Oral health, Children with special health care needs, HIV

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                                                                          Clifford R, Duke G, Schaefer C. 2011. Orthodontic and craniofacial referral guide (upd.). Sacramento, CA: California Department of Public Health, Maternal, Child and Adolescent Health Oral Health Program, 2 pp.

                                                                          California Department of Public Health, Maternal, Child and Adolescent Health Oral Health Program
                                                                          MS Code 8305 P.O. Box 997377, MS 0500
                                                                          Sacramento, CA 95899-7377

                                                                          Telephone: (916) 558-1784
                                                                          E-mail: mchinet@cdph.ca.gov
                                                                          Website: http://www.cdph.ca.gov/programs/MCAHOralHealth/Pages/default.aspx
                                                                          Available from the website.

                                                                          This guide for health professionals addresses screening children for severe oral conditions and referring them to California Children’s Services (CCS) when appropriate. Topics include referral criteria for medically handicapping malocclusion and cleft lip/palate and other craniofacial anomalies, the CCS referral and eligibility process, CCS benefits, and why it is important to refer. Information on assessing occlusion in children and color photographs illustrating conditions are provided.

                                                                          Keywords: Oral health, Children with special health care needs, Screening, Referrals, Dental care, Resources for professionals, State programs, California

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                                                                          University of the Pacific School of Dentistry, Department of Dental Practice. 1998. Overcoming obstacles to dental health: A training program for caregivers of people with disabilities (4th ed.). San Francisco, CA: University of the Pacific School of Dentistry, Department of Dental Practice, 1 videotape (10 minutes, VHS 1/2 inch), 1 trainer's manual (20 pp), 2 workbooks (50 pp), 2 answer sheets with tests (7 pp), 1 brochure (10 pp).

                                                                          University of the Pacific School of Dentistry, Arthur A. Dugoni School of Dentistry
                                                                          155 Fifth Street
                                                                          San Francisco, CA 94103

                                                                          Telephone: (415) 929-6400
                                                                          Fax: (415) 929-6654
                                                                          Website: http://dental.pacific.edu
                                                                          $99.95 plus shipping and handling.

                                                                          This kit is intended to train caregivers to recognize and prevent oral diseases in individuals with special health care needs, to identify obstacles to oral health for a given individual, to use behavioral techniques to improve oral hygiene skills and independence, and to develop and carry out an oral health care plan. The kit contains a 10- minute videotape demonstrating oral health and behavioral techniques; a trainer's manual with instructions on how to use the materials; two workbooks with 11 chapters, review questions, and class and home exercises; and a 60-item pre- and post- training test to assess knowledge.

                                                                            Keywords: Oral health, Training materials, Special health care needs, Dental hygiene, Caregivers, Videotapes

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                                                                            Wyoming Family 2 Family Health Information Center. 2012. Packaging wisdom: A family centered care coordination notebook [3rd. ed.]. Buffalo, WY: Wyoming Family 2 Family Health Information Center, 86 pp.

                                                                            Wyoming Family 2 Family Health Information Center
                                                                            500 W. Lott Street, Suite A
                                                                            Buffalo, WY 82834

                                                                            Telephone: (307) 684-2277
                                                                            Website: http://www.wpic.org/WYF2FHIC/
                                                                            Available from the website.

                                                                            This notebook is designed to help parents of children with special health care needs record, track, and share information with their child’s health care team, child care provider, school, and family members. Contents include worksheets for recording the child’s health history, including the first dental visit, and the child’s dentist’s contact information, specialist recommendations, and appointment dates and times. [Funded by the Maternal and Child Health Bureau]

                                                                            Keywords: Children with special health care needs, Families, Family centered care, Medical history, Oral health

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                                                                            American Cleft Palate - Craniofacial Association. 1993. Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. Pittsburgh, PA: American Cleft Palate - Craniofacial Association, 32 pp.

                                                                            This publication is the product of a consensus conference on recommended practices for the optimal care of patients with craniofacial anomalies. Participants included members of the American Cleft Palate - Craniofacial Association, health professionals experienced in the diagnosis and treatment of craniofacial anomalies and related disorders, representatives of children with craniofacial birth defects and their families, and representatives of government agencies involved in the funding of care for such patients. The recommendations of the conference attendees are presented in the following manner: interdisciplinary health care teams: composition, qualifications of team members, and general responsibilities of teams; contemporary practices of the team during the early months of life of the patient; and longitudinal evaluation and treatment, listing general guidelines and contemporary practices as they pertain to professional specialty areas. [Funded by the Maternal and Child Health Bureau]

                                                                              Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Standards

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                                                                              Flanagan D, Whitehead A, Rosen-Reynoso M. 2011. Partnering to make oral health services easier to use for families with CYSHCN. [Boston, MA]: National Center for Ease of Use of Community-Based Services, 1 webcast (ca 50 min).

                                                                              National Center for Ease of Use of Community-Based Services
                                                                              c/o Institute for Community Inclusion University of Massachusetts, Boston 100 Morrissey Boulevard
                                                                              Boston, MA 02125

                                                                              Telephone: (617) 287-4370
                                                                              E-mail: communitybasedsrvcs@umb.edu
                                                                              Website: http://communitybasedservices.org
                                                                              Available from the website.

                                                                              This webinar discussed the development of the Wisconsin Special Smiles Program (WSSP), a community-based system of oral health for children and adolescents with special health care needs (CASHCN). Topics included aspects of the program and examples of how WSSP partnered with Title V programs to deliver services, and tips on building partnerships to make oral health services easier to use for families with CASHCN. [Funded by the Maternal and Child Health Bureau]

                                                                              Keywords: Oral health, Health services delivery, Special health care needs, Children, Adolescents, Youth, State initiatives, Wisconsin

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                                                                              University of Washington School of Dentistry, Washington State Department of Health. 2010-. Patients with special needs: Resources for patients and health care professionals. Seattle, WA: University of Washington School of Dentistry, multiple items.

                                                                              University of Washington School of Dentistry, Department of Oral Medicine
                                                                              1959 N.E. Pacific Street, Campus Box 356370
                                                                              Seattle, WA 98195-6370

                                                                              Telephone: (206) 543-6501
                                                                              Website: http://dental.washington.edu/departments/oral-medicine/oral-medicine.html
                                                                              Available from the website.

                                                                              These resources for health professionals and parents and other caregivers provide information on oral health in children and adults with special health care needs. Contents include a series of fact sheets on 16 conditions. Additional guidance on child abuse for oral health professionals is included, as well as guidance for parents and caregivers in English, Spanish, and Russian. A directory of dentists for clients with special needs and a continuing dental education course based on information contained in the fact sheets are also available. [Funded by the Maternal and Child Health Bureau]

                                                                              Keywords: Oral health, Children, Adolescents, Parents, Special health care needs, Comprehensive health care, Health supervision, Resources for professionals, Educational materials, Spanish language materials, Non English language materials, Continuing education

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                                                                              Deinard A, Modem S, Shaw D, Vega J. 2010. Pediatric oral health: Smiles for tomorrow–An atlas of common dental pathology for primary care medical professionals (upd. ed.). Minneapolis, MN: Regents of the University of Minnesota, 65 pp.

                                                                              This atlas includes text and photographic descriptions of normal tooth development and eruption, dental caries etiology, care of teeth (such as toothbrushing and receiving dental sealants), and abnormalities of children’s teeth and mouths. The text is presented in English and Spanish.

                                                                                Keywords: Oral health, Young children, Craniofacial abnormalities, Mouth diseases, Etiology, Disease prevention, Pediatric care, Resources for professionals, Spanish language materials

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                                                                                Yarbrough D. 2007. [Planning Alternative Tomorrows with Hope - PATH]. Midlothian, VA: Medical Home Plus, 12 pp.

                                                                                Association of State and Territorial Dental Directors
                                                                                3858 Cashill Boulevard
                                                                                Reno, NV 89509

                                                                                Telephone: (775) 626-5008
                                                                                Fax: (775) 626-9268
                                                                                E-mail: info@astdd.org
                                                                                Website: http://www.astdd.org
                                                                                Available from the website.

                                                                                This report describes a summit in Virginia of parents, advocates, medical and dental health professionals, and state agency representatives to discuss quality oral health care for children and youth with disabilities. Topics include ongoing training for providers, prevention, and increased access. Highlights of the summit are described along with a summary of issues identified and solutions suggested.

                                                                                Keywords: Oral health, Children with special health care needs, Dental care, Access to health care, Virginia, State initiatives, Children

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                                                                                Isman BA, Newton RN, Bujold C, Baer MT. 2000. Planning guide for dental professionals serving children with special health care needs. Los Angeles, CA: Children's Hospital Los Angeles, University of Southern California University Affiliated Program, 62 pp.

                                                                                National Maternal and Child Oral Health Resource Center
                                                                                Georgetown University Box 571272
                                                                                Washington, DC 20057-1272

                                                                                Telephone: (202) 784-9771
                                                                                Fax: (202) 784-9777
                                                                                E-mail: OHRCinfo@georgetown.edu
                                                                                Website: http://www.mchoralhealth.org
                                                                                $25.00; also available from the website.

                                                                                This guide promotes a framework for oral health professionals to communicate and work with families to ensure that appropriate, quality oral health care is provided both at home and in the dental office. The manual contains six sections on the following topics: (1) preparation for dental visits, (2) oral assessment and prevention, (3) determination of specialized treatment techniques, (4) indicators of quality oral health care, (5) linking with community resources in California, and (6) bibliography and other resources. [Funded by the Maternal and Child Health Bureau]

                                                                                Keywords: Children with special health care needs, Oral health, Dental care, Case assessment, Community participation, Manuals, Parents, Children

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                                                                                National Institute of Dental and Craniofacial Research. n.d. Practical oral care for people with developmental disabilities. Bethesda, MD: National Institute of Dental and Craniofacial Research, multiple items.

                                                                                National Institute of Dental and Craniofacial Research
                                                                                National Institutes of Health Bethesda, MD 20892

                                                                                Telephone: (866) 232-4261
                                                                                Fax: (301) 480-4098
                                                                                E-mail: nidcrinfo@mail.nih.gov
                                                                                Website: http://www.nidcr.nih.gov
                                                                                Available at no charge; also available from the web site.

                                                                                This series of publications is designed to equip oral health professionals with the information about oral health care for individuals with special health care needs. The publications provide background on developmental disabilities in general and address oral health problems commonly found in those with special health care needs. Strategies for care, covering topic such as mobility, neuromuscular problems, behavior problems, and sensory impairment are discussed in the context of the dental office. Individual booklets on oral health and autism, cerebral palsy, Down syndrome, and intellectual disability offer practical guidance on adapting standard practice to accommodate those with special health care needs. A guide for caregivers and one on safe wheelchair transfer are also provided.

                                                                                Keywords: Oral health, Dental care, Children with special health care needs, Adolescents with special health care needs, Autism, Adults, Developmental disabilities, Health care delivery, Continuing education

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                                                                                Glassman P, ed. 2003. Practical protocols for the prevention of dental disease in community settings for people with special needs. Special Care in Dentistry 23(5):157-188.

                                                                                Special Care Dentistry Association
                                                                                330 North Watash Avenue, Suite 2000
                                                                                Chicago, IL 60611

                                                                                Telephone: (312) 527-6764
                                                                                Fax: (312) 673-6663
                                                                                E-mail: SCD@SCDonline.org
                                                                                Website: http://www.SCDonline.org
                                                                                $25 (domestic mailing); $30 (international).

                                                                                This special supplement of Special Care in Dentistry presents protocols from a conference held on February 1, 2002, in San Francisco, California. Topics include risk assessment, chlorhexidine mouth rinses, xylitol chewing gum, topical fluoride and fluoride varnish applications, and methods to control or treat periodontal disease. The supplement also presents information on next steps, including the design of an implementation and dissemination strategy to encourage nurses, case managers, social workers, caregivers, and others to use the protocols. A plan will also be implemented to increase awareness of the interventions through professional publications and educational opportunities.

                                                                                  Keywords: Oral health, Dental care, Children with special health care needs, Protocols, Dental caries, Early childhood caries, Risk assessment, Fluorides, Periodontal disease, Conferences

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                                                                                  Association of Retarded Citizens, Academy of Dentistry for the Handicapped, American Dental Hygienists Association, and Johnson and Johnson. 1989. Preventing dental diseases in children with disabilities. New Brunswick, NJ: Johnson and Johnson Consumer Products, 10 fact sheets.

                                                                                  American Dental Hygienists' Association
                                                                                  444 North Michigan Avenue, Suite 3400
                                                                                  Chicago, IL 60611

                                                                                  Telephone: (312) 440-8900
                                                                                  Fax: (312) 440-1806
                                                                                  Website: http://www.adha.org
                                                                                  $2.00, plus shipping and handling.

                                                                                  This packet of fact sheets provides information about oral disease and how to prevent it with proper oral care, focusing on children with special health care needs. Included are step-by-step instructions for helping the child practice daily oral hygiene. Topics include explanations for why children with disabilities are more prone to oral disease; a guide to positions to assume when cleaning the child's teeth; tips on brushing, flossing, and rinsing; professional oral health care; common dental problems experienced by children; growth and development; dental office selection; and tips for planning successful dental visits.

                                                                                    Keywords: Oral health, Children with special health care needs, Educational materials, Dental hygiene, Dental care

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                                                                                    Abel SN, Acs GC, Cleveland JL, Croser D, Fischman SL, Flaitz CM, Glick M, Jandinski JJ, Ng MW, Phelan JA, Rubin M, eds. 2003. Principles of oral health management for the adult and child with HIV/AIDS: A course of training for the oral health professional. [Centerport, NY]: Dental Alliance for AIDS/HIV Care, 92 pp, 1 CD-ROM.

                                                                                    AIDS Education and Training Centers National Resource Center
                                                                                    University of Medicine and Dentistry of New Jersey, School of Nursing Francois-Xavier Bagnoud Center 30 Bergen Street, Eighth Floor
                                                                                    Newark, NJ 07107

                                                                                    Telephone: (973) 972-6587
                                                                                    Fax: (973) 972-0399
                                                                                    E-mail: info@aidsetc.org
                                                                                    Website: http://www.aidsetc.org
                                                                                    Available from the website.

                                                                                    This curriculum includes three components: (1) a training course for oral health professionals, (2) oral health information for adults living with HIV/AIDS, and (3) oral health information for children living with HIV/AIDS. Topics include the health inventory and review of medically relevant information; oral manifestations of HIV, including clinical characteristics, diagnosis, and treatment recommendations; legal issues; special considerations; and management and evaluation of occupational exposures. The content is available in English and Spanish. The training course for oral health professionals is available on CD-ROM and as a print publication.

                                                                                    Keywords: Oral health, Curricula, HIV, AIDS, Dental care, Patient care management, Special health care services, Spanish language materials, CD-ROMs, Children

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                                                                                    Mouradian W, Porter A, University of Washington, Center on Human Development and Disability. 2001. Proceedings: Promoting oral health of children with neurodevelopmental disabilities and other special health needs. Seattle, WA: University of Washington, Center on Human Development and Disability, 172 pp.

                                                                                    National Maternal and Child Oral Health Resource Center
                                                                                    Georgetown University Box 571272
                                                                                    Washington, DC 20057-1272

                                                                                    Telephone: (202) 784-9771
                                                                                    Fax: (202) 784-9777
                                                                                    E-mail: OHRCinfo@georgetown.edu
                                                                                    Website: http://www.mchoralhealth.org
                                                                                    Available from the website.

                                                                                    This volume contains the proceedings of a conference held at the Center on Human Development and Disability, University of Washington, Seattle, Washington, on May 4–5, 2001. The conference was convened to address training and research agendas related to oral health promotion for children with neurodevelopmental disabilities and other special health care needs. Section topics include an introduction and overview, full recommendations, a health promotion framework, oral disease and care for children with special health care needs, data and demonstration projects, health-promoting behaviors, interdisciplinary issues, oral-systemic health interactions, and access. The appendices include the conference agenda, a list of faculty and attendees, a list of federal training and research centers, and selected articles and reports highlighted at the conference. [Funded in part by the Maternal and Child Health Bureau]

                                                                                    Keywords: Oral health, Dental care, Children with special health care needs, Conference proceedings, Professional training, Infants, Children, Adolescents

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                                                                                    Day KC. 2012. Program narrative: Virginia targeted state maternal and child health oral health service systems. [Richmond, VA]: Virginia Department of Health, [Dental Health Program], 21 pp, plus appendices.

                                                                                    National Maternal and Child Oral Health Resource Center
                                                                                    Georgetown University Box 571272
                                                                                    Washington, DC 20057-1272

                                                                                    Telephone: (202) 784-9771
                                                                                    Fax: (202) 784-9777
                                                                                    E-mail: OHRCinfo@georgetown.edu
                                                                                    Website: http://www.mchoralhealth.org
                                                                                    Available from the website.

                                                                                    This report describes a project in Virginia to (1) increase age 1 dental visits for children at high risk for dental caries; (2) extend oral health screening, education, and fluoride varnish programs within the Bright Smiles for Babies program; and (3) improve access to care for children with special health care needs through collaborative projects. [Funded by the Maternal and Child Health Bureau]

                                                                                    Keywords: Oral health, Infants, Young children, Children with special health care needs, Access to health care, Prevention services, Final reports, State initiatives, Virginia, Final reports

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                                                                                    Family Voices. 2011. Promoting oral health (rev. ed.). Albuquerque, NM: Family Voices, 2 pp, (Bright Futures theme sheets for families).

                                                                                    Bright Futures for Families
                                                                                    Family Voices 2340 Alamo SE, Suite 102
                                                                                    Albuquerque, NM 87106

                                                                                    Telephone: (508) 872-4774
                                                                                    E-mail: banderson@familyvoices.org
                                                                                    Website: http://www.brightfuturesforfamilies.org

                                                                                    This tip sheet describes oral health, its relationship with overall health, and what families can do to promote oral health. Topics include oral health during infancy, early childhood, middle childhood, and adolescence and oral health in children with special health care needs. The tip sheet also provides information on resources for families. [Funded by the Maternal and Child Health Bureau]

                                                                                      Keywords: Oral health, Children, Children with special health care needs, Families, Child development, Health promotion, Educational materials

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                                                                                      University of Washington, Center on Human Development and Disability. 2001. Promoting oral health of children with neurodevelopmental disabilities and other special health needs: A meeting to develop training and research agendas. Seattle, WA: University of Washington, Center on Human Development and Disability, 1 v.

                                                                                      National Maternal and Child Oral Health Resource Center
                                                                                      Georgetown University Box 571272
                                                                                      Washington, DC 20057-1272

                                                                                      Telephone: (202) 784-9771
                                                                                      Fax: (202) 784-9777
                                                                                      E-mail: OHRCinfo@georgetown.edu
                                                                                      Website: http://www.mchoralhealth.org
                                                                                      Single photocopies available at no charge.

                                                                                      The participant's notebook includes materials from the conference held May 4-5, 2001 in Seattle, Washington, to (1) develop training and research agendas for professionals in the area of oral health for children with neurodevelopmental disabilities (NDD) and (2) develop additional recommendations for research, service, and policy related to oral health in children with NDD. Session topics include a review of oral health and future implications for children with NDD and other special health care needs, conceptual frameworks for children with NDD in the areas of health promotion and disability, a discussion of NDD, data collection in special populations, oral health promotion, parents as partners, obstacles to promoting oral health, and evidence-based approaches. Additional topics include oral-motor dysfunction, oral health and speech, and nutrition in oral health. Materials are provided including articles, speaker biographies, printed PowerPoint slides and handouts from conference speakers, fact sheets from the Maternal and Child Health Bureau, and a participant list. The notebook also contains a 47-page publication on critical elements of care for the patient with cleft lip and palate. [Funded in part by the Maternal and Child Health Bureau]

                                                                                        Keywords: Oral health, Children with special health care needs, Disabilities, Professional training, Specialists, Neural development, Nutrition, Health promotion, Conferences

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                                                                                        Balzer J. 2006. Promoting the oral health of children with special health care needs: In support of the national agenda. Washington, DC: National Maternal and Child Oral Health Resource Center, 4 pp.

                                                                                        National Maternal and Child Oral Health Resource Center
                                                                                        Georgetown University Box 571272
                                                                                        Washington, DC 20057-1272

                                                                                        Telephone: (202) 784-9771
                                                                                        Fax: (202) 784-9777
                                                                                        E-mail: OHRCinfo@georgetown.edu
                                                                                        Website: http://www.mchoralhealth.org
                                                                                        Available from the website.

                                                                                        This policy brief provides suggestions for oral-health-promotion activities that are consistent with the National Agenda for Children with Special Health Care Needs. The brief addresses the six critical indicators of a comprehensive system of care identified by the Maternal and Child Health Bureau: medical home, insurance coverage, screening, organization of services, family roles, and transition to adulthood. [Funded by the Maternal and Child Health Bureau]

                                                                                        Keywords: Oral health, Children with special health care needs, Access to health care, Health insurance, Medical home, Screening, Health services delivery, Transitions, Children, Families

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                                                                                        Balzer J. [2004]. Promoting the oral health of children with special health care needs: Opportunities for increased collaboration between state oral health and CSHCN programs. Jefferson City, MO: Association of State and Territorial Dental Directors, 24 pp.

                                                                                        National Maternal and Child Oral Health Resource Center
                                                                                        Georgetown University Box 571272
                                                                                        Washington, DC 20057-1272

                                                                                        Telephone: (202) 784-9771
                                                                                        Fax: (202) 784-9777
                                                                                        E-mail: OHRCinfo@georgetown.edu
                                                                                        Website: http://www.mchoralhealth.org
                                                                                        Available from the website.

                                                                                        This paper discusses findings from a survey to explore collaboration among state oral health programs and children with special health care needs (CSHCN) programs to gain insight on establishing effective relationships. Contents include an introduction to the problem, the survey methodology and highlights of the results, a discussion of the limitations of program collaboration and strategies for increasing collaboration, and recommendations. Additional topics include types of collaboration and examples of state and community-based models of care for CSHCN. Appendices include the advisory committee roster, survey recruitment letters, and survey instrument. [Funded by the Maternal and Child Health Bureau]

                                                                                        Keywords: Oral health, Dental care, Children with special health care needs, Collaboration, Access to health care, State programs, Models, Questionnaires, Surveys, MCH research, Children, Parents

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                                                                                        Association of State and Territorial Dental Directors, Best Practices Committee. 2003-2013. Proven and promising best practices for state and community oral health programs. [Sparks, NV]: Association of State and Territorial Dental Directors, 12 items.

                                                                                        Association of State and Territorial Dental Directors
                                                                                        3858 Cashill Boulevard
                                                                                        Reno, NV 89509

                                                                                        Telephone: (775) 626-5008
                                                                                        Fax: (775) 626-9268
                                                                                        E-mail: info@astdd.org
                                                                                        Website: http://www.astdd.org
                                                                                        Available from the website.

                                                                                        This resource provides information to help state, territorial, and community oral health programs develop best practices within the context of their environments. Contents include reports on public health strategies that are supported by evidence for their impact and effectiveness. Topics include coordinated school health programs; prevention and control of early childhood tooth decay; perinatal oral health; school fluoride and dental sealant programs; special health care needs; state coalitions, plans, and mandates; surveillance systems; water fluoridation; and work force development. The resource also provides access to state and community practice examples that illustrate successful implementation of best practice approaches. Additional resources such as definitions, criteria, and surveys are available. [Funded in part by the Maternal and Child Health Bureau]

                                                                                        Keywords: Oral health, Model programs, Public health services, Community programs, State programs

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                                                                                        Graville I, Gross J. 2000. Public health consultation in child care. Olympia, WA: Washington State Department of Health, Community and Family Health, 188 pp.

                                                                                        Washington State Department of Health, Prevention and Community Health Division
                                                                                        P.O. Box 47890
                                                                                        Olympia, WA 98504-7890

                                                                                        Website: http://www.doh.wa.gov/AboutUs/ProgramsandServices/PreventionandCommunityHealth.aspx
                                                                                        Available from the website.

                                                                                        This training manual for consultants in child care addresses issues for child care homes and centers that care for infants and toddlers. It is divided into the following chapters: (1) the consultant role, (2) using NCAST's Keys to CaregivinG(tm), (3) growth and development, (4) providing a safe and nurturing environment, (5) infant and toddler nutrition, (6) infant and toddler oral health, (7) child care for infants and toddlers with special needs, (8) preventing and managing illness in infants and toddlers, (9) helping providers prepare for and handle emergencies, (10) child abuse and neglect, and (11) staff health. Examples of how to incorporate the information into practice are included at the end of each chapter. Nine appendices include a wide range of sample evaluations, forms, handouts, assessment tools, and checksheets, as well as tips sheets on nutrition, preventing and managing stress, and safety. References, resources, and an index are provided.

                                                                                        Keywords: Child care, Infant care, Preschool children, Child care workers, Child care centers, Child development, Oral health, Children with special health care needs, Emergency child care, Emergencies, Child abuse, Child neglect, Manuals, Consultants, Training materials

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                                                                                        U.S. Department of Health and Human Services, Public Health Service Region VII. 1991. Public Health Service Region VII Workshop on Oral Health: A vital component of primary health care for mothers and children. Kansas City, MO: U.S. Department of Health and Human Services, Public Health Service Region VII, 54 pp.

                                                                                        National Maternal and Child Oral Health Resource Center
                                                                                        Georgetown University Box 571272
                                                                                        Washington, DC 20057-1272

                                                                                        Telephone: (202) 784-9771
                                                                                        Fax: (202) 784-9777
                                                                                        E-mail: OHRCinfo@georgetown.edu
                                                                                        Website: http://www.mchoralhealth.org
                                                                                        Available for loan.

                                                                                        This workshop discussed increasing awareness and improving integration of oral health in primary care systems and preventive health interventions for mothers and children with special health care needs. It was held on April 10-11, 1991, in Des Moines, Iowa. The document includes oral health action plans for Iowa, Kansas, Nebraska, and Missouri; a workshop evaluation; comments on the workshop; the workshop agenda; a list of sponsors; and a list of attendees.

                                                                                          Keywords: Oral health, Children with special health care needs, Mothers, Primary care, Region VII, Preventive health services, Guidelines

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                                                                                          Rosenthal J, Henderson M, Dolatshahi J, Hess C, Tobias C, Bachman S, Comeau M. 2012. Public insurance programs and children with special health care needs: A tutorial on the basics of Medicaid and the Children's Health Insurance Program (CHIP). Boston, MA: Catalyst Center; Portland, ME: National Academy for State Health Policy, 55 pp.

                                                                                          Catalyst Center
                                                                                          Boston University School of Public Health Health & Disability Working Group 715 Albany Street
                                                                                          Boston, MA 02218-2526

                                                                                          Telephone: (617) 639-1936
                                                                                          E-mail: mcomeau@bu.edu
                                                                                          Website: http://hdwg.org/catalyst
                                                                                          Available from the website.

                                                                                          This tutorial provides an overview of Medicaid and the Children's Health Insurance Program (CHIP), the populations these programs serve, the changes they are undergoing under health care reform, and opportunities to improve services for children with special health care needs (CSHCN) through communication and collaboration with Medicaid and CHIP staff. The tutorial begins with an overview of how definitions of CSHCN may vary by agency or program, followed by eight major topic areas and recommendations for Title V programs to build successful partnerships with public insurance programs. A series of webinars, a game, and a crossword puzzle are also available from the website. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Children with special health care needs, Medicaid, Children's Health Insurance Program, Title V programs, Health care reform, Financing, Access to health care, Program improvement, Oral health, Children

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                                                                                          1965. Public Law 89-97–July 30, 1965. Part 1—Maternal and Child Health and Crippled Children’s Services: Special Project Grants for Health of School and Preschool Children. , 8 pp.

                                                                                          State University of New York, College at Brockport
                                                                                          350 New Campus Drive
                                                                                          Brockport, NY 14420

                                                                                          Website: http://www.brockport.edu/
                                                                                          Available from the website.

                                                                                          This excerpt from an amendment to the Social Security Act addresses increases in maternal and child health services and crippled children's services, planning for mental retardation services, and health care-related public assistance amendments including a study of resources on children's emotional illness.

                                                                                          Keywords: Legislation, History, Social Security Act, Maternal and child health services, Maternal and child health training, Children

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                                                                                          National Maternal and Child Oral Health Resource Center. 2010-. Resource highlights. Washington, DC: National Maternal and Child Oral Health Resource Center, multiple items.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          These resources for professionals highlight materials and websites on oral health topics. Topics include children and adolescents with special health care needs, dental home, dental sealants, domestic violence, early childhood caries, fluoridated water, fluoride varnish, Head Start, health literacy, home visiting, injury, K-12 education, nutrition, pregnancy, school health services, school readiness, and tobacco. Some of the materials and websites are available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Infants, Young children, Adolescents, Children with special health care needs, Pregnant women, Information sources, Electronic publications, Resources for professionals, Spanish language materials

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                                                                                          Aetna. 2002-. Simple steps to better dental health. Hartford, CT: Aetna, multiple items.

                                                                                          Aetna
                                                                                          151 Farmington Avenue
                                                                                          Hartford, CT 06156

                                                                                          Telephone: (860) 273-0123
                                                                                          Website: http://www.aetna.com
                                                                                          Available from the website.

                                                                                          This resource provides information on oral health to help individuals prevent problems, understand conditions, and explore treatments. Topics include tooth decay, toothbrushing and flossing, fluoride, mouth-healthy eating, dental sealants, oral hygiene, tobacco, and dental visits. A parents' guide provides information on oral health in infants, children, and adolescents.

                                                                                          Keywords: Oral health, Disease prevention, Health promotion, Dental hygiene, Dental care, Consumer education materials, Parenting

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                                                                                          Hands on Health South Carolina. [2011]. South Carolina dental directory for individuals with special health care needs. Charleston, SC: Hands on Health South Carolina, annual.

                                                                                          Hands on Health South Carolina
                                                                                          171 Ashley Avenue, Suite 300, MSC 403
                                                                                          Charleston, SC 29425-4030

                                                                                          Website: http://www.handsonhealth-sc.org
                                                                                          Available from the website.

                                                                                          This web-based directory comprises a network of dentists licensed in South Carolina to whom professionals and consumers may refer individuals with special health care needs for oral health care. The directory may be searched using a single special need, a dentist’s last name, an office location, or a combination of search criteria. Dentists can complete the registration form to be included in the directory. The directory is updated annually, but changes to individual listings are made as information is submitted and confirmed.

                                                                                          Keywords: Oral health, Children with special health care needs, Dentists, Dental care, Directories, South Carolina

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                                                                                          Veschusio C. 2006. South Carolina takes action: Ensuring optimal oral health care for children and adolescents with special health care needs. [Columbia, SC]: South Carolina Department of Health and Environmental Control, Division of Oral Health, 20 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This report represents the 2007-2009 workplan for implementing the South Carolina state oral health plan for children and adolescents with special health care needs (SHCN). Topics include oral health as an integral component of health and well-being; the negative effect of oral disease and related problems on the health and well-being of children; oral diseases and related problems among members of special needs populations; the negative effects of medications, special diets, and poor oral hygiene on the oral health of special needs populations; and recognition of access to oral health care as an unmet need among children and adolescents with SHCN. Contents include information on the Coalition workgroup and the meetings held to develop the workplan, and the workplan goals, objectives, and action steps. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Access to health care, Statewide planning, South Carolina

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                                                                                          National Institute of Dental and Craniofacial Research. 2009. Special care in oral health. Bethesda, MD: National Institute of Dental and Craniofacial Research, 2 pp.

                                                                                          National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse
                                                                                          National Institutes of Health
                                                                                          Bethesda, MD 20892-2190

                                                                                          Telephone: (301) 402-7364
                                                                                          Secondary Telephone: (866) 232-4528
                                                                                          Fax: (301) 480-4098
                                                                                          E-mail: nidcrinfo@mail.nih.gov
                                                                                          Website: http://www.nidcr.nih.gov
                                                                                          Available from the website.

                                                                                          This fact sheet describes special oral health management needs of people with a variety of medical conditions or limitations.

                                                                                          Keywords: Oral health, Children with special health care needs, Dental care, Children

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                                                                                          Special Care Dentistry Advisory Group. 2010. Special care oral health services: A North Carolina commitment—Session Law 2009-100. [Raleigh, NC]: North Carolina Department of Health and Human Services, Division of Public Health, Oral Health Section, 26 pp.

                                                                                          North Carolina Division of Public Health, Oral Health Section
                                                                                          2001 Mail Service Center 5505 Six Forks Road
                                                                                          Raleigh, NC 27699-2001

                                                                                          Telephone: (919) 855-4800
                                                                                          Fax: (919) 870-4805
                                                                                          Website: http://www.ncdhhs.gov/dph/oralhealth
                                                                                          Available from the website.

                                                                                          This report examines oral health care options for populations in North Carolina requiring special care dentistry and suggests ways to improve these services. Topics include consumer issues, provider and payer issues, and system issues. Recommendations are provided in the areas of advocacy, professional development, reimbursement, clinical program expansion, and health services research.

                                                                                          Keywords: Oral health, Dental care, Special health care services, Needs assessment, Provide participation, health services delivery, Reimbursement, North Carolina, Children

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                                                                                          Barzel R, Holt K, Isman B. 2006. Special care: An oral health professional's guide to serving young children with special health care needs. Washington, DC: National Maternal and Child Oral Health Resource Center.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This course is designed to help oral health professionals ensure that young children with special health care needs have access to comprehensive, family-centered, and community-based services. Continuing education credits from the Indian Health Service or the American Dental Hygienists' Association will be awarded upon successful completion of the course. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Curricula, Dental care, Children with special health care needs, Young children, Disease prevention, Resources for professionals, Dental education, Distance education

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                                                                                          Nevada State Health Division, Bureau of Family Health Services. 2008. Special populations oral health survey: Nevada 2008. Carson City, NV: Nevada State Health Division, Bureau of Family Health Services, 43 pp.

                                                                                          Nevada Division of Public and Behavioral Health, Bureau of Child, Family, and Community Wellness
                                                                                          4150 Technology Way
                                                                                          Carson City, NV 89706

                                                                                          Telephone: (775) 684-4285
                                                                                          Fax: (775) 684-4245
                                                                                          Website: http://health.nv.gov/BCFCW.htm
                                                                                          Available from the website.

                                                                                          This report describes an oral health needs assessment survey conducted in 2007 at two specialty care institutions in Nevada that service clients with mental or developmental disabilities. Topics include an introduction, a discussion of sampling and methodology, key findings, comparisons with Healthy People 2010 goals, results, and recommendations. Extensive data tables and figures are provided.

                                                                                          Keywords: Oral health, Needs assessment, Special health care needs, State surveys, Nevada, Families

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                                                                                          J. Robb Associates. 1978. Specialized training for dentists treating children with handicaps: An evaluation. Rockville, MD: U.S. Bureau of Community Health Services, 149 pp.

                                                                                          HathiTrust Digital Library
                                                                                          University of Michigan Telephone: (734) 764-8016
                                                                                          E-mail: hathitrust-info@umich.edu
                                                                                          Website: http://www.hathitrust.org/digital_library
                                                                                          Available from the website. Document Number: DHEW (HSA) 78-5218.

                                                                                          This book contains an evaluation of pedodontic programs sponsored by the Bureau of Community Health Services. Background literature supports the view that pedodontists need training in treating the oral health problems of children with disabilities. A model for evaluation of these training programs is provided in this book. Sections include: general evaluation approach, site assessment, practitioner survey, linage to pedodontic program graduates, and overall conclusions and recommendations. Samples of the surveys used are included in the appendices.

                                                                                          Keywords: Dentistry, Children with special health care needs, Program evaluation, Oral health

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                                                                                          Washington State Department of Health Children with Special Health Needs Program, Children's Hospital and Regional Medical Center for Children with Special Needs, and WithinReach. 2010. Starting point: Resources for children with special health care needs in Washington State. Seattle, WA: Children's Hospital and Regional Medical Center, Center for Children with Special Needs, 43 pp.

                                                                                          Seattle Children's Center for Children with Special Needs
                                                                                          1100 Olive Way, Suite 500, MS: MPW8-3
                                                                                          Seattle, WA 98101

                                                                                          Telephone: (206) 884-5735
                                                                                          Fax: (206) 884-5741
                                                                                          Website: http://www.cshcn.org
                                                                                          Available from the website.

                                                                                          This directory provides an overview of resources for families of children with special health care needs in Washington. Topics include advocacy and legal help, child care and respite, child development, community health, counseling, oral health, family support, financial help, health insurance, hearing and vision, information and referral, medical supplies and equipment, nutrition, recreation, school, and transportation. The Center for Special Needs website offers a searchable database containing all the resources included in the document. The directory is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Children with special health care needs, Oral health, Family support services, Advocacy, Child care, Assistive devices, Directories, Washington, Spanish language materials, Families, Children, Infants, Parents,

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                                                                                          Florida Department of Health, Public Health Dental Program. 2012. State Maternal and Child Health (MCH) Targeted Oral health Services Systems (TOHSS) Grant Program: Final project narrative, 2007-2011. Tallahassee, FL: Florida Department of Health, Public Health Dental Program, 16 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This report describes a project in Florida to increase age 1 dental visits for children at high risk for oral disease and improve access to oral health services for children with special health care needs. The report includes an overview of the need for improved oral health access; describes significant changes, experiences, and collaborative activities related to the project; and discusses project sustainability. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Young children, Children with special health care needs, Access to health care, Collaboration, Florida, Final reports

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                                                                                          Association of State and Territorial Dental Directors, Health Systems Research, and National Maternal and Child Oral Health Resource Center. 2005. Strategies for improving the oral health system of care for children and adolescents with special health care needs. Washington, DC: National Maternal and Child Oral Health Resource Center, 2 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This brief outlines strategies for health professionals in planning, developing, and implementing state and local efforts to ensure access to oral health care for children and adolescents with special health care needs. Topics include working with parents and other caregivers to provide oral hygiene care, work force issues, health care financing, the importance of dental and medical homes, and a review of state and local programs addressing these issues. [Funded in part by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Dental care, Dental hygiene, Health care systems, Children with special health care needs, Adolescents with special health care needs, Children

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                                                                                          California Childcare Health Program. 2010. Survival tips posters: Stop dental disease. Oakland, CA: California Childcare Health Program, 12 items.

                                                                                          University of California, San Francisco School of Nursing, California Childcare Health Program
                                                                                          San Francisco, CA 94143

                                                                                          Telephone: (415) 476-4695
                                                                                          Website: http://www.ucsfchildcarehealth.org
                                                                                          $10.00 per set of 6 for full-color laminated version; also available from the website.

                                                                                          This series of posters presents information on the prevention of oral disease and injury in early care and education. Topics include how to handle oral injuries, oral hygiene for children, preventing tooth decay, toothbrushes for children with special health care needs, toothbrush storage, and toothbrushing. Each poster is available in English and Spanish.

                                                                                          Keywords: Oral health, Children, Disease prevention, Child care centers, Posters, Educational materials, Spanish language materials

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                                                                                          University of Iowa, Department of Pedodontics and University Hospital School. 1974. Symposium: Dental management of the handicapped child. [Iowa City, IA]: University of Iowa, 94 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This booklet contains the program and summaries of symposium presentations held on May 22-23, 1973, at the University of Iowa. Topics include genetics and the prevention of mental retardation; neuromuscular diseases involving craniofacial structures; hospital dentistry; anesthesia and analgesia; new directions in the training of professionals for delivery of services to the handicapped; challenges in preventing dental disease; a comprehensive clinical dental program for hemophiliacs; organization of an interdisciplinary unit for the study of craniofacial anomalies; and the future care of the handicapped person. The symposium was supported by Training Project 484, Maternal and Child Health Service, health Services and mental Health Administration, awarded to the University of Iowa, Department of Pedodontics, in cooperation with the University Hospital School. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Dental care, Children with special health care needs, Children with developmental disabilities, Craniofacial abnormalities, Hemophilia, Anesthesia, Analgesic drugs, Mental retardation, Dentists, Dental education, Children, Families, Pregnant women

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                                                                                          Anderson P, Davis K, James C, Messuri K, Suarez. 2012. Taking your son/daughter with an autism spectrum disorder to the dentist. Bloomington, IN: Indiana Resource Center for Autism, 1 v.

                                                                                          Indiana University, Indiana Institute on Disability and Community
                                                                                          1905 North Range Road
                                                                                          Bloomington, IN 47408-9801

                                                                                          Telephone: (812) 855-6508
                                                                                          E-mail: iidc@indiana.edu
                                                                                          Website: http://www.iidc.indiana.edu
                                                                                          Available from the website.

                                                                                          This resource provides tips for parents and other caregivers on ways to ensure that children with autism receive optimal oral health care. Topics include preparing for a dental visit, addressing sensory and communication challenges, and financing oral health services. Additional resources about dental visits such as books for children, parents, and professionals; videos and photographs; a narrative; and a visual support schedule are also provided.

                                                                                          Keywords: Autism, Children with special health care needs, Dental care, Dental hygiene, Sensory impairments, Communication skills, Access to health care, Financing

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                                                                                          National Maternal and Child Oral Health Resource Center. 2012. Targeted MCH oral health service system project highlights. Washington, DC: National Maternal and Child Oral Health Resource Center, 4 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This report features activities and products from 20 Targeted MCH Oral Health Service System projects funded by the Maternal and Child Health Bureau from 2008 to 2011 to foster statewide efforts to prevent oral diseases and to promote oral-health-program sustainability. Topics include increasing age 1 dental visits for children at greatest risk for oral disease, improving access to oral health services for children with special health care needs, and ensuring restorative treatment of active disease through dental sealant programs. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Young children, Children with special health care needs, Disease prevention, Dental sealants, Public health infrastructure, Program descriptions, Federal MCH programs, Statewide planning

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                                                                                          Bethel L. 2012. Targeted Oral Health Services Systems: Massachusetts' final project narrative. [Boston, MA]: Massachusetts Department of Public Health, Office of Oral Health, 10 pp.

                                                                                          National Maternal and Child Oral Health Resource Center
                                                                                          Georgetown University Box 571272
                                                                                          Washington, DC 20057-1272

                                                                                          Telephone: (202) 784-9771
                                                                                          Fax: (202) 784-9777
                                                                                          E-mail: OHRCinfo@georgetown.edu
                                                                                          Website: http://www.mchoralhealth.org
                                                                                          Available from the website.

                                                                                          This report describes a project to increase access to oral health prevention and treatment services for children eligible for Medicaid and the State Children’s Health Insurance Program and other underserved children, including those with special health care needs. Topics include the development, implementation, and promotion of preventive oral health programs in school-based health centers; a restorative referral and case-management oral health program; and implementing the Massachusetts Oral Health Action Plan for children and adolescents with special health care needs. The report provides information on program accomplishments, program impact, and lessons learned. [Funded by the Maternal and Child Health Bureau]

                                                                                          Keywords: Oral health, Medicaid, Low income groups, Young children, Children with special health care needs, Health services delivery, State initiatives, Massachusetts, Final reports

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                                                                                          Aduss H, Richman LC, Sidoti E, Uhrich KS, Weatherley-White RCA, eds. 1996. The genetics of cleft lip and palate: Information for families. Chapel Hill, NC: Cleft Palate Foundation, 7 pp.

                                                                                          Cleft Palate Foundation
                                                                                          1504 East Franklin Street, Suite 102
                                                                                          Chapel Hill, NC 27514-2820

                                                                                          Telephone: (800) 242-5338
                                                                                          Secondary Telephone: (919) 933-9044
                                                                                          Fax: (919) 933-9604
                                                                                          E-mail: info@cleftline.org
                                                                                          Website: http://www.cleftline.org
                                                                                          $2.00; shipping and handling for 1-2 items $1.75, shipping and handling for 3-5 items $2.25.

                                                                                          This pamphlet gives information about the genetic factors affecting the incidence of cleft lips and palates. The pamphlet reviews the causes of clefts, risks of recurrence in other children in a family, and genetic counseling. The intended audience is parents of children with clefts.

                                                                                            Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Genetic counseling, Genetics, Educational materials, Children

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                                                                                            U.S. Office of Head Start. 2012. The Head Start child development and early learning framework: How do preschool programs support school readiness?. Washington, DC: U.S. Office of Head Start, 1 v.

                                                                                            Early Childhood Learning and Knowledge Center
                                                                                            U.S. Office of Head Start Telephone: (866) 763-6481
                                                                                            Website: http://eclkc.ohs.acf.hhs.gov/hslc
                                                                                            Available from the website.

                                                                                            This resource describes how the revised Head Start Child Development and Early Learning Framework aligns and builds from five domains of birth to five school readiness to identify critical areas of learning and development for children including dual language learners and children with special needs. A webcast provides an overview of the revisions; descriptions of the three new domains and their rationale; the relationship of the framework to program operations, planning, and quality improvement; and how the framework brings additional focus to school readiness for preschool children. Additional topics include school readiness goals and core strategies to promote school readiness. A video and transcript announcing the revised framework are also available.

                                                                                            Keywords: Infants, Young children, Families, Children with special health care needs, Head Start, School readiness, Language development, Community programs, Oral health

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                                                                                            U.S. Maternal and Child Health Bureau. 2009. The health and well-being of children: A portrait of states and the nation 2007. Rockville, MD: U.S. Maternal and Child Health Bureau, 109 pp.

                                                                                            U.S. Maternal and Child Health Bureau
                                                                                            Health Resources and Services Administration Parklawn Building, Room 18-05 5600 Fishers Lane
                                                                                            Rockville, MD 20857

                                                                                            Telephone: (301) 443-2170
                                                                                            Secondary Telephone: (800) 311-BABY (311-2229)
                                                                                            Website: http://www.mchb.hrsa.gov
                                                                                            Available from the website.

                                                                                            This chartbook presents indicators of children’s health and well-being as well as factors in family environments and aspects of neighborhoods that may support or threaten families and children. The content is based on data from the National Survey of Children’s Health. Contents include information on the oral health status of children on the national level and of subpopulations at particular risk for dental caries, such as children with special health care needs. Information on state-level analyses and on children’s use of preventive oral health services is also included.[Funded by the Maternal and Child Health Bureau]

                                                                                            Keywords: Children, Adolescents, National surveys, State surveys, Health insurance, Racial factors, Ethnic factors, Socioeconomic status, MCH research, Statistical data

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                                                                                            U.S. Maternal and Child Health Bureau. 2004-. The National Survey of Children With Special Health Care Needs: Chartbook 20_. Rockville, MD: U.S. Maternal and Child Health Bureau.

                                                                                            U.S. Maternal and Child Health Bureau
                                                                                            Health Resources and Services Administration Parklawn Building, Room 18-05 5600 Fishers Lane
                                                                                            Rockville, MD 20857

                                                                                            Telephone: (301) 443-2170
                                                                                            Secondary Telephone: (800) 311-BABY (311-2229)
                                                                                            Website: http://www.mchb.hrsa.gov
                                                                                            Available from the website.

                                                                                            This chartbook presents major findings from the 2009-2010 National Survey of Children with Special Health Care Needs (CSHCN). Contents include a description of the population of CSHCN, progress on indicators of core outcomes for the community-based system of services required for all CSHCN under Title V and Healthy People, and the impact that CSHCN have on their families. The authors present findings of the survey on the national level, stratifying each indicator by selected sociodemographic variables such as age, race/ethnicity, income level, and type of insurance. Findings for each state and the District of Columbia are also included. The chartbook concludes with a technical description of the survey methodology. [Funded by the Maternal and Child Health Bureau]

                                                                                            Keywords: Children with special health care needs, Families, Data, Prevalence, Access to health care, Health services, Family support, Surveys

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                                                                                            U.S. Maternal and Child Health Bureau. 2006. The oral health of children: A portrait of states and the nation 2005. Rockville, MD: U.S. Maternal and Child Health Bureau, 52 pp.

                                                                                            Altarum Institute
                                                                                            2000 Duke Street, Suite 200
                                                                                            Alexandria, VA 22134

                                                                                            Telephone: (703) 575-1200
                                                                                            Fax: (571) 733-5932
                                                                                            E-mail: http://www.altarum.org/contact
                                                                                            Website: http://www.altarum.org
                                                                                            Available from the web site.

                                                                                            This chartbook provides data on parents’ perceptions of their child’s or adolescent’s oral health needs. Topics include condition of teeth, problems with teeth, use of preventive care, receipt of all needed preventive care, and reasons for not receiving needed care. Survey findings for each state and the District of Columbia are included. These data are presented in comparison with national statistics. [Funded by the Maternal and Child Health Bureau]

                                                                                            Keywords: Oral health, Children, Adolescents, Access to health care, Health care utilization, Socioeconomic factors, Racial factors, Ethnic factors, National surveys, State surveys, Statistical data

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                                                                                            [Flanagan D]. 2011. The Wisconsin Community-Based System of Oral Health for Children and Youth with Special Health Care Needs: Wisconsin Special Smiles Program—Final report. Milwaukee, WI: Children's Hospital of Wisconsin, 7 pp.

                                                                                            National Maternal and Child Oral Health Resource Center
                                                                                            Georgetown University Box 571272
                                                                                            Washington, DC 20057-1272

                                                                                            Telephone: (202) 784-9771
                                                                                            Fax: (202) 784-9777
                                                                                            E-mail: OHRCinfo@georgetown.edu
                                                                                            Website: http://www.mchoralhealth.org
                                                                                            Available from the website.

                                                                                            This final report describes the Wisconsin Special Smiles Program from 2007 to 2011 to promote oral health as a part of total health for children and adolescents with special health care needs (CASHCN). Objectives include improving self-care and knowledge, including the creation of the parent-education toolkit; establishing an oral-health-case-management program and informing parents and caregivers about oral-health-care resources; offering services through regionally based public health dental hygienists; and offering training for oral health professionals who serve CASHCN. The report concludes with a summary of lessons learned and sustained activities. [Funded by the Maternal and Child Health Bureau]

                                                                                            Keywords: Oral health, Health services delivery, Children with special health care needs, Dental hygiene, State initiatives, Wisconsin, Final reports, Children

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                                                                                            Arc of Illinois, Family-to-Family Health Information and Education Center. 2012. Tools for schools: Related services and accommodations for children with special needs. Homewood, IL: Arc of Illinois, Family-to-Family Health Information and Education Center, 8 pp.

                                                                                            Arc of Illinois, Family to Family Health Information Center
                                                                                            20901 LaGrange Road, Suite 209
                                                                                            Frantfort, IL 60423

                                                                                            Telephone: (815) 464-8247
                                                                                            Secondary Telephone: (866) 931-1110
                                                                                            Fax: (815) 464-5292
                                                                                            E-mail: info@thearcofil.org
                                                                                            Website: http://familyvoicesillinois.org
                                                                                            Available from the website.

                                                                                            This document provides guidance for families with a child or adolescent with special health care needs about health examinations required for students entering kindergarten, fifth grade, and ninth grade, as well as for students enrolling in Illinois schools for the first time. Topics include transportation, toileting, and school lunch accommodations; administration of medications and medical treatments during the school day; therapies and adaptive equipment; and assistive technology. Resources on immunizations and health insurance are provided. The document is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

                                                                                            Keywords: School age children, Children with special health care needs, Adolescents with special health care needs, Health examinations, School readiness, Illinois, Spanish language materials

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                                                                                            White JA, Beltran ED, Perlman S. 2004. Training manual for standardized oral health screening (rev. ed.). Atlanta, GA: Centers for Disease Control and Prevention, National Center for Chronic Disease and Health Promotion, Oral Health Division, 42 pp.

                                                                                            Special Olympics, Healthy Athletes, Special Smiles
                                                                                            1133 19th Street, N.W.
                                                                                            Washington, DC 20036

                                                                                            Telephone: (202) 628-3630
                                                                                            Secondary Telephone: (800) 700-8585
                                                                                            Fax: (202) 824-0200
                                                                                            E-mail: spolk@specialolympics.org
                                                                                            Website: http://resources.specialolympics.org/Topics/Healthy_Athletes/Disciplines/Special_Smiles.aspx
                                                                                            Available from the website.

                                                                                            This manual provides guidelines for collecting consistent oral health data from athletes during Special Olympics, Healthy Athletes, Special Smiles screenings. The manual discusses the importance of data standardization and presents information for coordinators, screeners, and recorders. The Healthy Athletes Software System form, instructions for training sessions, practice tests, a data cover sheet, and contact information are also included.

                                                                                            Keywords: Oral health, Screening, Data collection, Children with special health care needs, Adolescents with special health care needs, Resources for professionals, Training materials, Manuals, Special health care services, Children, Adolescents

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                                                                                            New Mexico Department of Health. [2004]. Training modules for the developmentally disabled. Santa Fe, NM: New Mexico Department of Health, 1 v.

                                                                                            National Maternal and Child Oral Health Resource Center
                                                                                            Georgetown University Box 571272
                                                                                            Washington, DC 20057-1272

                                                                                            Telephone: (202) 784-9771
                                                                                            Fax: (202) 784-9777
                                                                                            E-mail: OHRCinfo@georgetown.edu
                                                                                            Website: http://www.mchoralhealth.org
                                                                                            Available for loan.

                                                                                            This home study module is part of a New Mexico program to create a network of skilled health professionals that provide oral health care to individuals with developmental disabilities (DD). Sections include an overview of providing care for individuals with DD, a curriculum for special needs certification, oral health quality evaluation criteria, examples of documents from networks, strategies to ensure that scheduled appointments are kept, individuals with DD oral health care network product lists, articles for review, and 12 training modules. A review of legal issues for treating individuals with DD is included. Samples forms and illustrations are included, as well.

                                                                                              Keywords: Children with special health care needs, Developmental disabilities, Dental care, Curricula, Educational materials, Certification, Special health care services, Resources for professionals, State programs, New Mexico, Oral health

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                                                                                              Austin H, Katz T, Shick E. 2011. Treating children with autism spectrum disorders: A tool kit for dental professionals. New York, NY: Autism Speaks Autism Treatment Network / Autism Intervention Research Network on Physical Health, 33 pp.

                                                                                              Autism Speaks
                                                                                              1 East 33rd Street, Fourth Floor
                                                                                              New York, NY 10016

                                                                                              Telephone: (212) 252-8584
                                                                                              Fax: (212) 252-8676
                                                                                              E-mail: contactus@autismspeaks.org
                                                                                              Website: http://www.autismspeaks.org
                                                                                              Available from the website.

                                                                                              This tool kit for oral health professionals provides general information about autism spectrum disorder (ASD) and specific information to help them meet the needs of children with ASD. The tool kit is meant to be used with the Dental Guide. Contents include suggestions to prepare a dental office for a visit by a child with an ASD, a sample intake questionnaire, and frequently asked questions. [Funded by the Maternal and Child Health Bureau]

                                                                                              Keywords: Autism, Dental care, Children, Special health care needs, Questionnaires, Resources for professionals

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                                                                                              National Conference of State Legislatures, Forum for State Health Policy Leadership. 1998. Unmet needs and special issues in children's health programs. Washington, DC: National Conference of State Legislatures, Forum for State Health Policy Leadership, 1 audio tape guide (21 pp), 1 audio tape (30:28 minutes).

                                                                                              National Conference of State Legislatures
                                                                                              7700 East First Place
                                                                                              Denver, CO 80230

                                                                                              Telephone: (303) 364-7700
                                                                                              Fax: (303) 364-7800
                                                                                              Website: http://www.ncsl.org
                                                                                              $20.00. Document Number: ISBN 1-55516-825-6.

                                                                                              This audiotape and accompanying guide help provide legislators and staff with an understanding of special populations and services for children with special health care needs (CSHCN). In the areas of oral health, mental health, and substance abuse, the audio tape and guide address the eligibility of the CSHCN population with regard to the State Children's Health Insurance Program (CHIP). The audio tape, entitled "Children's Unmet Needs and Special Issues, " is an edited recording of a March 1998 meeting in Nashville, Tennessee, of legislative staff, state agency officials, and national experts who discussed such questions as the actual number of CSHCN and the conditions affecting these special populations.

                                                                                                Keywords: Audio tapes, Conferences, Children with special health care needs, Oral health, Mental health, Substance abuse, State Children's Health Insurance Program

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                                                                                                Family Voices, IMPACT. 2012-. Updates and tips: Health and wellness themes [IMPACT on health and wellness for families]. Albuquerque, NM: Family Voices, IMPACT, multiple items.

                                                                                                Family Voices, IMPACT
                                                                                                3701 San Mateo Boulevard, N.E., Suite 103
                                                                                                Albuquerque, NM 87110

                                                                                                Telephone: (505) 872-4774
                                                                                                Secondary Telephone: (888) 835-5669
                                                                                                Fax: (505) 872-4780
                                                                                                Website: http://www.fv-impact.org
                                                                                                Available from the website.

                                                                                                These resources for families provide tips and updates on key health and wellness themes including family support, child development, mental health, healthy weight, healthy food and eating, physical activity, oral health, healthy sexual development and sexuality, safety and injury prevention, and community relationships and resources.

                                                                                                Keywords: Families, Child health, Caregiving, Family centered care, Special health care needs

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                                                                                                Utah Department of Health, Oral Health Program. 2006. Utah children with special health care needs oral health forum: Final report. [Salt Lake City, UT]: Utah Department of Health, Oral Health Program, 13 pp.

                                                                                                National Maternal and Child Oral Health Resource Center
                                                                                                Georgetown University Box 571272
                                                                                                Washington, DC 20057-1272

                                                                                                Telephone: (202) 784-9771
                                                                                                Fax: (202) 784-9777
                                                                                                E-mail: OHRCinfo@georgetown.edu
                                                                                                Website: http://www.mchoralhealth.org
                                                                                                Available from the website.

                                                                                                This report summarizes a statewide forum, held on September 29, 2006, to address oral health issues for children with special health care needs in Utah and to plan ways to address these issues. Report contents include a description of the purpose of the forum, the planning process, pre-forum surveys, a list of invitees and participants, a summary of discussions, a budget outline, potential barriers and needed resources, and conclusions. A copy of the forum agenda is provided, along with a planning matrix. [Funded in part by the Maternal and Child Health Bureau]

                                                                                                Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Utah

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                                                                                                Virginia Department of Health, Division of Dental Health. [2011]. Virginia dental directory for individuals with special health care needs and young children. Richmond, VA: Virginia Department of Health, Division of Dental Health.

                                                                                                Virginia Department of Health, Division of Dental Health
                                                                                                109 Governor Street, Eighth Floor
                                                                                                Richmond, VA 23219

                                                                                                Telephone: (804) 864-7775
                                                                                                Fax: (804) 864-7783
                                                                                                Website: http://www.vdh.virginia.gov/ofhs/childandfamily/dental
                                                                                                Available from the website.

                                                                                                This directory comprises a network of dentists licensed in Virginia to whom professionals and consumers may refer individuals with special health care needs for oral health care. The directory may be searched using a single special health care need, a dentist’s last name, an office location, or a combination of search criteria. Dentists practicing in Virginia can complete the registration form to be included in the directory. [Funded by the Maternal and Child Health Bureau]

                                                                                                Keywords: Oral health, Children with special health care needs, Dentists, Dental care, Directories, Virginia, Children

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                                                                                                Virginia Department of Health, Division of Dental Health. 2009. Visiting the dentist: Children with special health care needs. Richmond, VA: Virginia Department of Health, Division of Dental Health, 2 pp.

                                                                                                Virginia Department of Health, Division of Dental Health
                                                                                                109 Governor Street, Eighth Floor
                                                                                                Richmond, VA 23219

                                                                                                Telephone: (804) 864-7775
                                                                                                Fax: (804) 864-7783
                                                                                                Website: http://www.vdh.virginia.gov/ofhs/childandfamily/dental
                                                                                                Available from the website.

                                                                                                This brochure provides information for parents of children with special health care needs. It describes what to expect at the first dental visit, oral hygiene, common dental treatments and positioning at the dental office, establishing a dental home, and how to find an oral health professional. [Funded by the Maternal and Child Health Bureau]

                                                                                                Keywords: Oral health, Children with special health care needs, Educational materials, Children

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                                                                                                Washington State Department of Health, MCH Oral Health Program. 2006. Washington State collaborative action plan on oral health access for special populations. [Olympia, WA]: Washington State Department of Health, MCH Oral Health Program, 55 pp.

                                                                                                Association of State and Territorial Dental Directors
                                                                                                3858 Cashill Boulevard
                                                                                                Reno, NV 89509

                                                                                                Telephone: (775) 626-5008
                                                                                                Fax: (775) 626-9268
                                                                                                E-mail: info@astdd.org
                                                                                                Website: http://www.astdd.org
                                                                                                Available from the website.

                                                                                                This report presents a statewide collaborative action plan to improve the oral health of children with special health care needs (CSHCN) and individuals with disabilities in Washington. The plan was developed during an oral health forum held on September 27, 2006, in Federal Way, Washington. The action plan outlines background information; summarizes the forum-planning process, implementation, and follow-up activities; and presents recommendations, stakeholders, and a project timeline. The appendix contains a summary of public, professional, and system issues related to the oral health of CSHCN; the forum participant list and agenda; a description of the forum discussion groups; a summary of feedback from the discussion groups and follow-up conference calls; a data brief; and a budget. [Funded by the Maternal and Child Health Bureau]

                                                                                                Keywords: Oral health, Children with special health care needs, Access to health care, Prevention services, Health education, Collaboration, Provider participation, Statewide planning, Washington, Children

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                                                                                                Southeastern Society of Pediatric Dentistry. 2000. Why children's oral health really matters. Journal of the Southeastern Society of Pediatric Dentistry 6(2):7-34.

                                                                                                National Maternal and Child Oral Health Resource Center
                                                                                                Georgetown University Box 571272
                                                                                                Washington, DC 20057-1272

                                                                                                Telephone: (202) 784-9771
                                                                                                Fax: (202) 784-9777
                                                                                                E-mail: OHRCinfo@georgetown.edu
                                                                                                Website: http://www.mchoralhealth.org
                                                                                                Available for loan.

                                                                                                This special issue of the Journal of the Southeastern Society of Pediatric Dentistry addresses the question of why oral health and oral health care truly matter to children and their families. The issue includes articles on the impact of poor oral health on children's ability to function, dental caries and its association with growth, early caries as a risk factor for lifelong oral disease, oral health care for children with special health care needs, preparing undergraduate students to treat children with severe oral disease, and other topics. Some of the articles include photographs or figures.

                                                                                                  Keywords: Oral health, Dental care, Child health, Dental caries, Early childhood caries, Children with special health care needs, Child development, Dental education

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                                                                                                  National Maternal and Child Oral Health Resource Center Georgetown University