All Records Tagged: Children with Special Health Care Needs

Data Resource Center for Child and Adolescent Health
Child and Adolescent Health Measurement Initiative Oregon Health and Science University School of Medicine 707 S.W. Gaines Road, Mail Code CDRCP
Portland, OR 97239-2998

Telephone: (503) 494-1930
E-mail: cahmi@ohsu.edu
Website: http://www.childhealthdata.org
Available from the website.

This document demonstrates how the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN) can be used to establish a baseline and monitor improvement in child and adolescent health and well-being. Contents include a series of charts listing Healthy People 2020 objectives and related NSCH and NS-CSHCN measures and indicators. [Funded by the Maternal and Child Health Bureau]

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Keywords: Healthy People 2020, National surveys, Survey data, Child health, Children with special health care needs, Comparative analysis, Measures, Oral health, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This document outlines the goals and objectives of the oral health action plan created at the oral health forums for children with special health care needs held on September 28, 2006, in Newton, Massachusetts, and on September 29, 2006, in Holyoke, Massachusetts. Topics include the relationship between goals and national programs of significance, strategies, tools, activities, timetable of action items, outcome measures, collaborators, and comments and notes. A companion document, Massachusetts State/Territorial Oral Health Forums for Children with Special Health Care Needs Leading to an Action Plan, is available. [Funded in part by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, Conferences, State initiatives, Massachusetts

Indiana State Department of Health
2 North Meridian Street
Indianapolis, IN 46204

Telephone: (317) 233-1325
Contact Phone: (317) 233-7192
Website: http://www.in.gov/isdh/
$6.00, prepayment by check or money order only.

This videotape is designed to help caregivers prioritize and become competent in routine oral hygiene for people with disabilities. There are vignettes with people with disabilities across the lifecycle, their families, and health care providers to illustrate different perspectives on oral health care. Three chapters explain and demonstrate (1) use of universal procedures to avoid cross-contamination, (2) assessment of oral health status, and (3) oral hygiene techniques. Topics include proper brushing, flossing, denture care, toothbrush storage, referrals to dental professionals, importance of routine examinations, responsibilities of care facilities, discerning oral pain in uncommunicative patients, and the importance of developing a program for daily oral hygiene.

Keywords: Oral health, Dental care, Dental hygiene, Special health care needs, Special health care services, Consumer education materials, Videotapes, Audiovisual materials

Special Olympics, Healthy Athletes, Special Smiles
1133 19th Street, N.W.
Washington, DC 20036

Telephone: (202) 628-3630
Fax: (202) 824-0200
E-mail: spolk@specialolympics.org
Website: http://resources.specialolympics.org/Sections/Healthy_Athletes_Resources.aspx
Available from the website.

This guide presents information for caregivers on helping individuals with special health care needs practice behaviors for maintaining optimal oral health. Instructions for toothbrushing, mouthrinsing, and flossing are provided, including adaptations for meeting the needs of individuals with various cognitive and physical abilities. Common oral health problems are also addressed.

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Keywords: Children with special health care needs, Dental hygiene, Oral health, Prevention, Development, Infants, Adults, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Contact for cost information.

This guide, for health professionals who treat individuals with special health care needs, focuses on providing the best possible caries prevention using fluoride. The first two sections of the guide contain specific recommendations for using fluoride for individual patients and for groups of patients in an institutional setting. The third section is a desk reference of selected fluoride products that are commercially available. Section four offers a rationale for fluoride therapy and describes different techniques for delivering fluoride, such as systemic, operator applied, and self-applied fluoride use. An appendix contains consent forms and sample prescriptions. The guide includes figures and tables as well as text.

Keywords: Fluorides, Oral health, Disease prevention, Children with special health care needs, Dental care, Consent, Health recommendations

Virginia Department of Health, Division of Dental Health
109 Governor Street, Ninth Floor
Richmond, VA 23219

Telephone: (804) 864-7784
Fax: (804) 864-7783
Website: http://www.vahealth.org/dental
Available from the website.

This brochure provides information on oral hygiene for young children with special health care needs. Topics include increased oral disease risks for this population; the importance of prevention; partnering with oral health and medical professionals; brushing, flossing, and use of fluoride; and the importance of establishing a dental home. [Funded by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special health care needs, Dental hygiene, Educational materials, Children

American Academy of Pediatric Dentistry
211 East Chicago Avenue, Suite 1700
Chicago, IL 60611-2637

Telephone: (312) 337-2169
Fax: (312) 337-6329
Website: http://www.aapd.org
Available from the website.

This press kit includes story ideas addressing common pediatric oral health issues. Topics include oral health care for infants, children, and adolescents; cosmetic and restorative dentistry; behavior guidance; diet and oral health; fluoride; how to select a dentist; care for the preschooler; dental sealants; assessment of children at risk for dental caries; oral health care for individuals with special health care needs; sports safety; and oral health emergencies.

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Keywords: Oral health, Infants, Children, Adolescents, Mass media, Health promotion, Resources for professionals

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This set of two DVDs is designed for use by oral health professionals in providing care for individuals with autism spectrum disorders (ASD). One DVD contains an audiovisual presentation of a pre-conference symposium on providing oral health care for individuals with ASD, conducted as part of the XVII International Congress on Disability and Oral Health, held in August 2004 in Banff, Alberta, Canada. The second DVD contains an audiovisual presentation of information and techniques from the D-Termined Program, which encourages oral health professionals to use repetitive tasking and familiarization to meet the needs of individuals with ASD in their practice.

Keywords: Dental care, Oral health, Health services delivery, Autism, Resources for professionals, DVDs, Audiovisual materials

Michigan Department of Community Health, Oral Health Program
Capitol View Building 201 Townsend Street
Lansing, MI 48913

Telephone: (517) 335-8879
Fax: (517) 335-8294
E-mail: oralhealth@michigan.gov
Website: http://www.michigan.gov/mdch/0,1607,7-132-2942_4911_4912_6226---,00.html
Available from the website.

This document describes adopted revisions to the accreditation standards for Michigan oral health professionals' training and education in treating clients with special needs. It describes requirements for students in programs in dental hygiene, dental education, and advanced education in general practice residency. Information is provided on curriculum development.

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Keywords: Oral health, Dental education, Special health care needs, Dental care, Disabilities, Professional training, Curriculum development, State initiatives, Michigan

Kaiser Commission on Medicaid and the Uninsured
1330 G Street, N.W.
Washington, DC 20005

Telephone: (202) 347-5270
Fax: (202) 347-5274
E-mail: http://www.kff.org/about/contact.cfm
Website: http://www.kff.org/about/kcmu.cfm
Available from the website.

This issue paper discusses the challenges and implications for young adults with disabilities when they lose their eligibility for Early and Periodic Screening, Diagnosis, and Treatment program benefits. The brief discusses difficulties in qualifying for Medicaid and the reduced benefits for those who do qualify. The brief also discusses how changes to the Deficit Reduction Act give states an opportunity to increase the availability of Medicaid services that allow young adults with disabilities to lead lives that are as normal as possible as they move into adulthood. Individual case stories are highlighted.

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Keywords: Adolescents with special health care needs, Transition, Young adults, EPSDT, Medicaid, Access to health care, Health insurance, Health services, Health care financing, Federal programs, Oral Health, Adolescents

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes a 2007 to 2011 oral health program in Alaska to provide additional access to preventive services to pregnant women, infants, and children, including those with special health care needs, as well as to pilot a school-based dental sealant program. The report is organized into objectives and goals with a brief summary of activities in each year of the program. Also included is an overview of future oral health program activities and evaluation results. [Funded by the Maternal and Child Health Bureau]

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Keywords: Oral health, Pregnant women, Infants, Young children, Children with special health care needs, Health services delivery, Low income groups, State initiatives, Alaska, Final reports

LEND Center at the University of Pittsburgh
Children's Hospital Office Building 3414 Fifth Avenue, Second Floor
Pittsburgh, PA 15213-2583

Telephone: (412) 692-6538
Secondary Telephone: (412) 692-6300
Fax: (412) 692-7428
E-mail: uclid@pitt.edu
Contact E-mail: rob.oliver@chp.edu
Website: http://www.uclid.org
Available from the website.

This tutorial is designed to help non-oral-health professionals who work with infants and young children and children with special health care needs identify early signs of early childhood caries (ECC), differentiate between ECC and other oral health problems, counsel families about prevention, and refer children with dental caries to a dentist.

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Keywords: Oral health, Child health, Infant health, Children with special health care needs, Early childhood caries, Prevention, Referral, Families, Dental education, Distance education, Young children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes the oral health forum held on July 21, 2006, in Columbia, Missouri, for children with special health care needs. Report contents include an overview of the planning process, a summary of the forum discussions, an outline of the forum evaluation comments, budget information, and notes on potential barriers to implementing the action plan. The action plan is attached as a chart outlining steps, goals, needs, activities, timelines, outcomes, partners, and implementation notes. Also attached is the forum agenda, a participant list, and discussion group outlines. [Funded in part by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Missouri

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This brief reports on the efforts leading to an action plan for children with special health care needs (CSHCN) in South Carolina. Topics include overviews of activities since 2006; the 'Building Bridges for Better Oral Health" forum held on June 1-2, 2006, in Columbia, South Carolina; workgroup sessions on creating the action plan; and barriers found in implementing the CSHCN Action Plan. [Funded by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special health care needs, Strategic plans, Barriers, South Carolina, State initiatives, Children

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report describes states’ efforts in conducting forums and developing action plans to promote the oral health of children with special health care needs. Topics include the project’s purpose and objectives, follow-up activities, case studies, technical assistance, information dissemination, and advocacy. [Funded by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special healthcare needs, State initiatives, Program planning, Case studies, Advocacy, Children

Agenda for Children
P.O. Box 51837
New Orleans, LA 70151

Telephone: (800) 486-1712
Secondary Telephone: (504) 586-8509
Fax: (504) 586-8522
E-mail: information@agendaforchildren.org
Website: http://www.agendaforchildren.org
Available from the website.

This report documents the importance of good oral health for children and highlights some of the barriers that children and families face when trying to access oral health services in Louisiana. Focus areas include prevention, provider participation in Medicaid/LaCHIP, dentists' availability, community education, and children with special health care needs. A summary table outlines the focus areas and offers recommendations for addressing access barriers statewide.

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Keywords: Oral health, Access to health care, Provider participation, Louisiana, Underserved populations, Children with special health care needs, Barriers, State children's health insurance programs, Medicaid, State programs, Infant, Children, Adolescents, Families

University of Nebraska Medical Center, College of Dentistry
40th & Holdrege Street Box 830740
Lincoln, NE 68583-0740

Telephone: (402) 472-1301
Website: http://www.unmc.edu/dentistry
Single copies available at no charge.

This DVD provides instruction for parents and other caregivers on how to clean the teeth and tongue of a child with special health care needs. The content is presented in three parts. The first part (about 20 minutes) shows caregivers providing oral hygiene care to children. The second part (about 10 minutes) demonstrates oral hygiene products (toothbrushes, flossing devices, tongue scrapers, and mouth props) and shows correct hygiene technique. The third part (about 20 minutes) is a slide show that includes information on common oral conditions, oral hygiene techniques, alternate positions for oral hygiene, the use of adaptive aids, and other tips.

Keywords: Oral health, Children with special health care needs, Dental hygiene, Dental care, Health education, DVDs, Educational materials

This paper addresses access to health care from an ethical perspective. The author presents a case study of a child with special health needs denied standards of care for his condition by a primary care pediatrician with decision making authority in a managed care environment. The second part of the paper examines allocation of health resources to children as a part of public policy.

Keywords: Managed care, Ethics, Health insurance, Resource allocation, Chronic illnesses and disabilities, Children with special health care needs, Decision making, Craniofacial abnormalities, Primary care, Standards, Patient care teams, Multidisciplinary teams, Pediatrics

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report presents a brief history of the adverse impact of legislative changes on the delivery of oral health care to individuals eligible for Medicaid in Oklahoma and recent (2002-2006) state and local initiatives to address oral health disparities, with an emphasis on the oral health forum on children with special health care needs held on August 25, 2006, in Oklahoma City, Oklahoma. Contents include a summary of the forum planning process, a list of the invitees and participants, panel presentation summaries, the action plan, and a discussion of potential barriers and additional resources. Tables containing state and national statistics on the percentage of children with special health care needs by age, gender, family income, and race and ethnicity as presented during the forum are provided. Tables containing indicators of child health and well-being are also presented. The forum agenda, e-card, registration form, attendance list, evaluation summary, and financial report are included as exhibits. [Funded in part by the Maternal and Child Health Bureau]

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Keywords: Oral health, Children with special health care needs, State initiatives, Access to health care, Statistical data, Conferences, Oklahoma

Brookes Publishing
P.O. Box 10624
Baltimore, MD 21285-0624

Telephone: (800) 638-3775
Secondary Telephone: (410) 337-9580
Fax: (410) 337-8539
E-mail: custserv@brookespublishing.com
Website: http://www.pbrookes.com
$69.95, plus shipping and handling.

Written primarily for a health care audience (special educators, physical therapists, occupational therapists, speech and language pathologists, social workers, child life specialists) and health care students, this book has found an additional audience in parents and in others who work with families of children with special health needs. Information on a wide range of topics is covered: heredity, birth defects, normal fetal growth and development, labor and delivery, premature birth, nutrition, oral health, brain and nervous system, bones and muscles, and normal and abnormal development. Additional chapters cover specific problems of substance abuse during fetal development, vision, hearing, speech and language, autism, attention deficit disorder and hyperactivity, learning disabilities, cerebral palsy, neural tube defects, epilepsy. and traumatic brain injury. The final chapters discuss interventions, how families cope with a child with special needs; special education services, promoting adaptive behavior, technological assistance, rehabilitation and exercise, ethical dilemmas, family-centered services, transition issues, and health care delivery systems and financing issues. Appendices include a glossary, a brief description of certain syndromes, a list of commonly used medications, and a list of resources for children with disabilities. An index concludes the book. Illustrations to supplement the narrative are provided in numerous tables and figures.

Keywords: Children with special health care needs, Fetal development, Child health, Developmental stages, Chronic illnesses and disabilities, Congenital abnormalities, Autism, Attention deficit disorder, Hyperactivity, Learning disabilities, Cerebral palsy, Epilepsy, Interventions, Transitions, Family centered services

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report describes a forum held on February 23, 2007, in Anchorage, Alaska, to discuss the oral health service needs of children with special health care needs (CSHCN). Contents include a summary of the sessions; the priority areas and actions plans relating to financial issues; access to dental services; and education of parents, caregivers and providers. In addition, notes are also included from the discussion session to brainstorm on preventive services, surveillance, provision of dental services, dental workforce and training issues, and potential solutions. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Meetings, Strategic plans, Alaska, State initiatives, Oral health, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This participant folder contains materials from the oral health forum held on May 22, 2007, in Washington, DC, to address children with special health care needs (CSHCN). Contents include the forum agenda, printed presentation slides, a fact sheet from the National Survey of Children with Special Health Care Needs for DC, a publication focusing on the South Carolina program for CSHCN, a list of facilitator biographies, a conference evaluation form, a list of participants, fact sheets from the National Maternal and Child Oral Health Resource Center, and a print copy of the Maternal and Child Health Bureau Web pages on Achieving and Measuring Success: A National Agenda for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Conferences, District of Columbia

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This brief reports on two 2007 meetings to improve access to oral health care in children with special health care needs with a focus on improvements to the Medicaid/ Denali KidCare program in Alaska. Contents include a meeting summary, an overview of recommendations and priorities, and strategies for the state oral health plan and next steps. Budget expenditures are also summarized. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Strategic plans, Meetings, Alaska, State initiatives

Children's Dental Health Project
1020 19th Street, N.W., Suite 400
Washington, DC 20036

Telephone: (202) 833-8288
Fax: (202) 331-1432
E-mail: cdhpinfo@cdhp.org
Website: http://www.cdhp.org
Available from the website.

This paper describes the current state of oral health care for children with special health care needs in the United States and provides background information on the evolution of the health care system currently available to these children and their families. The paper includes a scorecard indicating how well the system is addressing Healthy People 2010 oral health objectives and describing major issues and obstacles impeding improvement. Additionally, the paper presents recommendations for changes in financing and professional education and provides extensive references. Tables throughout the paper outline problems identified by children and their families, potential roles for health professionals in improving the system, and desirable characteristics of a family-centered oral health care system for children and their families.

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Keywords: Children with special health care needs, Dental care, Oral health, Healthy People 2010, National surveys, Service delivery systems, Program descriptions, Program improvement, Access to health care, Barriers, Children, Families, Parents

Minnesota Department of Health, Maternal and Child Health Section
P.O. Box 64882 85 East Seventh Place, Suite 400
St. Paul, MN 55164-0882

Telephone: (651) 201-3760
Website: http://www.health.state.mn.us/divs/fh/mch/
Available from the website.

This fact sheet outlines the oral health and oral-health-related service needs of children and adolescents with special health care needs (SHCN) in Minnesota, a chosen priority issue for the 2005 Title V Block Grant needs assessment reporting requirement. Topics include the magnitude and seriousness of the problem, interventions to increase awareness of oral health among caregivers of children and adolescents with SHCN, interventions to improve the capacity of oral health professionals to care for children and adolescents with SHCN, and state efforts to eliminate oral health disparities and improve oral health and access to care for children and adolescents with SHCN. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Oral health, Access to health care, Barriers, Health insurance, Statistics, State surveys, Minnesota, Needs assessment

This brochure presents basic information for the general public about cleft lip and cleft palate. It covers the causes, treatment, special problems associated with clefts, feeding concerns, ear problems, and how speech is affected.

Keywords: Oral health, Children, Cleft lip, Cleft palate, Patient education materials

Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820

Telephone: (800) 242-5338
Secondary Telephone: (919) 933-9044
Fax: (919) 933-9604
E-mail: info@cleftline.org
Website: http://www.cleftline.org
Price unknown.

The purpose of this booklet is to provide answers for the questions of parents about what can be done to help their baby with a cleft and lessen parental concerns about the future. The information has been prepared by health care professionals who are members of the American Cleft Palate - Craniofacial Association and by lay persons who are members of parent-patient support groups. Much of the information in this booklet is based on interactions with parents. The information in the booklet will help parents know how to care for their their baby and is presented in the general order in which parents may need to cope with various situations. A glossary at the end of the booklet defines certain words parents may read or hear. Words in the glossary are bolded when they first appear in the booklet.

Keywords: Oral health, Infants, Cleft lip, Cleft palate, Parent education

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605

Telephone: (914) 997-4488
Secondary Telephone:
E-mail:
Website: http://www.marchofdimes.com
This edition out of print; new edition available from MOD. Document Number: HRSA Info. Ctr. MCHB110.

This fact sheet presents an introductory overview of cleft lip and palate. It covers the causes, the future of the child with this disability, special problems associated with clefts, feeding concerns, ear problems, and how speech is affected. Places for further information are listed in conclusion.

Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities

Anne Dolan, Mail Stop CM-09
Children's Hospital and Regional Medical Center
4800 Sand Point Way, N.E., P.O. Box 5371
Seattle, WA 98105

Telephone: (206) 987-2000
Secondary Telephone: (206) 987-2280
Website: http://www.seattlechildrens.org
$5.00 includes shipping and handling.

This report and accompanying five charts provide information on the stages of care and treatment from birth through age 21 for children and adolescents with cleft lips or palates. Appendices include standards of care, prenatal diagnosis, feeding, pediatrics, developmental issues, genetics, plastic surgery, hearing and speech problems, orthodontics, and dental care.

Keywords: Cleft lip, Cleft palate, Children, Adolescents, Standards

Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820

Telephone: (800) 242-5338
Secondary Telephone: (919) 933-9044
Fax: (919) 933-9604
E-mail: info@cleftline.org
Website: http://www.cleftline.org
Single copies available at no charge.

This pamphlet provides information on how to achieve the best possible appearance and speech for school-age children with cleft lip or cleft palate. Information on surgery, speech therapy, and orthodontia is presented, together with suggestions for helping to create a good school experience for children with cleft lip or cleft palate. This section covers the importance of protecting a child's hearing (especially for children with cleft palate, who are at greater risk for hearing problems), dealing with learning problems, and handling teasing. Advice for teachers of children with cleft lip or cleft palate is included.

Keywords: Oral health, School age children, Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, School adjustment

U.S. Government Printing Office
732 North Capitol Street, N.W.
Washington, DC 20401

Telephone: (202) 512-1800
Secondary Telephone: (866) 512-1800
Fax: (202) 512-2104
E-mail: contactcenter@gpo.gov
Website: http://www.gpo.gov
Available from the website.

This conference report identifies priority goals and action steps set forth by the mental retardation (MR) community at the national conference held December 5–6, 2001, in Washington, DC. The goals and action steps are described as follows: (1) integrate health promotion into community environments of individuals with MR; (2) increase knowledge and understanding of health and MR, ensuring that knowledge is made practical and easy to use; (3) improve the quality of health care for individuals with MR; (4) train health professionals in the care of adults and children with MR; (5) ensure that health care financing produces good health outcomes for adults and children with MR; and (6) increase sources of health care services for children, adolescents, and adults with MR, ensuring that they can easily access services. The report also includes six appendices covering the conference plenary sessions, a list of participants, a list of potential partners, a description of programs and strategies to close the health disparities gap for those with MR, a summary of the Surgeon General's listening session, and a list of speakers at the listening session. Appendix D, Section C describes oral health programs.

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Keywords: Mental retardation, Health promotion, Program descriptions, Federal initiatives, Special health care needs, Special health care services, Health care delivery, Access to health care, Quality assurance, Health care financing, Conferences, Oral health, Children, Adolescents, Adults

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes a Colorado oral health project to increase the number of children with a dental home by addressing three areas: (1) increasing the number of dental visits by age 1 for children at highest risk for oral disease, (2) improving access to oral health services for children with special health care needs through the medical home approach, and (3) expanding access to restorative care through school-based dental sealant programs. Contents include a summary of each goal, with activities listed. [Funded by the Maternal and Child Health Bureau]

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Keywords: Oral health, Young children, School age children, Children with special health care needs, Access to health care, Medical home, State initiatives, Colorado, Final reports

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available at no charge (limit 50 copies, order online at https://www.nidcr.nih.gov/OrderPublications/default.aspx); also available from the website. Document Number: NIH Pub. No. 09-5196.

This continuing education activity for oral health professionals reviews health challenges and oral health problems among individuals with mild or moderate developmental disabilities and provides strategies for care in the general practice setting. The physical, behavioral, and mental challenges and the oral health problems associated with developmental disabilities are discussed. Users must successfully complete a post-test to obtain 2 hours of continuing education credit to fulfill most states' requirements for license renewal. There is no fee for the activity.

• Booklet
• Test

Keywords: Oral health, Dental care, Developmental disabilities, Health services delivery, Professional training, Continuing education, Educational materials, Families

Special Care Dentistry Association
401 North Michigan Avenue
Chicago, IL 60611

Telephone: (312) 527-6764
Fax: (312) 673-6663
E-mail: SCD@SCDonline.org
Website: http://www.SCDonline.org
Available from the website.

This special supplement of Special Care in Dentistry was prepared for the Dental Care Considerations of Disadvantaged and Special Care Populations Conference held on April 18–19, 2001, in Baltimore, Maryland. The articles focus on impediments to meeting oral health care needs among individuals with special health care needs. Topics include oral health and oral health care access challenges, demographics, maintaining oral health, and approaches to improving oral health and access to oral health care.

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Keywords: Dental care, Access to health care, Oral health, Special health care needs, Special health care services, Barriers, Young children, Adults, Disabilities, Older adults, Health insurance, Provider participation

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available at no charge (limit 50 copies); also available from the website. Document Number: NIH Pub. No. 12-5191.

This booklet for caregivers offers instruction on daily oral hygiene techniques for individuals with developmental disabilities. The booklet provides information and tips on toothbrushing and flossing, such as how to make a toothbrush easier to hold and where to stand or sit while brushing. Additional topics include the importance of regular dental visits and the caregiver’s role in preparing for dental visits.

• Materials
• Online Order Form

Keywords: Oral health, Adults, Dental care, Dental hygiene, Flossing, Educational materials, Developmental disabilities

Pediatric Adolescent Gastroesophageal Reflux Association
P.O. Box 7728
Silver Spring, MD 20907-7728

Telephone: (301) 601-9541
Secondary Telephone:
E-mail: gergroup@aol.com
Website: http://www.reflux.org
Available from the website.

This brochure for parents outlines special concerns for for the oral health of children with acid reflux. It discusses tooth decay, the effects of stomach acids in the esophagus and mouth, and the importance of talking with health care and dental professionals.

• PDF

Keywords: Oral health, Child health, Dental caries, Vomiting, Educational materials, children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge. Document Number: NTIS PB93-152908.

This project sought to improve the oral health of children with disabilites by enhancing the abilities of private dental offices, of MCH primary care dental programs, and of community hospitals to care for this group. Strategies included training of care providers, developing educational materials on preventive home care for parents, a dental resource guide, and a statewide regional dental coordinator system. Networking between individuals and agencies at central and regional levels to achieve maximal use of private and public dental resources was also part of the plan. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Dental, Children with special health care needs, Dentists, Dental hygienists, Training

Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223

Telephone: (800) 332-1000
Secondary Telephone: (866) 748-8008
Fax: (301) 577-2684
E-mail: info@efa.org
Website: http://www.epilepsyfoundation.org
Available from the website.

This pamphlet provides information about maintaining oral health in people who take antiepileptic medications. Topics include seeking medical attention for oral injuries such as those resulting from a fall during a seizure, drugs associated with oral health problems, and the role of routine oral hygiene and dental visits in preventing tooth decay. Tips for eating right and limiting snacks, brushing and flossing, using a disclosing agent, visiting the dentist regularly, and getting more information are included.

• PDF

Keywords: Oral health, Epilepsy, Dental hygiene, Dental care, Medications, Educational materials, Adults

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This manual is designed to offer the dentist basic information about current concepts in the dental management of the developmentally disabled person. Topics covered include professional attitudes, family participation, use of the clinical laboratory, premedication, sedation, hospital management, nutrition, role of the dental hygienist, management of periodontal disease, orthodontic considerations and office accessibility and environment. Also included is a review of major types of disabilities with a discussion of dental considerations. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This set of six VHS videotapes or four DVDs provides instruction in the following areas of oral health management for persons with special health needs:1) oral health education for persons with special needs; 2) application of pit and fissure sealants; 3) premedication for persons with special needs; 4) intravenous sedation for the patient with special needs; 5) hospital management; 6) hospital dentistry. Tape number 1 and DVD number 1 includes an overview, infection control, a guide to toothbrushing and flossing, and a guide to positioning. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Audiovisual materials, Videotapes, DVDs

Community-Campus Partnerships for Health
University of Washington Box 354809
Seattle, WA 98195-4809

Telephone: (206) 666-3406
E-mail: ccphuw@u.washington.edu
Website: http://www.ccph.info
Available from the website.

This report reviews calendar years 2004, 2005, and 2006 accomplishments and strategies for delivering oral health care to people living with HIV by grantees funded under the Health Resources and Services Administration’s Ryan White HIV/AIDS Program. Contents include filling gaps in HIV oral health care, partnership activities, state program profiles, and tools. Contacts and program requirements are included.

• PDF

Keywords: Oral health, HIV, AIDS, Health services delivery, Barriers, Public private partnerships, State programs, Health services delivery

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Contact for cost information.

This guide is an information and referral source for people who are involved in coordinating community-based oral services for developmentally disabled, elderly, and persons with low income. It is divided into two sections: (1) a directory of dentists and health facilities that treat these populations, transportation services available to these groups, and area offices of state human service agencies providing case management services; and (2) a listing of programs which provide services that increase access to dental care for these individuals.

Keywords: Oral health, Children with special health care needs, Access to health care, Low income groups, Older adults

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report addresses unique aspects of the District of Columbia Oral Health Initiative, a program that provides comprehensive oral health services for children with special health care needs (CSHCN) in two public schools. Topics include treatment guidelines for oral health services for children with special health care needs, Medicaid coverage for services and school-based health centers, managed care and examples of different reimbursement systems for CSHCN, and Medicaid coverage of special services. Three appendices provide case study information on programs in New Mexico and New York.

• PDF

Keywords: Oral health, Dental care, Children with special health care needs, Medicaid, Reimbursement, School based clinics, District of Columbia, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This manual offers a practical guide and information for those planning to institute oral care programs for persons with special needs in a variety of special settings. The manual takes into account important health issues pertaining to the transmission of disease and infection control, problems of major relevance to oral care programs for developmentally disabled and immunocompromised populations. The use of new preventive agents and methods for the control of dental disease are also discussed. The appendix includes forms for oral health screening and a quarterly oral health review, a toothbrushing skills checklist, and a listing of pamphlets and training aids. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Dental caries, Periodontal disease, Nutrition, Child health, Dental care, Children with special health care needs

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This training and reference guide describes programs that have been used by Tufts Dental Facilities for the Handicapped and Boston University Special Needs Dental Program in Massachusetts. An attempt has been made to make this text technical enough to provide accurate and up-to-date information, but understandable to parents, staff, and health care workers. Sections 2, 3, and 4 address specific issues for institutions, community programs, and parents. Sections 1 and 5 contain dental information that should be available to all persons providing daily oral care to special needs persons. Pamphlets and training aids are listed and annotated in the appendix. [Funded by the Maternal and Child Health Bureau]

Keywords: Dental care, Nutrition, Child health, Health education, Oral health, Children with special health care needs

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This CD-ROM contains a multimedia continuing education course for health professionals. The course, which is designed to improve the quality of and access to preventive primary and specialty medical care for individuals with developmental disabilities, addresses early identification and preventive care for individuals from birth through age 21. Topics include oral health, nutrition, mental health, communication, and sensorimotor therapy. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Continuing education, Children with special health care needs, Children with developmental disabilities, Early intervention, Preventive health services, Resources for professionals, CD-ROMs

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available at no charge (limit 50 copies, order online at http://www.nidcr.nih.gov/HealthInformation/OrderPublications.htm); also available from the website. Document Number: NIH Pub. No. 10-3174 (EN), 08-3174S.

This brochure explains the symptoms of dry mouth, what causes it (including Sjogren’s Syndrome), and what can be done about it. Tips for keeping teeth healthy and sources for more information are included.

• English (2011 Reprint)
• Spanish (2008)

Keywords: Oral health, Mouth diseases, Sjogrens syndrome, Adults, Spanish language materials

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Contact for cost information.

This notebook of materials is from the training course held on November 17–18, 2004, in Augusta, Georgia, for oral health professionals providing services to children with special health care needs. The notebook includes a course schedule and objectives; an agenda; slides from presentations; a copy of a guide titled Planning Guide for Dental Professionals Serving Children with Special Health Care Needs; tools, brochures, and policy statements pertaining to oral health for children with special health care needs; lists of course participants; and an evaluation form. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Dental care, Training, Education, Oral health, Dental education, Dentists, Dental hygienists, Dental assistants, Children with special health care needs, Professional training, Georgia

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes an oral health project in the Marshall Islands to increase access to and provide oral health care services for children, including those with special health care needs, and pregnant women. Topics include increasing collaboration between government, oral health care stakeholders, and families in program development and providing comprehensive curriculum training for all levels of providers. Also included are a description of project goals and objectives and activities, an evaluation matrix, a flowchart showing the improvement plan, and a list of presentations and products developed during the project. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children, Pregnant women, Special health care needs, Access to health care, Collaboration, Service delivery systems, State initiatives, Marshall Islands, Final reports

National Center for Family Support
Human Services Research Institute 7420 SW Bridgeport Road, Suite 210
Portland, OR 97224

Telephone: (503) 924-3783
Fax: (503) 927-3789
E-mail: melda@hsri.org
Available from the website.

This booklet is designed to help parents who have a child with special health care needs better understand the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) program and Medicaid in general. The booklet explains what EPSDT is and discusses service delivery, limits on services, eligibility, Medicaid and immigration, the EPSDT process, grievances and appeals, and typical areas of confusion. Some information is presented in tables and figures. The booklet includes two appendices: the Michigan age periodicity scale and additional resources.

• Materials
• Materials

Keywords: EPSDT, Medicaid, Children with special health care needs, Disabilities, Eligibility, Immigration, Health services, Health services delivery, Educational materials

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge. Document Number: HSA 240-75-79.

This report describes a general evaluation model which could be used to evaluate a wide range of training programs sponsored by the Bureau of Community Health Services (BCHS), and application of this model to specialized training for dentists treating children with disabilities. The purposes of the general evaluation strategy are to provide a conceptual framework for assessing health training programs, and to provide a research strategy or design for empirically ascertaining the structure and efficiency of function of such programs. The purposes of the application to pediodontic training programs are to provide a substantive evaluation of a set of programs which have been funded for several years and to assess the adequacy of the research strategy and conceptual framework for future applications in the health field. This document summarizes the results of both segments of the project. The conclusions drawn from the evaluation are summarized.

Keywords: Evaluation, Dentists, Children with special health care needs, Pediatric dentists, Training, Professional education, Oral health

Exceptional Parent
Exceptional Parent Library 416 Main Street
Johnstown, PA 15901

Telephone: (800) 372-7368, x110
E-mail: EPLibrary@eparent.com
Website: http://www.eparent.com
$2.95, may be ordered online at http://www.eparent.com/resources_ep_magazine/index.asp; also available from the website.

This excerpt from Exceptional Parent magazine provides guidance for families on seeking oral health care for their child and on establishing a relationship with a dentist who can meet the needs of both the child and the parent. Topics include starting early, finding a pediatric dentist, preparing for the dental visit, what to expect of a dentist and a practice, the therapeutic partnership, and linking the dental home to other services. A table shows the application of the principles and characteristics of the medical home as applied to dental practice.

• Materials
• PDF

Keywords: Oral health, Infant health services, Child health services, Families, Special health care needs, Dental care, Medical home

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This report summarizes results from a survey of nurses, classroom teachers, coordinators, therapists, and speech-language pathologists in Kansas on oral health issues affecting their work with children with special health care needs. Topics include oral problems, prevention protocols and activities, providing services, knowledge or skills, and identifying early oral disease.

Keywords: Oral health, Children with special health care needs, Health services delivery, Surveys, Professional personnel, Kansas

UCLA Center for Healthier Children, Families and Communities
University of California, Los Angeles 10990 Wilshire Boulevard, Suite 900
Los Angeles, CA 90024

Telephone: (310) 794-2583
Fax: (310) 312-9210
E-mail: chcfc@ucla.edu
Website: http://www.healthychild.ucla.edu
Available from the website.

This chartbook provides new California data on access to care for children with special health care needs and compares children in Medi-Cal to care received in California and children in other state Medicaid programs. Section contents include the prevalence of special health care needs and disability, the severity and impact of conditions (by health insurance), and health insurance and experiences with health care systems. Sections also include discussion, a glossary, and endnotes. The appendix provides selected questions from the National Survey of Children with Special Health Care Needs (NS-CSHCN). Statistical information is provided in charts, tables, and graphs throughout the report.

• PDF

Keywords: Children with special health care needs, Medicaid, State children's health insurance programs, Health care delivery, Service delivery, Surveys, California

National Health Care for the Homeless Council
P.O. Box 60427
Nashville, TN 37206-0427

Telephone: (615) 226-2292
Fax: (615) 226-1656
E-mail: council@nhchc.org
Website: http://www.nhchc.org
Available from the website.

This issue of Healing Hands, a publication of the Health Care for the Homeless Clinicians' Network, is devoted to raising awareness among health professionals who serve individuals and families who are homeless of efforts to fill gaps in oral health services through public and private partnerships. The articles spotlight specific Health Care for the Homeless programs, representing a variety of service models, and describe the complex oral health problems experienced by program clients. Models of care using the health commons approach, dental school affiliations, volunteer dentistry, and mobile outreach are discussed. A list of sources and resources is provided.

• PDF

Keywords: Oral health, Homeless persons, Access to health care, Models, Collaboration, Public private partnerships, Children, Adults

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes a 2007–2011 oral health program in Washington to bring partners together to collaborate in a systemic way to address oral health disparities in children with special health care needs. Topics covered include partnerships; assessment activities; fact sheet and curriculum development, training, presentations, and dissemination; evaluation and sustainability of grant activities; and grant activities analysis. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Young children, Children with special health care needs, Collaboration, State initiatives, Washington, Final reports

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This brief reports on follow-up activities of meetings held in August 2008 in Washington to discuss implementation of the oral health action plan in the state. Forum outcomes are outlined with a budget. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Strategic plans, Washington, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes conferences held throughout Michigan in 2006 to address issues in improving oral health care for children with special health care needs. The report provides an overview of the planning process, a list of attendees, flyers and announcements, a copy of the forum agenda, printed PowerPoint slides used, a final report providing a summary of forum discussions, a chart representing the action plan, the completed budget, a list of potential barriers to accessing oral health care and additional resources needed to implement the plan, and an overview of next steps. [Funded in part by the Maternal and Child Health Bureau]

• PDF
• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, State initiatives, Conferences, Michigan

Catalyst Center
Boston University School of Public Health Health & Disability Working Group 715 Albany Street
Boston, MA 02218-2526

Telephone: (617) 639-1936
E-mail: mcomeau@bu.edu
Website: http://catalystctr.org
Available from the website.

This primer examines the role of state Title V programs in improving the system of coverage and care for children and adolescents with special health care needs in foster care. Topics include leading or participating in initiatives related to medical home, benefits counseling, child abuse and neglect prevention, service quality monitoring and measurement, and transition. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Financing, Children with special health care needs, Adolescents with special health care needs, Foster care, Title V programs, Program improvement, Quality assurance, Service delivery systems, State MCH programs

Rolande Tellier
California Dental Association Foundation, First Smiles Education and Training Project
1201 K Street, Suite 1511
Sacramento, CA 95814

Telephone: (916) 554-4918
Fax: (916) 498-6182
E-mail: Rolande.Loftus@cda.org
Website: http://www.cdafoundation.org/learn/first_smiles_education_and_training_program
Available from the website.

This website offers education and training for oral health professionals, medical professionals, early childhood educators, as well as education for parents and other caregivers of infants and young children (including those with special health care needs) on the prevention of early childhood caries (ECC). The content is part of a statewide initiative to address ECC in California called First Smiles. Resources for professionals include training calendars, streaming video segments, continuing education opportunities, and tools and supporting materials. Selected parent education tools include four tip sheets on age-specific anticipatory guidance (prenatal, birth to age 1, ages 1 to 2, and ages 3 to 5) and the brochure, Healthy Teeth Begin at Birth, available in 10 languages. Policies and procedures, frequently asked questions, scientific articles, news articles, and links are provided. Specific resources for creating, implementing, and evaluating community-based oral health programs for young children residing in rural areas and for working with children with special health care needs are also presented.

• Materials

Keywords: Oral health, Young children, Children with special health care needs, Rural environment, Disease prevention, Early childhood caries, Educational materials, Continuing education, Dental education, Medical education, Distance education, Resources for professionals

California Dental Association
1201 K Street
Sacramento, CA 95814

Telephone: (800) 232-7645
E-mail: contactcda@cda.org
Website: http://www.cda.org
Available at no charge to CDA members.

This continuing education activity for oral health professionals comprises four modules on the prevention of dental caries in infants and young children from birth through age 5, including children with special health care needs. Contents include an overview of early childhood caries (ECC), causes of ECC and how to prevent it, and oral health assessment and billing.

• Materials
• Registration

Keywords: Oral health, Young children, Children with special health care needs, Early childhood caries, Disease prevention, Distance education, Continuing education, Resources for professionals

California Dental Association Foundation, First Smiles Education and Training Project
1201 K Street, Suite 1511
Sacramento, CA 95814

Telephone: (916) 554-4918
Fax: (916) 498-6182
E-mail: Rolande.Loftus@cda.org
Website: http://www.cdafoundation.org/learn/first_smiles_education_and_training_program
Available from the website.

This continuing education course for oral health professionals provides information on how to detect dental caries in young children, including those with special health care needs, and how to provide early interventions to manage the disease process. Topics include the causes and costs of early childhood caries (ECC), ECC prevention, risk assessment for infants and young children, and documenting and billing for fluoride varnish application.

• Materials

Keywords: Oral health, Young children, Children with special health care needs, Early childhood caries, Disease prevention, Risk assessment, Dental care, Early intervention services, Fluorides, Continuing education, Distance education, Resources for professionals

American Dental Association
211 East Chicago Avenue
Chicago, IL 60611-2678

Telephone: (312) 440-2500
Fax: (312) 440-7494
E-mail: info@ada.org
Website: http://www.ada.org
Available from the website.

This resource provides oral health information that dentists can copy as handouts for their clients. New topics are regularly added to the series. Recent topics include gum disease, tobacco cessation, oral health during pregnancy, oral health during cancer treatment, the benefits and safety of dental radiographs, and oral health care for children.

• Materials

Keywords: Oral health, Dental care, Educational materials, Resources for professionals, Children, Parents

Fostering Connections Resource Center
4301 Connecticut Avenue, N.W., Suite 350
Washington, DC 20008

Telephone: (202) 572-6000
Fax: (202) 362-8420
E-mail: info@fosteringconnections.org
Website: http://www.fosteringconnections.org
Available from the website.

This toolkit is designed to help youth in foster care and the adults supporting them develop a comprehensive plan for transitioning from life in foster care to independent adulthood. The toolkit is built around ten domains: finances and money management; job and career; life skills; identity; permanence; education; self care and health; housing; transportation; and community, culture, and social life. A map provides a quick overview of the ten domains, along with space to write down and keep track of the skills, knowledge, and resources needed to prepare for independent living. Advice on setting goals and step-by-step plans for achieving them are included.

• PDF

Keywords: Transition planning, Transition to independent living, Foster care, Foster children, Foster parents, Youth in transition programs, Oral health, Parents, Children

Family Voices
3701 San Mateo Boulevard, N.E., Suite 103
Albuquerque, NM 87110

Telephone: (505) 872-4774
Secondary Telephone: (888) 835-5669
Fax: (505) 872-4780
E-mail: kidshealth@familyvoices.org
Website: http://www.familyvoices.org
Available from the website.

This issue of the Family Voices’ newsletter for parents focuses on oral health for children with special health care needs (CSHCN). Topics include an oral health partnership in Kansas created to provide CSHCN with access to appropriate oral health services and to provide oral health education for their families. The issue also includes a review of oral health provisions in the Children’s Health Insurance Program.

• Materials

Keywords: Oral health, Children with special health care needs, State initiatives, Children's Health Insurance Program, Kansas, Children

This series of information sheets addresses health issues for children with special health care needs. The sheets address the topics of nutrition, infant/child mental health, family support, and oral health. The series is also available in Spanish. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Managed care, Primary care, Preventive health services, Child nutrition, Child mental health, Family support, Oral health, Spanish language materials

Minnesota Department of Health
P.O. Box 64975
St. Paul, MN 55164-0975

Telephone: (651) 201-5000
Secondary Telephone: (888) 345-0823
Contact Phone: (612) 646-4997
Website: http://www.health.state.mn.us
Available at no charge.

This illustrated booklet was written for parents of infants and children with cleft palate and discusses good nutrition and growth, challenges in feeding, feeding techniques, common difficulties and solutions, breastfeeding, feeding aids, dental considerations, and nutrition before and after surgery.

Keywords: Cleft palate, Breastfeeding, Child nutrition, Infant nutrition, Infant health, Child health, Infants with special health care needs, Children with special health care needs

This special journal issue focuses on Ohio's Handicapped Children's Services. The issue includes the following sections: (1) serving handicapped children the first half-century, (2) no agency is an island, (3) special dental care for special patients, (4) a physician's look at the crippled children's program, (5) crippled children's services milestones along the way, (6) Holly Bergen, Christmas baby, (7) an open letter to the Bureau of Crippled Children's Services. The journal issue includes black and white photographs.

Keywords: Children with special health care needs, Oral health, State agencies, State MCH programs, Ohio

American Bar Association, Center on Children and the Law
740 15th Street, N.W.,
Washington, DC 20005

Telephone: (202) 662-1000
Secondary Telephone: (800) 285-2221
Fax: (202) 662-1755
E-mail:
Website: http://www.abanet.org/child
Available from the website. Document Number: ISBN 978-1-60442-611-3.

This guide addresses the array of health needs of very young children in the child welfare system. The guide provides research-based tools and strategies to help judges promote better outcomes for infants and young children who enter their courtrooms. Topics include (1) meeting the needs of very young children in dependency court, (2) promoting physical health, (3) addressing early mental health and developmental needs, (4) achieving permanency, and (5) improving the court's response. Practice tips related to each of these topics are offered, as well. [Funded by the Maternal and Child Health Bureau]

• PDF
• PDF

Keywords: Infant, Young children, Infant development, Early childhood development, Child health, Health promotion, Research, Mental health, Child welfare agencies, Courts

Family Voices
3701 San Mateo Boulevard, N.E., Suite 103
Albuquerque, NM 87110

Telephone: (505) 872-4774
Secondary Telephone: (888) 835-5669
Fax: (505) 872-4780
E-mail: kidshealth@familyvoices.org
Website: http://www.familyvoices.org
Available from the website.

This issue focuses on oral health promotion for children and adolescents of all ages. It describes the importance of proper oral health for all of the mouth, provides tips for all ages and those with special health care needs, and lists resources for more information. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children, Adolescents, Children with special health care needs

Family Voices
3701 San Mateo Boulevard, N.E., Suite 103
Albuquerque, NM 87110

Telephone: (505) 872-4774
Secondary Telephone: (888) 835-5669
Fax: (505) 872-4780
E-mail: kidshealth@familyvoices.org
Website: http://www.familyvoices.org
Available from the website.

This issue of Bright Futures: Family Matters provides information and resources for families about oral health and oral health care for children and adolescents, including those with special health care needs. Topics include promoting oral health at home, research on oral health as a measure of overall quality of life, and resources from key organizational partners. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Dental care, Children with special health care needs, Family centered care, Anticipatory guidance, Children, Families

Dr. Samuel D. Harris National Museum of Dentistry
University of Maryland 31 South Greene Street
Baltimore, MD 21201-1504

Telephone: (410) 706-0600
Fax: (410) 706-8313
Website: http://www.dentalmuseum.org
Available from the website.

This guide for parents of children with autism provides tools for teaching oral health routines and preparing for dental visits. Topics include toothbrushing and flossing, behavior and sensory modifications, finding a dental team, and visiting the dentist.

• PDF

Keywords: Oral health, Children, Autism, Dental hygiene, Dental care, Anticipatory guidance, Family centered care

Kansas Department of Health and Environment, Bureau of Oral Health
Curtis State Office Building 1000 Southwest Jackson Street, Suite 300
Topeka, KS 66612-1365

Telephone: (785) 296-5116
Fax: (785) 291-3959
E-mail: kboh@kdheks.gov
Website: http://www.kdheks.gov/ohi
Available from the website.

This training site provides information about oral health conditions and challenges experienced by children and adolescents with special health care needs. The site also describes actions to prevent oral disease for children and adolescents. The course content is available for health professionals and family members. Continuing education credits are available.

• Materials

Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Continuing education, Training materials, Resources for professionals, Kansas, Children, Adolescents

Children's Hospital and Health Center, Anderson Center for Dental Care
3020 Children's Way
San Diego, CA 92123

Telephone: (858) 576-1700
Secondary Telephone: (800) 788-9029
E-mail: refsvc@chsd.org
Website: http://www.chsd.org/body.cfm?id=255
Available from the website.

This resource for parents and health professionals provides oral health information specific to children with autism. Topics include facts about oral health in children and tips for preventing dental caries in early childhood. The resource addresses checking teeth for spots, introducing new textures, visiting the dentist, and oral sensitivities and toothbrushing. Information on finding a dentist, scheduling an in-home dental visit, and parent-to-parent support are included. The content is available in brochure or flyer formats, in both English and Spanish.

• English
• Spanish

Keywords: Oral health, Dental care, Dental hygiene, Children with special health care needs, Autism, Spanish language materials

Children's Hospital and Health Center, Anderson Center for Dental Care
3020 Children's Way
San Diego, CA 92123

Telephone: (858) 576-1700
Secondary Telephone: (800) 788-9029
E-mail: refsvc@chsd.org
Website: http://www.chsd.org/body.cfm?id=255
Available from the website.

This resource for parents and health professionals provides oral health information specific to children with Down syndrome. Topics include oral characteristics of children with Down syndrome, oral sensitivities, and challenges and recommendations. The resource provides tips on preventing dental caries in early childhood, including tips on toothbrushing, eating healthy snacks, and visiting the dentist. Information on finding a dentist and scheduling an in-home dental visit is included, along with a list of resources. The content is available in brochure or flyer formats, in both English and Spanish.

• English
• Spanish

Keywords: Oral health, Dental care, Dental hygiene, Children with special health care needs, Down syndrome, Spanish language materials, children

American Academy of Pediatric Dentistry
211 East Chicago Avenue, Suite 1700
Chicago, IL 60611-2637

Telephone: (312) 337-2169
Fax: (312) 337-6329
Website: http://www.aapd.org
$10.00 (members and nonmembers).

This videotape describes devices and techniques that can assist parents in helping their children with special health care needs (CSHCN) establish an oral health care routine. Topics addressed include the basics of orall health care, the best age for a child's first dental visit, dental sealants, and oral sensitivity. The videotape also features interviews with three parents of CSHCN. It was developed in collaboration with several parents, communities, and dental organizations.

Keywords: Oral health, Training, Children with special health care needs, Dental hygiene, Dental care, Audiovisual materials, Videotapes, Parent education

AIDS Education and Training Centers National Resource Center
University of Medicine and Dentistry of New Jersey, School of Nursing Francois-Xavier Bagnoud Center 30 Bergen Street, Eighth Floor
Newark, NJ 07107

Telephone: (973) 972-6587
Fax: (973) 972-0399
E-mail: info@aidsetc.org
Website: http://www.aidsetc.org
Available from the website. Document Number: HRSA Info. Ctr. HAB00367.

This curriculum for nursing professionals comprises four modules on oral health and HIV infection. The modules address oral health manifestations in all clients and managing clients with HIV infection, performing an oral health history and examination, treating pain, eliminating sources of infection, identifying and diagnosing pathology, facilitating maintenance of adequate nutrition, HIV-associated oral health emergencies, and oral health maintenance and client education.

• Materials

Keywords: Oral health, Nurses, Nursing, HIV, AIDS, Emergencies, Curricula, Resources for professionals, Training materials, Nursing education, Distance education, Adults

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This issue of the Opening Doors newsletter presents information about national, state, and local efforts to address the oral health needs of children and adults who are homeless. Topics include facts about child and adult oral health (including statistics on children and adults who are homeless), the U.S. Department of Health and Human Services' Oral Health Initiative, and the role of the Health Resources and Services Administration's Bureau of Primary Health Care. Examples of successful oral health programs in Phoenix, San Diego, and Boston using community partnerships and clinical collaboration as models of care are discussed. A list of oral health care resources, Web sites, and networks are also provided.

Keywords: Oral health, Homeless persons, Access to health care, Models, Collaboration, Public private partnerships

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report describes a brief history of measures since 2002 for preventing oral health disease in special populations including the underinsured, minority groups, and children with special health care needs in Illinois. Report contents include information on the statewide steering committee, a list of staff members, recommendations specifically for the special needs population, and elements of a follow-up forum. A budget chart is provided, along with barriers to implementing the action plan and goals for removing barriers. Attachments include the meeting agenda, an evaluation, flyers, a list of questions for town hall meetings, a participant list, and a list of summit registrants. A companion document, Oral Health Care in Illinois: Comprehensive Care for Children and Families, is available. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Illinois

National Academy for State Health Policy
10 Free Street, Second Floor
Portland, ME 04101

Telephone: (207) 874-6524
Secondary Telephone: (202) 903-0101
Fax: (207) 874-6527
E-mail: info@nashp.org
Website: http://www.nashp.org
Available from the website.

This policy brief describes strategies that several states have used to address the oral health needs of Medicaid beneficiaries, including young children, pregnant women, people with developmental disabilities, and people living in rural areas. The brief also examines ways that California’s state agencies (including Denti-Cal, the state’s Medicaid dental program), dental associations, and universities have explored these issues, and additional steps the state might take to build on its efforts.

• Full Report

Keywords: Oral health, Access to health care, Young children, Pregnant women, Special health care services, Rural population, California, North Carolina, Rhode Island, Oregon, New Mexico, Pennsylvania, Wisconsin, Case studies, State initiatives, Provider participation

Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820

Telephone: (800) 242-5338
Secondary Telephone: (919) 933-9044
Fax: (919) 933-9604
E-mail: info@cleftline.org
Website: http://www.cleftline.org
Available at no charge.

This fact sheet provides information about oral health care for children with a cleft lip or cleft palate. Information is presented on dental anomalies, which frequently accompany cleft lip and palate. The fact sheet gives an overview of proper cleaning and dental, orthodontic, and prosthodontic care. A glossary is included.

Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Oral health, Dental hygiene, Orthodontics, Prosthodontics, Educational materials, Children

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes the Iowa I-Smile program and its goals: (1) the promotion of the dental home initiative to ensure statewide recognition and understanding of the importance of early and regular oral health care and (2) the creation of an ongoing surveillance system to track the oral health status of infants and children from birth through age 5 and the impact of the program. Topics include the medical/dental interface, access to care for children with special health care needs, improving oral health care financing, expanding comprehensive services statewide, increasing collaboration, and sustainable efforts. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Young children, Access to health care, Children with special health care needs, Health care financing, State initiatives, Iowa, Final reports

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describe a 4-year project in Kansas dedicated to improving the oral health of children with special health care needs (CSHCN). Topics include collaboration among oral health professionals and networks for CSHCN, education, professional training, preventive services, and the creation of a referral hub for restorative treatment. Contents include a description of goals and objectives and a summary of materials developed for the project. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Young children, Children with special health care needs, Collaboration, State initiatives, Kansas, Final reports

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report describes activities proposed and accomplished following the 2008 oral health forum on children with special health care needs in Kansas. It also lists partners in the work and immediate outcomes, and provides budget information. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Meetings, Kansas, State initiatives, Final reports, Children, Families

Massachusetts Department of Public Health, Office of Oral Health
250 Washington Street
Boston, MA 02108

Telephone: (617) 624-6060
Fax: (617) 624-6062
Website: http://www.mass.gov/dph/oralhealth
Available from the website.

This document was created for individuals with hearing loss and provides information on the importance of oral health, preventing and treating tooth decay and gum disease, and communicating with the dentist. Topics include toothbrushing and flossing, routine and deep cleaning, amalgam and composite fillings, root canal, replacing missing teeth, and scaling and root planing. The document concludes with a list of questions to answer and bring to the dentist.

• PDF

Keywords: Oral health, Adults, Hearing loss, Dental hygiene, Dental care, Health promotion, Patient education materials, Communication

American Diabetes Association
ATTN: Center for Information 1701 North Beauregard Street
Alexandria, VA 22311

Telephone: (800) 342-2383
Fax:
E-mail: AskADA@diabetes.org
Website: http://www.diabetes.org
Available from the website.

This resource provides information on oral health and hygiene for individuals with diabetes. Topics include the prevalence of gum disease among those with diabetes, plaque, and toothbrushing and flossing. Frequently asked questions and an oral health care quiz are also available from the website.

• Materials

Keywords: Oral heath, Oral hygiene, Diabetes, Health promotion, Educational materials, Adults

Special Olympics, Healthy Athletes, Special Smiles
1133 19th Street, N.W.
Washington, DC 20036

Telephone: (202) 628-3630
Fax: (202) 824-0200
E-mail: spolk@specialolympics.org
Website: http://resources.specialolympics.org/Sections/Healthy_Athletes_Resources.aspx
Available from the website.

This booklet provides information for volunteers about implementing Special Olympics, Healthy Athletes, Special Smiles' oral health screening events. Topics include volunteer recruitment and responsibilities, research data collection, fundraising, supply management, and publicity. The appendix includes contact information and master forms and handouts.

• PDF

Keywords: Oral health, Screening, Children with special health care needs, Adolescents with special health care needs, Resources for professionals, Training materials, Special health care services, children, Adolescents

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This brief report summarizes the second oral health summit held on December 3, 2004, in Baton Rouge, Louisiana. Brief overviews of the sessions are included, along with a summary of responses to the summit evaluation. Results of facilitated group discussions on the following topics are provided: (1) ways to increase the number of dentists currently providing services to Medicaid patients, (2) ways to increase access to services for special needs populations, and (3) challenges in providing oral health care in rural areas. The summary concludes with a "wish list" of other ideas presented during group discussions. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Access to health care, Medicaid, Low income groups, Children with special health care needs, Rural health, Conferences, Louisiana, Children

Maryland Department of Health and Mental Hygiene, Office of Oral Health
201 West Preston Street, Third Floor
Baltimore, MD 21201

Telephone: (410) 767-5300
Secondary Telephone: (800) 735-2258
Fax: (410) 333-7392
E-mail: oralhealth@dhmh.state.md.us
Website: http://fha.dhmh.maryland.gov/oralhealth/SitePages/Home.aspx
Available from the website.

This guide is intended to help individuals find affordable and appropriate oral health care services in Maryland and the immediate surrounding regions. The guide contains information on programs or public facilities that provide discounted, low-cost, or special oral health services, organized by county or jurisdiction. Information is included on services for individuals and families living with HIV and AIDS, those who are homebound, those who have special health care needs, and those enrolled in Maryland Medical Assistance.

• PDF

Keywords: Oral health, Dental care, Dentists, Directories, Maryland, Special health care services, Health insurance, State programs, Children, Pregnant women, Adults

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes the planning activities and forums held on September 28 and 29, 2006, in two locations in Massachusetts to address oral health care issues for children with special health care needs. Report contents include a description of the purpose of the forum, an outline of the planning process, a short description of pre-forum activities, a list of attendees, forum evaluations, a discussion of the development of the oral health action plan, and a discussion of potential barriers to the implementation of the oral health plan and additional resources needed. A chart outlining expenditures is also included. A companion document, 2007-2009 Massachusetts Children with Special Health Care Needs Oral Health Action Plan, is also available. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Massachusetts

Lauren Zerbe, Project Coordinator
Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center
615 North Wolfe Street, Room E4143
Baltimore, MD 21205

Telephone: (410) 502-5450
Fax: (410) 502-5831
E-mail: lzerbe@jhsph.edu
Website: http://www.jhsph.edu/wchpc
Available at no charge.

This packet is a set of reference tools that identify and describe performance measurement systems and their applicability to children with special health care needs (CSHCN). It includes an overview of the problems with defining the CSHCN population; a chart of specific measurements pertaining to CSHCN listed by domains of quality such as care coordination, access, and family-centered care; an overview of some of the key quality measurement sets with comments on their relevance for CSHCN; and contact information. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Quality assurance, Qualitative evaluation, Evaluation methods, Managed care

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes a project in Michigan to develop a health-systems strategy to extend oral health services to families and children. Three main goals are addressed: (1) increase age 1 dental visits for children at greatest risk for disease, (2) improve access to oral health services for children with special health care needs, and (3) ensure restorative treatment of active disease through dental sealant programs. Contents include progress and program narrative sections, current staffing, technical-assistance needs, descriptions of linkages, and programmatic requirements. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Access to health care, Young children, Children with special health care needs, Dental sealants, State initiatives, Michigan, Final reports

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report describes a forum held in July 2006 to address the oral health services access needs of children with special health care needs in Missouri. Contents include a list of attendees, a summary of discussion, an action plan outline, forum follow-up additions to the CSHCN action plan, and budget information. A sample invitation and registration form are provided along with a chart outlining the forum planning process and a list of products developed during the project.

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, Provider participation, Missouri, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

These materials include a fact sheet, a memorandum, and a brochure about the Missouri Elks Dental Care Program, which provides free oral health care to children with special health care needs and to adults and children with mental retardation or developmental delays. Oral health care is provided in mobile dental units that are rotated to different sites around the state throughout the year. The materials include explanations of program funding and services as well as a brief history of the program.

Keywords: Dental care, Oral health, Children with special health care needs, Adults, Mental retardation, Developmental disabilities, Mobile health units, Philanthropy, Private sector, Missouri

Special Care Advocates in Dentistry
Website: http://saiddent.org
Available from the website.

This set of 15 modules provides information to help oral health professionals care for individuals with developmental disabilities, mental retardation (MR), and mental illness. Each module contains a brief review of the purpose and learning objectives, an introduction, and references. Topics include reviews of MR and other conditions such as Down syndrome, cerebral palsy, maladaptive behaviors, genetic syndromes, and mental illness; the use of dental sedation, immobilization and positioning devices, and general anesthesia; clinical concerns in dental care; treatment planning for the severely disabled and the impact on prosthetic, restorative, and surgical services; the provision of services to disabled individuals residing in the community; administrative issues in the practice of dentistry in the MR or mental health (MH) institutional setting; and a review of research needs and opportunities in MH/MR facilities.

• Materials

Keywords: Oral health, Dental care, Dentistry, Special health care needs, Mental retardation, Developmental disabilities, Down syndrome, Cerebral palsy, Patient care management, Resources for professionals, Training materials, Distance education

South Carolina Department of Health and Environmental Control, Division of Oral Health
2600 Bull Street
Columbia, SC 29201

Telephone: (803) 898-3432
Website: http://www.scdhec.gov/health/mch/oral/index.htm
Available from the website.

This final report describes a South Carolina program to eliminate oral health disparities among minorities, children with special health care needs, and those economically disadvantaged who are uninsured or underinsured, focusing specifically on the needs of infants and children from birth to age 6 and children and adolescents with special health care needs. Contents include a description of measurable goals and indicators, the extent to which goals were achieved, challenges encountered, other sources of support, lessons learned, program impact, future plans for the program, and program perspectives and publications.

• PDF

Keywords: Oral health, Access to health care, Health insurance, Children, Children with special health care needs, Adolescents with special health care needs, Uninsured persons, Low income groups, South Carolina, Final reports

Fraser
2400 West 64th Street
Minneapolis, MN 55423

Telephone: (612) 861-1688
Fax: (612) 861-6050
E-mail: fraser@fraser.org
Website: http://www.fraser.org
$4.99.

This CD-ROM and application for oral health professionals, parents, and children with developmental ages of 3 to 10 years focus on good oral health and how to make dental visits more comfortable. The CD-ROM contains 11 social scripts, 13 tip sheets for parents, and two tip sheets for professionals. The application contains 11 audio and visual social scripts in a mobile format. Topics include providing care to children with autism spectrum disorders or developmental disabilities, the impact of oral sensory processing on oral health care practice, having teeth cleaned, getting X-rays, getting fillings, losing a tooth, toothbrushing, and healthy eating.

• App

Keywords: Oral health, Dental care, Children with special health care needs, Resources for professionals, Materials for children, Anticipatory guidance, Dental anxiety, Multimedia

National Institute of Dental and Craniofacial Research
National Institutes of Health 31 Center Drive, MSC2290 Building 31, Room 2C39
Bethesda, MD 20892

Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: http://www.nidcr.nih.gov
Available from the website.

This database contains citations for materials that focus on care for individuals with genetic or systemic disorders that affect oral health, whose medical treatments cause oral problems, or whose intellectual or physical disabilities complicate oral hygiene or dental treatment. Materials include journal articles, fact sheets, brochures, audiovisuals, and other educational materials for consumers and health professionals.

• Materials

Keywords: Oral health, Databases, Children with special health care needs, Children

Sharon Feucht, M.A., R.D., Editor, Nutrition News
University of Washington, Child Development and Mental Retardation Center
Box 357920
Seattle, WA 98195-7920

Telephone: 206-543-7701
Contact Phone: (206) 545-1297
E-mail: chdd@u.washington.edu
Website: http://depts.washington.edu/chdd/

This newsletter focuses on improvement of nutrition services for children with disabilities or chronic illnesses. The distribution of this newsletter is by federal regions to state nutritionists who then send it to local agencies. [Funded by the Maternal and Child Health Bureau]

Keywords: Cleft lip, Cleft palate, Nutrition, Infants, Children with special health care needs, Nutrition

National Maternal and Child Oral Health Policy Center
Children's Dental Health Project 1020 19th Street, N.W., Suite 400
Washington, DC 20036

Telephone: (202) 833-8288
E-mail: cdhpinfo@cdhp.org
Website: http://nmcohpc.net
Available from the website.

This brief examines provisions in the Affordable Care Act and state policy options to address the oral health of children with special health care needs. Topics include barriers to oral health care, coverage and benefits, and new and additional points of access. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Legislation, Access to health care, Barriers, Health insurance, Public policy, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report provides a brief history of oral health initiatives in Kansas since 2000 to improve oral health among children with special health care needs (CSHCN). Also included is a list of findings from national and state assessments from two CSHCN planning sessions, a summary of how to achieve optimal oral health for CSHCN written by Oral Health Kansas and Partners Long-Term Plan, the Oral Health Kansas CSHCN action plan for 2007, and the budget. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, State initiatives, Conferences, Strategic plans, Kansas, Children, Families,

Shannon Cole
Ohio Department of Health, Oral Health Program
246 North High Street
Columbus, OH 43215

Telephone: (614) 466-4180
Contact Phone: (614) 466-4180
Fax: (614) 564-2421
Contact Fax: (614) 564-2421
E-mail: BCHS@odh.ohio.gov
Contact E-mail: Shannon.Cole@odh.ohio.gov
Website: http://www.odh.ohio.gov/odhPrograms/ohs/oral/oral1.aspx
$6.00; prepayment required; make checks payable to Treasurer, State of Ohio. Mail orders to Ohio Department of Health, Accounting Department, P. O. Box 15278, Columbus, OH 43266.

This videotape was developed to train people responsible for the oral hygiene of another person. It includes information on the importance of oral health, ways of providing oral hygiene care for others, and specific instructions for working with individuals with special health conditions or those who are uncooperative. A booklet that accompanies the videotape contains information on toothbrushing, flossing, marking dentures for identification, and sensory defensiveness. The booklet also includes a quiz for use before and after viewing the videotape to ascertain the viewer's level of comprehension.

Keywords: Oral health, Dental hygiene, Flossing, Special health care needs, Caregivers, Educational materials, Videotapes

National Institute of Dental and Craniofacial Research
National Institutes of Health 31 Center Drive, MSC2290 Building 31, Room 2C39
Bethesda, MD 20892

Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: http://www.nidcr.nih.gov
Available from the website.

This section of the National Institute of Dental and Craniofacial Research's (NIDCR's) website contains information and resources for health professionals and consumers about managing and preventing oral complications of cancer treatment, developmental disabilities, diabetes mellitus, heart disease, and HIV and AIDS. Contents include NIDCR publications in English and Spanish, news releases and articles, reports from meetings, and information about clinical trials. Information from other government agencies and additional resources are provided.

• Materials

Keywords: Oral health, Cancer, Developmental disabilities, Diabetes mellitus, Heart diseases, AIDS, HIV, Treatment outcomes, Patient care management, Educational materials, Spanish language materials, Adults

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available at no charge (limit 50 copies); also available from the website. Document Number: OP-70.

This guide describes oral conditions, including abnormalities in oral development, oral trauma, bruxism, oral infections, and gingival overgrowth, that can occur in children with special health care needs. The guide provides definitions for various conditions and infections, describes treatment methods, and discusses when to refer to an oral health professional. Photographs and a short reading list are included. [Funded by the Maternal and Child Health Bureau]

• PDF
• Online Order Form

Keywords: Oral health, Children with special health care needs, Dental caries, Malocclusions, Infections, Periodontal diseases, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This guide describes and illustrates 11 types of oral development and oral conditions in young children with special health care needs. They are tooth eruption, malocclusions, tooth anomalies, developmental defects, fungal infections, viral infections, gingival infections, dental caries, oral trauma and abrasion, bruxism, and gingival overgrowth from medications. With each section, there is a recommendation to medical professionals for counseling of parents, referral, or treatment. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Oral health, Child development, Teething, Congenital abnormalities, Fungal infections, Virus diseases, Gingivitis, Dental caries, Bruxism, Malocclusion, Tooth abnormalities, Trauma, Gingival overgrowth, Therapeutics, Referrals

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

The proceedings of this workshop on oral health advocacy for special populations feature sections on background issues, Medicaid, a report on model programs, and a brief section on advocacy. The section on Medicaid includes a background paper by the Office of Technology Assessment on children's oral health services under the Medicaid program and a presentation by the American Dental Association's Council on Dental Care Programs. Also included are a memorandum summarizing the participants' evaluations, a section on state follow-up programs, and a directory of participants.

Keywords: Oral health, Policy development, Access to health care, Advocacy, Conference proceedings, Medicaid, Model programs

Alaska Department of Health and Social Services, Women's, Children's, and Family Health Section
Division of Public Health 3601 C Street, Suite 310
Anchorage, AK 99503-5923

Telephone: (907) 269-3400
Secondary Telephone: (800) 799-7570
Fax: (907) 269-3465
Website: http://www.hss.state.ak.us/dph/wcfh
Available from the website.

This fact sheet outlines the oral-health and oral health-related service needs of children and adolescents with special health care needs in Alaska, a chosen priority issue for the Title V Block Grant needs-assessment reporting requirement. Topics include prevalence of tooth decay among children with special health care needs in Alaska and nationwide, interventions and recommendations, and capacity. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Adolescents, Access to health care, Needs assessment, Dental hygiene, Intervention, Alaska, State surveys

Oklahoma State Department of Health, Dental Health Service
1000 Northeast 10th Street, Room 712
Oklahoma City, OK 73117-1299

Telephone: (405) 271-5502
Fax: (405) 271-5434
Website: http://www.ok.gov/health/Child_and_Family_Health/Dental_Health_Service/
Available from the website.

This guide discusses oral health considerations for children with special health care needs for parents and other caregivers and oral health professionals in Oklahoma. Topics include cognitive, communication, and social disabilities; mobility and physical disabilities; seizure disorders; cerebral palsy and other neuromuscular disorders; aversions (oral and touch); damaging oral habits, oral defects, tracheostomy, and trauma; medicines that affect teeth and gums; the first dental appointment; oral health care strategies; and behavior management during dental treatment. A checklist for going to the dentist is also included. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Children with special health care needs, Oral health, Dental hygiene, Chronic illnesses and disabilities, Oklahoma, Children

District of Columbia Department of Health
899 North Capitol Street, N.E.
Washington, DC 20002

Telephone: (202) 442-5955
Fax: (202) 442-4795
E-mail: doh@dc.gov
Website: http://doh.dc.gov/doh/site/default.asp?dohNav=|
Available from the website.

This action plan describes activities to be conducted as follow-up to a forum held on May 22, 2007, in Washington, DC. The plan discusses the forum goals to (1) identify strategies for increasing access and improving the oral health system of care for children with special health care needs (CSHCN) and (2) address barriers to oral health care for CSHCN. Contents also include an overview of the forum planning process and evaluation. Tables present short- and long-term goals, timelines, and partners for activities designed to address barriers in the following areas: education, finance and reimbursement, work force development, accessibility and care coordination, and information management and care coordination. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Barriers, Health promotion, Reimbursement, Service coordination, Work force, Meetings, District of Columbia, Children

Exceptional Parent
Exceptional Parent Library 416 Main Street
Johnstown, PA 15901

Telephone: (800) 372-7368, x110
E-mail: EPLibrary@eparent.com
Website: http://www.eparent.com
$6.95, includes shipping and handling. Order online at http://www.eplibrary.com/specialreports.

This publication for health professionals comprises articles on oral health care for individuals with special health care needs. Articles discuss the oral health care needs of children with mental retardation or other developmental disabilities and the lack of importance placed on their oral health care. Additional articles provide information on behavior-management techniques, diagnostic and treatment considerations, and professional challenges and responsibilities.

Keywords: Oral health, Dental care, Health care delivery, Children with special health care needs, Mental retardation, Developmental disabilities, Behavior, Special health care services

Marcio Guelmann
University of Florida College of Dentistry, Department of Pediatric Dentistry
P.O. Box 100426
Gainesville, FL 32610-0434

Telephone: 352.273.7631
Fax: 352.846.2738
E-mail: randerson@dental.ufl.edu
Website: http://www.dental.ufl.edu/Offices/Pediatric/
Available from the website.

This continuing education course for oral health professionals presents information on issues associated with providing oral health care to individuals with disabilities. Topics include demographic and social status, barriers to accessing oral health care, oral health considerations with major disabling conditions, and practical clinical information that will assist general dentists in safely providing appropriate oral health care to individuals with disabilities. Modules cover definitions, physical disorders, mental disorders, traumatic injuries, substance abuse, general management issues, and providing specific treatment. The course also includes an overview of the educational goals and course content as well as a glossary and links.

• Materials

Keywords: Oral health, Dental care, Dentistry, Special health care needs, Patient care, Disabilities, Resources for professionals, Professional education, Continuing education, Distance education

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This document presents a revised plan for improved oral health for children with special health care needs in Illinois based on the results of a statewide steering committee meeting and town hall meetings held in the summer of 2006. The document outlines five oral health policy goals; lists priorities, recommendations, and strategies for achieving the goals; and briefly describes outcomes from the first oral health plan. A companion document, Illinois CSHCN Oral Health Final Report, is available. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Illinois

Virginia Department of Health, Division of Dental Health
109 Governor Street, Ninth Floor
Richmond, VA 23219

Telephone: (804) 864-7784
Fax: (804) 864-7783
Website: http://www.vahealth.org/dental
Available from the website.

This fact sheet for parents provides oral health care strategies for infants and young children with special health care needs. Topics include oral hygiene, positioning and adaptations, use of fluoride, visiting the dentist, and feeding and diet. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Dental hygiene, Children with special health care needs, Virginia, Educational materials, Children

Iowa Department of Public Health, Bureau of Oral and Health Delivery Systems
Lucas State Office Building 321 East 12th Street
Des Moines, IA 50319

Telephone: (515) 242-6383
Secondary Telephone: (866) 528-4020
Fax: (515) 242-6384
Website: http://www.idph.state.ia.us/OHDS/OralHealth.aspx
Available from the website.

This website contains educational brochures, fact sheets, and posters on various oral health topics. Topics include the benefits of fluorides such as fluoride varnish and community water fluoridation; dental emergencies; oral conditions such as dry mouth, tooth decay, gum disease, and oral cancer; tobacco use and oral health; oral health in pregnant women, infants, children, adolescents, and older adults; nonutritive sucking, tooth eruption, and teething; xylitol; dental sealants; and nutrition and oral health.

• Materials

Keywords: Oral health, Disease prevention, Health promotion, Educational materials, Children, Pregnant women

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00156.

This report summarizes a meeting held on April 15–18, 2008, in Washington, DC, to discuss strategies and key partners for improving the oral health of children with special health care needs and the oral-health-care delivery system for this population in three priority areas: medical home and dental home interface, education and training, and financing. A companion presentation is also available.[Funded by the Maternal and Child Health Bureau]

• PDF
• Online Order Form

Keywords: Oral health, Dental care, Children with special health care needs, Adolescents with special health care needs, Access to health care, Barriers, Health care financing, Children, Adolescents

A. Rahman Zamani
University of California, San Francisco School of Nursing, California Childcare Health Program
San Francisco, CA 94143

Telephone: (415) 476-4695
E-mail: abbey.alkon@nursing.ucsf.edu
Website: http://www.ucsfchildcarehealth.org
Available from the website.

This brief offers information about oral health care for children with disabilities or chronic physical, developmental, behavioral, or emotional conditions who require help beyond that required by children generally. The brief discusses the importance of proper oral hygiene for those born with oral conditions, who have difficulty brushing and flossing, who have reduced saliva flow, or who have restricted diets.

• PDF

Keywords: Oral health, Children with special health care needs, Dental hygiene, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This participant folder contains materials from an expert meeting held on April 14-15, 2008, in Washington, DC, to identify and address oral health priorities for children with special health care needs. Priority areas include medical home/dental home interface, training and education, and finance. Folder contents include priorities, objectives, and sample strategies for action; speaker PowerPoint slides; and a guide for workgroup sessions. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Community action, Federal initiatives, Strategic plans, Meetings

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes a meeting held on April 15-18, 2008, in Washington, DC, to discuss strategies and key partners for improving the oral health of children with special health care needs and the oral health care delivery system for this population in three priority areas: medical home and dental home interface, education and training, and financing. A companion presentation is also available. [Funded by the Maternal and Child Health Bureau]

• Full Report
• Presentation

Keywords: Oral health, Children with special health care needs, Medical home, Federal initiatives, Strategic plans, Meetings, Resources for professionals, Children

South Carolina Department of Health and Environmental Control, Division of Oral Health
2600 Bull Street
Columbia, SC 29201

Telephone: (803) 898-3432
Website: http://www.scdhec.gov/health/mch/oral/index.htm
Available from the website.

This resource guide is designed to give parents and other caregivers tips on oral hygiene and oral health care for children and youth with special health care needs. Topics include selecting and adapting a toothbrush, addressing challenges, providing good nutrition, encouraging safety, and going to the dentist. Contents also include information sheets for specific conditions, state and national organizations, and service information.

• PDF

Keywords: Oral health, Children with special health care needs, Adolescent's with special health care needs, Family support services, Learning activities, Educational materials, State programs, South Carolina

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes the 2007–2011 oral health program to provide safety net oral health services to infants and young children, including those with special health care needs, enrolled in Head Start in Maryland. Topics include creating a network of key stakeholders to develop an oral-health-improvement plan; providing education and training for general practice dentists to increase care for young children; providing education and training for non-oral-health professionals to increase risk assessments and provide anticipatory guidance on oral health to parents and other caregivers; providing referrals to dentists; and developing a patient navigator and education program for Head Start staff. Accomplishments, lessons learned, and responses are provided. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Head Start, Infants, Young children, Children with special health care needs, Health services delivery, Provider participation, State initiatives, Maryland, Final reports

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes a statewide oral health forum held on November 9, 2006, in Warwick, Rhode Island, to identify access barriers, propose solutions, and build support for improving the oral health status of children and adolescents with special health care needs. Report contents include an executive summary, an action plan, and a review of next steps. Appendices include the forum agenda, list of forum registrants, a registration check-in sheet, a summary of evaluations, the logic model, miscellaneous supporting documents, and a completed budget table. [Funded in part by the Maternal and Child Health Bureau]

• PDF
• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Rhode Island

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report discusses the activities of stakeholders in developing an action plan to address the oral health care needs of children with special health care needs (CSHCN) in Nebraska. Report contents outline the planning process; the forum held on August 12, 2008; issues specific to CSHCN; and next steps to develop an action plan. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Strategic plans, Conferences, State initiatives, Nebraska, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00392.

This resource guide provides information to help health professionals plan, develop, and implement efforts to ensure that children and adolescents with special health care needs receive optimal oral health care. The guide is divided into the following three sections: (1) journal articles, (2) materials (books, curricula, fact and tip sheets, guidelines, manuals, modules, papers, reports, and CD-ROMs), and (3) agencies and organizations that may serve as resources. Entries contain bibliographic information, an annotation, and contact information. [Funded by the Maternal and Child Health Bureau]

• Guide
• Order Form

Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Health promotion, Disease prevention, Bibliographies, Directories, Resource materials, Children, Adolescents

National Institute of Dental and Craniofacial Research
National Institutes of Health 31 Center Drive, MSC2290 Building 31, Room 2C39
Bethesda, MD 20892

Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: http://www.nidcr.nih.gov
Available from the website.

This resource provides information for professionals and consumers on various oral health topics, including burning mouth syndrome, cancer treatments, cleft lip and palate, developmental disabilities, diabetes and oral health, dry mouth (xerostomia), fillings (amalgams), fluoride, genetics, gum (periodontal) diseases, heart disease, HIV/AIDS, oral cancer, organ transplantation, oral and facial pain, pregnancy, saliva and salivary gland disorders, dental sealants, Sjögren's Syndrome, smokeless tobacco, taste disorders, TMJ disorders, and tooth decay (dental caries).

• Materials

Keywords: Oral health, Children, Adults, Infectious diseases, Mouth diseases, Dental care, Special health care needs, Educational materials

American Dental Association
211 East Chicago Avenue
Chicago, IL 60611-2678

Telephone: (312) 440-2500
Fax: (312) 440-7494
E-mail: info@ada.org
Website: http://www.ada.org
Available from the website.

This resource provides information for professionals and consumers on various issues related to oral health care. Topics include dental sealants, early childhood tooth decay, financing dental care, fluoride and fluoridation, Medicaid principles and reports, pregnancy, smoking and tobacco cessation, special needs, and others.

• Materials

Keywords: Oral health, Children, Adolescents, Adults, Dentists, Educational materials, Resources for professionals

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available from the website.

This resource describes a publication series titled Oral Health, Cancer Care, and You. The series is designed to inform health professionals and health care consumers about steps they can take before, during, and after cancer treatment to reduce the risk and impact of oral complications of cancer therapy. The resource links to booklets and pocket guides for professionals and educational brochures for consumers. Consumer materials are available in English and Spanish.

• Materials

Keywords: Oral health, Cancer, Anticipatory guidance, Self care, Patient care management, Drug therapy, Radiation therapy, Bone marrow transplantation, Low literacy materials, Spanish language materials, Adults

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

This paper for health professionals presents guidelines for the purpose of establishing a general framework within which individuals with special health care needs may receive oral health treatment. The paper includes a discussion of the background and rationale, objectives, a quick reference guide, and management guidelines. The management guidelines provide information on definitions and identification, coordination of care, general management considerations, and oral health considerations associated with disabling conditions. Disabling conditions discussed include sensory disorders; degenerative and developmental neuromuscular disorders; orthopedic disorders; cerebrovascular accident; seizure disorder; traumatic brain injury; arthritis; and mental, cognitive, and emotional disorders. The paper also discusses oral health treatment considerations and follow-up and long-term care.

Keywords: Oral health, Dental care, Disabilities, Special health care needs, Guidelines, Health services delivery

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This report provides information for pediatric dentists on HIV, including epidemiology, transmission, medical management, and oral implications. It also provides a protocol developed by workshop attendees for training post-doctoral students in pediatric dentistry in caring for children with HIV. [Funded by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, HIV

California Department of Public Health, Maternal, Child and Adolescent Health Oral Health Program
MS Code 8305 P.O. Box 997420
Sacramento, CA 95899-7420

Telephone: (866) 241-0395
Fax: (916) 650-0305
E-mail: mchinet@cdph.ca.gov
Website: http://www.cdph.ca.gov/programs/MCAHOralHealth/Pages/default.aspx
Available from the website.

This guide for health professionals addresses screening children for severe oral conditions and referring them to California Children’s Services (CCS) when appropriate. Topics include referral criteria for medically handicapping malocclusion and cleft lip/palate and other craniofacial anomalies, the CCS referral and eligibility process, CCS benefits, and why it is important to refer. Information on assessing occlusion in children and color photographs illustrating conditions are provided.

• PDF

Keywords: Oral health, Children with special health care needs, Screening, Referrals, Dental care, Resources for professionals, State programs, California

Paul Glassman or Christine Miller
University of the Pacific School of Dentistry, Arthur A. Dugoni School of Dentistry
2155 Weber Street
San Francisco, CA 94115

Telephone: (415) 929-6400
Fax: (415) 929-6654
Website: http://dental.pacific.edu
$99.95 plus shipping and handling.

This kit is intended to train caregivers to recognize and prevent oral diseases in individuals with special health care needs, to identify obstacles to oral health for a given individual, to use behavioral techniques to improve oral hygiene skills and independence, and to develop and carry out an oral health care plan. The kit contains a 10- minute videotape demonstrating oral health and behavioral techniques; a trainer's manual with instructions on how to use the materials; two workbooks with 11 chapters, review questions, and class and home exercises; and a 60-item pre- and post- training test to assess knowledge.

Keywords: Oral health, Training materials, Special health care needs, Dental hygiene, Caregivers, Videotapes

Wyoming Family 2 Family Health Information Center
500 W. Lott Street, Suite A
Buffalo, WY 82834

Telephone: (307) 684-2277
Website: http://www.wpic.org/WYF2FHIC/
Available from the website.

This notebook is designed to help parents of children with special health care needs record, track, and share information with their child’s health care team, child care provider, school, and family members. Contents include worksheets for recording the child’s health history, including the first dental visit, and the child’s dentist’s contact information, specialist recommendations, and appointment dates and times. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Children with special health care needs, Families, Family centered care, Medical history, Oral health

HRSA Information Center
P.O. Box 2910
Merrifield, VA 22116

Telephone: (888) 275-4772
Secondary Telephone: (877) 489-4772
Fax: (703) 821-2098
E-mail: ask@hrsa.gov
Website: http://www.ask.hrsa.gov
Available at no charge. Document Number: HRSA Info. Ctr. MCHG023.

This publication is the product of a consensus conference on recommended practices for the optimal care of patients with craniofacial anomalies. Participants included members of the American Cleft Palate - Craniofacial Association, health professionals experienced in the diagnosis and treatment of craniofacial anomalies and related disorders, representatives of children with craniofacial birth defects and their families, and representatives of government agencies involved in the funding of care for such patients. The recommendations of the conference attendees are presented in the following manner: interdisciplinary health care teams: composition, qualifications of team members, and general responsibilities of teams; contemporary practices of the team during the early months of life of the patient; and longitudinal evaluation and treatment, listing general guidelines and contemporary practices as they pertain to professional specialty areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Standards

National Center for Ease of Use of Community-Based Services
c/o Institute for Community Inclusion University of Massachusetts 100 Morrissey Boulevard
Boston, MA 02125

Telephone: (617) 287-4349
E-mail: communitybasedsrvcs@umb.edu
Website: http://communitybasedservices.org
Available from the website.

This webinar, held on October 26, 2011, discusses the development of the Wisconsin Special Smiles Program (WSSP), a community-based system of oral health for children and adolescents with special health care needs (CASHCN). Topics include aspects of the program and examples of how WSSP partnered with Title V programs to deliver efficient and effective oral health services throughout the state. Tips on how to build partnerships to make oral health services easier to use for families with CASHCN are also discussed. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Health services delivery, Special health care needs, Children, Adolescents, Youth, State initiatives, Wisconsin

Kimberly Huggins
University of Washington School of Dentistry, Department of Oral Medicine
1959 N.E. Pacific Street, Campus Box 356370
Seattle, WA 98195-6370

Telephone: (206) 543-6501
Contact Phone: (206) 616-6105
Contact Fax: (206) 685-8412
Contact E-mail: khh@uw.edu
Website: http://dental.washington.edu/departments/oral-medicine/oral-medicine.html
Available from the website.

This website provides resources for health professionals and parents and other caregivers on oral health in children and adults with special health care needs. Contents include a series of fact sheets on 16 conditions. Additional guidance on child abuse for oral health professionals is included, as well as guidance for parents and caregivers in English, Spanish, and Russian. A directory of dentists for clients with special needs and a continuing dental education course based on information contained in the fact sheets are also available from the website. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Children, Adolescents, Parents, Special health care needs, Comprehensive health care, Health supervision, Resources for professionals, Educational materials, Spanish language materials, Non English language materials

This atlas includes text and photographic descriptions of normal tooth development and eruption, dental caries etiology, care of teeth (such as toothbrushing and receiving dental sealants), and abnormalities of children’s teeth and mouths. The text is presented in English and Spanish.

Keywords: Oral health, Young children, Craniofacial abnormalities, Mouth diseases, Etiology, Disease prevention, Pediatric care, Resources for professionals, Spanish language materials

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report describes a summit in Virginia of parents, advocates, medical and dental health professionals, and state agency representatives to discuss quality oral health care for children and youth with disabilities. Topics include ongoing training for providers, prevention, and increased access. Highlights of the summit are described along with a summary of issues identified and solutions suggested.

• PDF

Keywords: Oral health, Children with special health care needs, Dental care, Access to health care, Virginia, State initiatives, Children

Cary Bujold Kreutzer
National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
$25.00; also available from the website.

This guide promotes a framework for oral health professionals to communicate and work with families to ensure that appropriate, quality oral health care is provided both at home and in the dental office. The manual contains six sections on the following topics: (1) preparation for dental visits, (2) oral assessment and prevention, (3) determination of specialized treatment techniques, (4) indicators of quality oral health care, (5) linking with community resources in California, and (6) bibliography and other resources. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Children with special health care needs, Oral health, Dental care, Case assessment, Community participation, Manuals, Parents, Children

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available at no charge (limit 50 copies); also available from the website.

This series of booklets is designed to provide oral health professionals with basic information on delivering quality oral health care to individuals with special health care needs. Strategies for care covering topics such as mobility, neuromuscular and behavioral problems, sensory impairment, and other treatment considerations are discussed in the context of the general dental office setting. Individual booklets offer practical guidance on adapting standard practices for individuals with autism, cerebral palsy, Down syndrome, and intellectual disabilities. A publication for the oral health team on safe wheelchair transfer is also included. A continuing education activity and a guide for caregivers are also available.

• Materials
• Online Order Form

Keywords: Oral health, Dental care, Children with special health care needs, Special health care services, Adolescents with special health care needs, Autism, Cerebral palsy, Down Syndrome, Mental retardation, Health care delivery, Resources for professionals, Educational materials, Children, Adolescents

Special Care Dentistry Association
401 North Michigan Avenue
Chicago, IL 60611

Telephone: (312) 527-6764
Fax: (312) 673-6663
E-mail: SCD@SCDonline.org
Website: http://www.SCDonline.org
$25 (domestic mailing); $30 (international).

This special supplement of Special Care in Dentistry presents protocols from a conference held on February 1, 2002, in San Francisco, California. Topics include risk assessment, chlorhexidine mouth rinses, xylitol chewing gum, topical fluoride and fluoride varnish applications, and methods to control or treat periodontal disease. The supplement also presents information on next steps, including the design of an implementation and dissemination strategy to encourage nurses, case managers, social workers, caregivers, and others to use the protocols. A plan will also be implemented to increase awareness of the interventions through professional publications and educational opportunities.

Keywords: Oral health, Dental care, Children with special health care needs, Protocols, Dental caries, Early childhood caries, Risk assessment, Fluorides, Periodontal disease, Conferences

American Dental Hygienists' Association
444 North Michigan Avenue, Suite 3400
Chicago, IL 60611

Telephone: (312) 440-8900
Fax: (312) 440-1806
Website: http://www.adha.org
$2.00, plus shipping and handling.

This packet of fact sheets provides information about oral disease and how to prevent it with proper oral care, focusing on children with special health care needs. Included are step-by-step instructions for helping the child practice daily oral hygiene. Topics include explanations for why children with disabilities are more prone to oral disease; a guide to positions to assume when cleaning the child's teeth; tips on brushing, flossing, and rinsing; professional oral health care; common dental problems experienced by children; growth and development; dental office selection; and tips for planning successful dental visits.

Keywords: Oral health, Children with special health care needs, Educational materials, Dental hygiene, Dental care

AIDS Education and Training Centers National Resource Center
University of Medicine and Dentistry of New Jersey, School of Nursing Francois-Xavier Bagnoud Center 30 Bergen Street, Eighth Floor
Newark, NJ 07107

Telephone: (973) 972-6587
Fax: (973) 972-0399
E-mail: info@aidsetc.org
Website: http://www.aidsetc.org
Available from the website.

This curriculum includes three components: (1) a training course for oral health professionals, (2) oral health information for adults living with HIV/AIDS, and (3) oral health information for children living with HIV/AIDS. Topics include the health inventory and review of medically relevant information; oral manifestations of HIV, including clinical characteristics, diagnosis, and treatment recommendations; legal issues; special considerations; and management and evaluation of occupational exposures. The content is available in English and Spanish. The training course for oral health professionals is available on CD-ROM and as a print publication.

• English
• Spanish

Keywords: Oral health, Curricula, HIV, AIDS, Dental care, Patient care management, Special health care services, Spanish language materials, CD-ROMs, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This volume contains the proceedings of a conference held at the Center on Human Development and Disability, University of Washington, Seattle, Washington, on May 4–5, 2001. The conference was convened to address training and research agendas related to oral health promotion for children with neurodevelopmental disabilities and other special health care needs. Section topics include an introduction and overview, full recommendations, a health promotion framework, oral disease and care for children with special health care needs, data and demonstration projects, health-promoting behaviors, interdisciplinary issues, oral-systemic health interactions, and access. The appendices include the conference agenda, a list of faculty and attendees, a list of federal training and research centers, and selected recent articles and reports highlighted at the conference. [Funded in part by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Dental care, Children with special health care needs, Conference proceedings, Professional training, Infants, Children, Adolescents

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes an oral health project in Virginia to (1) increase age 1 dental visits for children at high risk for dental caries; (2) extend oral health screening, education, and fluoride varnish programs within the Bright Smiles for Babies program; and (3) improve access to care for children with special health care needs through collaborative projects. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Infants, Young children, Children with special health care needs, Access to health care, Prevention services, Final reports, State initiatives, Virginia, Final reports

Bright Futures for Families
Family Voices 2340 Alamo SE, Suite 102
Albuquerque, NM 87106

Telephone: (508) 872-4774
E-mail: banderson@familyvoices.org
Website: http://www.brightfuturesforfamilies.org
Available from the website.

This tip sheet describes oral health, its relationship with overall health, and what families can do to promote oral health. Topics include oral health during infancy, early childhood, middle childhood, and adolescence and oral health in children with special health care needs. The tip sheet also provides information on resources for families. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children, Children with special health care needs, Families, Child development, Health promotion, Educational materials

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

The participant's notebook includes materials from the conference held May 4-5, 2001 in Seattle, Washington, to (1) develop training and research agendas for professionals in the area of oral health for children with neurodevelopmental disabilities (NDD) and (2) develop additional recommendations for research, service, and policy related to oral health in children with NDD. Session topics include a review of oral health and future implications for children with NDD and other special health care needs, conceptual frameworks for children with NDD in the areas of health promotion and disability, a discussion of NDD, data collection in special populations, oral health promotion, parents as partners, obstacles to promoting oral health, and evidence-based approaches. Additional topics include oral-motor dysfunction, oral health and speech, and nutrition in oral health. Materials are provided including articles, speaker biographies, printed PowerPoint slides and handouts from conference speakers, fact sheets from the Maternal and Child Health Bureau, and a participant list. The notebook also contains a 47-page publication on critical elements of care for the patient with cleft lip and palate. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Oral health, Children with special health care needs, Disabilities, Professional training, Specialists, Neural development, Nutrition, Health promotion, Conferences

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00191.

This policy brief provides suggestions for oral-health-promotion activities that are consistent with the National Agenda for Children with Special Health Care Needs. The brief addresses the six critical indicators of a comprehensive system of care identified by the Maternal and Child Health Bureau: medical home, insurance coverage, screening, organization of services, family roles, and transition to adulthood. [Funded by the Maternal and Child Health Bureau]

• PDF
• Online Order Form

Keywords: Oral health, Children with special health care needs, Access to health care, Health insurance, Medical home, Screening, Health services delivery, Transitions, Children, Families

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This paper discusses findings from a survey to explore collaboration among state oral health programs and children with special health care needs (CSHCN) programs to gain insight on establishing effective relationships. Contents include an introduction to the problem, the survey methodology and highlights of the results, a discussion of the limitations of program collaboration and strategies for increasing collaboration, and recommendations. Additional topics include types of collaboration and examples of state and community-based models of care for CSHCN. Appendices include the advisory committee roster, survey recruitment letters, and survey instrument. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Dental care, Children with special health care needs, Collaboration, Access to health care, State programs, Models, Questionnaires, Surveys, MCH research, Children, Parents

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This resource provides information to help state, territorial, and community oral health programs develop best practices within the context of their environments. Contents include reports on public health strategies that are supported by evidence for their impact and effectiveness. Topics include coordinated school health programs; early childhood tooth decay; perinatal oral health; school fluoride and dental sealant programs; special health care needs; state coalitions, plans, and mandates; surveillance systems; water fluoridation; and work force development. The resource also provides access to state and community practice examples that illustrate successful implementation of best practice approaches. Additional resources such as definitions, criteria, and surveys are available. [Funded in part by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Model programs, Public health services, Community programs, State programs

Healthy Child Care Washington
Washington Department of Health, Community & Family Health P.O. Box 47880
Olympia, WA 98504-7880

Telephone: (360) 236-3560
Website: http://www.healthychildcare-wa.org/
Available from the website.

This training manual for consultants in child care addresses issues for child care homes and centers that care for infants and toddlers. It is divided into the following chapters: (1) the consultant role, (2) using NCAST's Keys to CaregivinG(tm), (3) growth and development, (4) providing a safe and nurturing environment, (5) infant and toddler nutrition, (6) infant and toddler oral health, (7) child care for infants and toddlers with special needs, (8) preventing and managing illness in infants and toddlers, (9) helping providers prepare for and handle emergencies, (10) child abuse and neglect, and (11) staff health. Examples of how to incorporate the information into practice are included at the end of each chapter. Nine appendices include a wide range of sample evaluations, forms, handouts, assessment tools, and checksheets, as well as tips sheets on nutrition, preventing and managing stress, and safety. References, resources, and an index are provided.

• PDF

Keywords: Child care, Infant care, Preschool children, Child care workers, Child care centers, Child development, Oral health, Children with special health care needs, Emergency child care, Emergencies, Child abuse, Child neglect, Manuals, Consultants, Training materials

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This workshop discussed increasing awareness and improving integration of oral health in primary care systems and preventive health interventions for mothers and children with special health care needs. It was held on April 10-11, 1991, in Des Moines, Iowa. The document includes oral health action plans for Iowa, Kansas, Nebraska, and Missouri; a workshop evaluation; comments on the workshop; the workshop agenda; a list of sponsors; and a list of attendees.

Keywords: Oral health, Children with special health care needs, Mothers, Primary care, Region VII, Preventive health services, Guidelines

Catalyst Center
Boston University School of Public Health Health & Disability Working Group 715 Albany Street
Boston, MA 02218-2526

Telephone: (617) 639-1936
E-mail: mcomeau@bu.edu
Website: http://catalystctr.org
Available from the website.

This tutorial provides an overview of Medicaid and the Children's Health Insurance Program (CHIP), the populations these programs serve, the changes they are undergoing under health care reform, and opportunities to improve services for children with special health care needs (CSHCN) through communication and collaboration with Medicaid and CHIP staff. The tutorial begins with an overview of how definitions of CSHCN may vary by agency or program, followed by eight major topic areas and recommendations for Title V programs to build successful partnerships with public insurance programs. A series of webinars, a game, and a crossword puzzle are also available from the website. [Funded by the Maternal and Child Health Bureau]

• PDF
• Materials

Keywords: Children with special health care needs, Medicaid, Children's Health Insurance Program, Title V programs, Health care reform, Financing, Access to health care, Program improvement, Oral health, Children

State University of New York, College at Brockport
350 New Campus Drive
Brockport, NY 14420

Website: http://www.brockport.edu/
Available from the website.

This excerpt from an amendment to the Social Security Act addresses increases in maternal and child health services and crippled children's services, planning for mental retardation services, and health care-related public assistance amendments including a study of resources on children's emotional illness.

• PDF

Keywords: Legislation, History, Social Security Act, Maternal and child health services, Maternal and child health training, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This series of guides for professionals highlights resources on oral health topics. Each guide focuses on a specific topic and includes selected materials and websites. Topics include children with special health care needs, dental home, dental sealants, domestic violence, early childhood caries, fluoridated water, fluoride varnish, Head Start, health literacy, home visiting, injury, K-12 education, nutrition, pregnancy, school health services, school readiness, and tobacco. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Infants, Young children, Adolescents, Children with special health care needs, Pregnant women, Information sources, Electronic publications, Resources for professionals

Aetna
151 Farmington Avenue
Hartford, CT 06156

Telephone: (860) 273-0123
Website: http://www.aetna.com
Available from the website.

This resource provides information on oral health to help individuals prevent problems, understand conditions, and explore treatments. Topics include tooth decay, toothbrushing and flossing, fluoride, mouth-healthy eating, dental sealants, oral hygiene, tobacco, and dental visits. A parents' guide provides information on oral health in children and adolescents.

• Materials

Keywords: Oral health, Disease prevention, Health promotion, Dental hygiene, Dental care, Consumer education materials, Parenting

Hands on Health South Carolina
171 Ashley Avenue, Suite 300, MSC 403
Charleston, SC 29425-4030

Website: http://www.handsonhealth-sc.org
Available from the website.

This web-based directory comprises a network of dentists licensed in South Carolina to whom professionals and consumers may refer individuals with special health care needs for oral health care. The directory may be searched using a single special need, a dentist’s last name, an office location, or a combination of search criteria. Dentists can complete the registration form to be included in the directory. The directory is updated annually, but changes to individual listings are made as information is submitted and confirmed.

• Materials

Keywords: Oral health, Children with special health care needs, Dentists, Dental care, Directories, South Carolina

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report represents the 2007-2009 workplan for implementing the South Carolina state oral health plan for children and adolescents with special health care needs (SHCN). Topics include oral health as an integral component of health and well-being; the negative effect of oral disease and related problems on the health and well-being of children; oral diseases and related problems among members of special needs populations; the negative effects of medications, special diets, and poor oral hygiene on the oral health of special needs populations; and recognition of access to oral health care as an unmet need among children and adolescents with SHCN. Contents include information on the Coalition workgroup and the meetings held to develop the workplan, and the workplan goals, objectives, and action steps. [Funded by the Maternal and Child Health Bureau]

• Final Report

Keywords: Oral health, Children with special health care needs, Adolescents with special health care needs, Access to health care, Statewide planning, South Carolina

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Single photocopies available at no charge.

The booklet provides instructions to ensure the oral hygiene of children with special health needs, including physical and mental disabilities. Written to help caregivers, parents, and the children themselves, the booklet addresses the eruption of primary teeth and permanent teeth, dental emergencies, and preventive measures including good nutrition and the use fluoride and sealants. The booklet describes conditions such as plaque, calculus, tooth decay, and periodontal diseases; presents techniques for brushing and flossing; and discusses special dental equipment and the positioning of the patient for oral hygiene.

Keywords: Oral health, Dental hygiene, Dental caries, Periodontal disease, Prevention, Children with special health care needs, Chronic illnesses and disabilities, Educational materials, Patients, Materials for parents, Caregivers

National Oral Health Information Clearinghouse
National Institute of Dental and Craniofacial Research One NOHIC Way
Bethesda, MD 20892-3500

Telephone: (301) 402-7364
Secondary Telephone: (866) 232-4528
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Website: https://www.nidcr.nih.gov/OrderPublications/default.aspx
Available from the website.

This fact sheet describes special oral health management needs of people with a variety of medical conditions or limitations.

• Materials

Keywords: Oral health, Children with special health care needs, Dental care, Children

North Carolina Division of Public Health, Oral Health Section
1910 Mail Service Center 5505 Six Forks Road
Raleigh, NC 27699-1910

Telephone: (919) 707-5480
Fax: (919) 870-4805
Website: http://www.ncdhhs.gov/dph/oralhealth
Available from the website.

This report examines oral health care options for populations in North Carolina requiring special care dentistry and suggests ways to improve these services. Topics include consumer issues, provider and payer issues, and system issues. Recommendations are provided in the areas of advocacy, professional development, reimbursement, clinical program expansion, and health services research.

• PDF

Keywords: Oral health, Dental care, Special health care services, Needs assessment, Provide participation, health services delivery, Reimbursement, North Carolina, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This course is designed to help oral health professionals ensure that young children with special health care needs have access to comprehensive, family-centered, and community-based services. Continuing education credits from the Indian Health Service or the American Dental Hygienists' Association will be awarded upon successful completion of the course. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Curricula, Dental care, Children with special health care needs, Young children, Disease prevention, Resources for professionals, Dental education, Distance education

Nevada State Health Division, Bureau of Child, Family, and Community Wellness
4150 Technology Way
Carson City, NV 89706

Telephone: (775) 684-4285
Fax: (775) 684-4245
Website: http://health.nv.gov/BCFCW.htm
Available from the website.

This report describes an oral health needs assessment survey conducted in 2007 at two specialty care institutions in Nevada that service clients with mental or developmental disabilities. Topics include an introduction, a discussion of sampling and methodology, key findings, comparisons with Healthy People 2010 goals, results, and recommendations. Extensive data tables and figures are provided.

• PDF

Keywords: Oral health, Needs assessment, Special health care needs, State surveys, Nevada, Families

HathiTrust Digital Library
University of Michigan Telephone: (734) 764-8016
E-mail: hathitrust-info@umich.edu
Website: http://www.hathitrust.org/digital_library
Available from the website. Document Number: DHEW (HSA) 78-5218.

This book contains an evaluation of pedodontic programs sponsored by the Bureau of Community Health Services. Background literature supports the view that pedodontists need training in treating the oral health problems of children with disabilities. A model for evaluation of these training programs is provided in this book. Sections include: general evaluation approach, site assessment, practitioner survey, linage to pedodontic program graduates, and overall conclusions and recommendations. Samples of the surveys used are included in the appendices.

• Materials
• Materials

Keywords: Dentistry, Children with special health care needs, Program evaluation, Oral health

Seattle Children's Center for Children with Special Needs
1100 Olive Way, Suite 500, MS: MPW8-3
Seattle, WA 98101

Telephone: (206) 884-5735
Fax: (206) 884-5741
Website: http://www.cshcn.org
Available from the website.

This directory provides an overview of resources for families of children with special health care needs in Washington. Topics include advocacy and legal help, child care and respite, child development, community health, counseling, oral health, family support, financial help, health insurance, hearing and vision, information and referral, medical supplies and equipment, nutrition, recreation, school, and transportation. The Center for Special Needs website offers a searchable database containing all the resources included in the document. The directory is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

• English
• Spanish

Keywords: Children with special health care needs, Oral health, Family support services, Advocacy, Child care, Assistive devices, Directories, Washington, Spanish language materials, Families, Children, Infants, Parents,

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes a Florida project to increase age 1 dental visits for children at high risk for oral disease and improve access to oral health services for children with special health care needs. The report includes an overview of the need for improved oral health access in Florida; descriptions of significant changes, experiences, and collaborative activities related to the project; and a discussion of project sustainability. A list of publications and other materials produced during the project period is also provided. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Young children, Children with special health care needs, Access to health care, Collaboration, Florida, Final reports

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00157.

This brief outlines strategies for health professionals in planning, developing, and implementing state and local efforts to ensure access to oral health care for children and adolescents with special health care needs. Topics include working with parents and other caregivers to provide oral hygiene care, work force issues, health care financing, the importance of dental and medical homes, and a review of state and local programs addressing these issues. [Funded in part by the Maternal and Child Health Bureau]

• PDF
• Online Order Form

Keywords: Oral health, Dental care, Dental hygiene, Health care systems, Children with special health care needs, Adolescents with special health care needs, Children

University of California, San Francisco School of Nursing, California Childcare Health Program
San Francisco, CA 94143

Telephone: (415) 476-4695
E-mail: abbey.alkon@nursing.ucsf.edu
Website: http://www.ucsfchildcarehealth.org
$10.00 per set of 6 for full-color laminated version; also available from the website.

This series of six posters presents information on the prevention of oral disease and injury in early care and education. Topics include how to handle oral injuries, oral hygiene for children, preventing tooth decay, toothbrushes for children with special needs, toothbrush storage, and toothbrushing. Each poster is available in English and Spanish.

• Materials
• Order Form

Keywords: Oral health, Children, Disease prevention, Child care centers, Posters, Educational materials, Spanish language materials

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This booklet contains the program and summaries of symposium presentations held on May 22-23, 1973, at the University of Iowa. Topics include genetics and the prevention of mental retardation; neuromuscular diseases involving craniofacial structures; hospital dentistry; anesthesia and analgesia; new directions in the training of professionals for delivery of services to the handicapped; challenges in preventing dental disease; a comprehensive clinical dental program for hemophiliacs; organization of an interdisciplinary unit for the study of craniofacial anomalies; and the future care of the handicapped person. The symposium was supported by Training Project 484, Maternal and Child Health Service, health Services and mental Health Administration, awarded to the University of Iowa, Department of Pedodontics, in cooperation with the University Hospital School. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Dental care, Children with special health care needs, Children with developmental disabilities, Craniofacial abnormalities, Hemophilia, Anesthesia, Analgesic drugs, Mental retardation, Dentists, Dental education, Children, Families, Pregnant women

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This document features activities and products from 20 Targeted Oral Health Service System (TOHSS) projects funded by MCHB from 2008 to 2011 to foster statewide approaches to prevent oral diseases and to promote sustainability of oral health programs. Topics include increasing age 1 dental visits for children at greatest risk for oral disease, improving access to oral health services for children with special health care needs, and ensuring restorative treatment of active disease through dental sealant programs. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Young children, Children with special health care needs, Disease prevention, Dental sealants, Public health infrastructure, Program descriptions, Federal MCH programs, Statewide planning

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This report describes a project to increase access to oral health prevention and treatment services for children eligible for Medicaid and the State Children’s Health Insurance Program and other underserved children, including those with special health care needs. Topics include the development, implementation, and promotion of preventive oral health programs in school-based health centers; a restorative referral and case-management oral health program; and implementing the Massachusetts Oral Health Action Plan for children and adolescents with special health care needs. The report provides information on program accomplishments, program impact, and lessons learned. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Medicaid, Low income groups, Young children, Children with special health care needs, Health services delivery, State initiatives, Massachusetts, Final reports

Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820

Telephone: (800) 242-5338
Secondary Telephone: (919) 933-9044
Fax: (919) 933-9604
E-mail: info@cleftline.org
Website: http://www.cleftline.org
$2.00; shipping and handling for 1-2 items $1.75, shipping and handling for 3-5 items $2.25.

This pamphlet gives information about the genetic factors affecting the incidence of cleft lips and palates. The pamphlet reviews the causes of clefts, risks of recurrence in other children in a family, and genetic counseling. The intended audience is parents of children with clefts.

Keywords: Cleft lip, Cleft palate, Craniofacial abnormalities, Chronic illnesses and disabilities, Genetic counseling, Genetics, Educational materials, Children

Early Childhood Learning and Knowledge Center
U.S. Office of Head Start Telephone: (866) 763-6481
Website: http://eclkc.ohs.acf.hhs.gov/hslc
Available from the website.

This resource describes how the revised Head Start Child Development and Early Learning Framework aligns and builds from five domains of birth to five school readiness to identify critical areas of learning and development for children including dual language learners and children with special needs. A webcast provides an overview of the revisions; descriptions of the three new domains and their rationale; the relationship of the framework to program operations, planning, and quality improvement; and how the framework brings additional focus to school readiness for preschool children. Additional topics include school readiness goals and core strategies to promote school readiness. A video and transcript announcing the revised framework are also available.

• Materials

Keywords: Infants, Young children, Families, Children with special health care needs, Head Start, School readiness, Language development, Community programs, Oral health

HRSA Information Center
P.O. Box 2910
Merrifield, VA 22116

Telephone: (888) 275-4772
Secondary Telephone: (877) 489-4772
Fax: (703) 821-2098
E-mail: ask@hrsa.gov
Website: http://www.ask.hrsa.gov
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00287.

This chartbook presents indicators of children’s health and well-being as well as factors in family environments and aspects of neighborhoods that may support or threaten families and children. The content is based on data from the National Survey of Children’s Health. Contents include information on the oral health status of children on the national level and of subpopulations at particular risk for dental caries, such as children with special health care needs. Information on state-level analyses and on children’s use of preventive oral health services is also included.[Funded by the Maternal and Child Health Bureau]

• Current Report
• Previous Report

Keywords: Children, Adolescents, National surveys, State surveys, Health insurance, Racial factors, Ethnic factors, Socioeconomic status, MCH research, Statistical data

HRSA Information Center
P.O. Box 2910
Merrifield, VA 22116

Telephone: (888) 275-4772
Secondary Telephone: (877) 489-4772
Fax: (703) 821-2098
E-mail: ask@hrsa.gov
Website: http://www.ask.hrsa.gov
Available at no charge; also available from the website. Document Number: HRSA Info. Ctr. MCH00248.

This chartbook highlights major findings on the prevalence of special health care needs among children, both nationally and within each state, and on access to and satisfaction with health care among children with special health care needs (CSHCN) and their families. The chartbook provides information about six core outcomes used to measure progress toward the Healthy People 2010 objectives to increase the proportion of states that have integrated service systems for CSHCN. Contents include information on preventive and other oral health care, including unmet needs and delayed or foregone care, reported by parents of CSHCN. [Funded by the Maternal and Child Health Bureau] the volume covering 2001 was published in 2004 and the volume covering 2005-2006 was published in 2008.

• 2005-2006
• 2001

Keywords: Children with special health care needs, Families, Data, Access to health care, Health services, Family support, Surveys

U.S. Maternal and Child Health Bureau
Health Resources and Services Administration Parklawn Building, Room 18-05 5600 Fishers Lane
Rockville, MD 20857

Telephone: (301) 443-2170
Secondary Telephone: (800) 311-BABY (311-2229)
Website: http://www.mchb.hrsa.gov
Available from the website.

This chartbook provides data on parents’ perceptions of their child’s or adolescent’s oral health needs. Topics include condition of teeth, problems with teeth, use of preventive care, receipt of all needed preventive care, and reasons for not receiving needed care. Survey findings for each state and the District of Columbia are included. These data are presented in comparison with national statistics. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Children, Adolescents, Access to health care, Health care utilization, Socioeconomic factors, Racial factors, Ethnic factors, National surveys, State surveys, Statistical data

Maternal and Child Health Library at Georgetown University
Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9770
Fax: (202) 784-9777
E-mail: mchgroup@georgetown.edu
Website: http://www.mchlibrary.org
Available from the website.

This final report describes the Wisconsin Special Smiles Program from 2007 to 2011 to promote oral health as a part of total health for children and adolescents with special health care needs (CASHCN). Objectives include improving self-care and knowledge, including the creation of the parent-education toolkit; establishing an oral-health-case-management program and informing parents and caregivers about oral-health-care resources; offering services through regionally based public health dental hygienists; and offering training for oral health professionals who serve CASHCN. The report concludes with a summary of lessons learned and sustained activities. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Health services delivery, Children with special health care needs, Dental hygiene, State initiatives, Wisconsin, Final reports, Children

Arc of Illinois, Family to Family Health Information and Education Center
20901 LaGrange Road, Suite 209
Frantfort, IL 60423

Telephone: (815) 464-1832
Fax: (815) 464-5292
E-mail: info@thearcofil.org
Website: http://www.thearcofil.org/
Available from the website.

This document provides guidance for families with a child or adolescent with special health care needs about health examinations required for students entering kindergarten, fifth grade, and ninth grade, as well as for students enrolling in Illinois schools for the first time. Topics include transportation, toileting, and school lunch accommodations; administration of medications and medical treatments during the school day; therapies and adaptive equipment; and assistive technology. Resources on immunizations and health insurance are provided. The document is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

• English
• Spanish

Keywords: School age children, Children with special health care needs, Adolescents with special health care needs, Health examinations, School readiness, Illinois, Spanish language materials

Special Olympics, Healthy Athletes, Special Smiles
1133 19th Street, N.W.
Washington, DC 20036

Telephone: (202) 628-3630
Fax: (202) 824-0200
E-mail: spolk@specialolympics.org
Website: http://resources.specialolympics.org/Sections/Healthy_Athletes_Resources.aspx
Available from the website.

This manual provides guidelines for collecting consistent oral health data from athletes during Special Olympics, Healthy Athletes, Special Smiles screenings. The manual discusses the importance of data standardization and presents information for coordinators, screeners, and recorders. The Healthy Athletes Software System form, instructions for training sessions, practice tests, a data cover sheet, and contact information are also included.

• PDF

Keywords: Oral health, Screening, Data collection, Children with special health care needs, Adolescents with special health care needs, Resources for professionals, Training materials, Manuals, Special health care services, Children, Adolescents

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This home study module is part of a New Mexico program to create a network of skilled health professionals that provide oral health care to individuals with developmental disabilities (DD). Sections include an overview of providing care for individuals with DD, a curriculum for special needs certification, oral health quality evaluation criteria, examples of documents from current networks, strategies to ensure that scheduled appointments are kept, individuals with DD oral health care network product lists, articles for review, and 12 training modules. A review of legal issues for treating individuals with DD is included. Samples forms and illustrations are included, as well.

Keywords: Children with special health care needs, Developmental disabilities, Dental care, Curricula, Educational materials, Certification, Special health care services, Resources for professionals, State programs, New Mexico, Oral health

National Conference of State Legislatures
7700 East First Place
Denver, CO 80230

Telephone: (303) 364-7700
Fax: (303) 364-7800
Website: http://www.ncsl.org
$20.00. Document Number: ISBN 1-55516-825-6.

This audiotape and accompanying guide help provide legislators and staff with an understanding of special populations and services for children with special health care needs (CSHCN). In the areas of oral health, mental health, and substance abuse, the audio tape and guide address the eligibility of the CSHCN population with regard to the State Children's Health Insurance Program (CHIP). The audio tape, entitled "Children's Unmet Needs and Special Issues, " is an edited recording of a March 1998 meeting in Nashville, Tennessee, of legislative staff, state agency officials, and national experts who discussed such questions as the actual number of CSHCN and the conditions affecting these special populations.

Keywords: Audio tapes, Conferences, Children with special health care needs, Oral health, Mental health, Substance abuse, State Children's Health Insurance Program

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available from the website.

This report summarizes a statewide forum, held on September 29, 2006, to address oral health issues for children with special health care needs in Utah and to plan ways to address these issues. Report contents include a description of the purpose of the forum, the planning process, pre-forum surveys, a list of invitees and participants, a summary of discussions, a budget outline, potential barriers and needed resources, and conclusions. A copy of the forum agenda is provided, along with a planning matrix. [Funded in part by the Maternal and Child Health Bureau]

• PDF
• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Barriers, State initiatives, Conferences, Strategic plans, Utah

Virginia Department of Health, Division of Dental Health
109 Governor Street, Ninth Floor
Richmond, VA 23219

Telephone: (804) 864-7784
Fax: (804) 864-7783
Website: http://www.vahealth.org/dental
Available from the website.

This directory comprises a network of dentists licensed in Virginia to whom professionals and consumers may refer individuals with special health care needs for oral health care. The directory may be searched using a single special health care need, a dentist’s last name, an office location, or a combination of search criteria. Dentists practicing in Virginia can complete the registration form to be included in the directory. [Funded by the Maternal and Child Health Bureau]

• Materials

Keywords: Oral health, Children with special health care needs, Dentists, Dental care, Directories, Virginia, Children

Virginia Department of Health, Division of Dental Health
109 Governor Street, Ninth Floor
Richmond, VA 23219

Telephone: (804) 864-7784
Fax: (804) 864-7783
Website: http://www.vahealth.org/dental
Available from the website.

This brochure provides information for parents of children with special health care needs. It describes what to expect at the first dental visit, oral hygiene, common dental treatments and positioning at the dental office, establishing a dental home, and how to find an oral health professional. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Educational materials, Children

Association of State and Territorial Dental Directors
1838 Fieldcrest Drive
Sparks, NV 89434

Telephone: (775) 626-5008
Fax: (775) 626-9268
E-mail: info@astdd.org
Website: http://www.astdd.org
Available from the website.

This report presents a statewide collaborative action plan to improve the oral health of children with special health care needs (CSHCN) and individuals with disabilities in Washington. The plan was developed during an oral health forum held on September 27, 2006, in Federal Way, Washington. The action plan outlines background information; summarizes the forum-planning process, implementation, and follow-up activities; and presents recommendations, stakeholders, and a project timeline. The appendix contains a summary of public, professional, and system issues related to the oral health of CSHCN; the forum participant list and agenda; a description of the forum discussion groups; a summary of feedback from the discussion groups and follow-up conference calls; a data brief; and a budget. [Funded by the Maternal and Child Health Bureau]

• PDF

Keywords: Oral health, Children with special health care needs, Access to health care, Prevention services, Health education, Collaboration, Provider participation, Statewide planning, Washington, Children

National Maternal and Child Oral Health Resource Center
Georgetown University Box 571272
Washington, DC 20057-1272

Telephone: (202) 784-9771
Fax: (202) 784-9777
E-mail: OHRCinfo@georgetown.edu
Website: http://www.mchoralhealth.org
Available for loan.

This special issue of the Journal of the Southeastern Society of Pediatric Dentistry addresses the question of why oral health and oral health care truly matter to children and their families. The issue includes articles on the impact of poor oral health on children's ability to function, dental caries and its association with growth, early caries as a risk factor for lifelong oral disease, oral health care for children with special health care needs, preparing undergraduate students to treat children with severe oral disease, and other topics. Some of the articles include photographs or figures.

Keywords: Oral health, Dental care, Child health, Dental caries, Early childhood caries, Children with special health care needs, Child development, Dental education, Journals

Children's Health Alliance of Wisconsin
620 South 76th Street, Suite 120
Milwaukee, WI 53214

Telephone: (414) 292-4000
Secondary Telephone: (414) 292-4004
Fax: (414) 231-4972
Website: http://www.chawisconsin.org/oralhealth.htm
Available from the website.

This resource describes Wisconsin’s program to build a statewide system to promote oral health as part of overall health and to organize community resources to increase access to oral health care for children and adolescents with special health care needs. The resource outlines the following program services: training for dentists, dental hygienists, and dental assistants; education and training for children, parents, caregivers, and teachers; education for health professionals, including physicians and nurses; fluoride varnish and dental sealant programs; and targeted interactive case management to link families with services. Information for families is also available.

• Materials

Keywords: Oral health, Children with special health care needs, Interdisciplinary training, Health education, Case management, Family centered services, State programs, Wisconsin, families, Children

National Diabetes Education Program
National Institute of Diabetes and Digestive and Kidney Diseases One Diabetes Way
Bethesda, MD 20814-9692

Telephone: (301) 496-3583
Secondary Telephone: (888) 693-6337
E-mail: ndep@info.nih.gov
Website: http://www.ndep.nih.gov
Primer: single copy available at no charge, each additional copy, $1 (limit 10 copies); Poster: single copy available at no charge (limit 3 copies). Primer and poster also available from the website. Document Number: NDEP-54 (primer) NDEP-55 (poster).

This guide and poster are designed to reinforce consistent diabetes messages across the disciplines of pharmacy, podiatry, optometry, and dentistry and to promote a team approach to comprehensive diabetes care. Topics include the “ABCs of diabetes” and their role in preventing complications; the key messages that health professionals should convey to clients with diabetes; concerns for drug management and foot, eye, and health care for individuals with diabetes; and the Diabetes Prevention Program. A poster is also available.

• Primer
• Poster

Keywords: Diabetes mellitus, Patient care management, Interdisciplinary approach, Eye care, Oral health, Drug therapy, Professional training, Continuing education, Patient education, Posters, Adults